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by ronnieciao
Mon Sep 18, 2017 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: National Cancer Reserach Institute Survey (UK Only)
Replies: 1
Views: 325

National Cancer Reserach Institute Survey (UK Only)

My cousin (who lives in Scotland) is a Nurse and she brought to my attention this survey from the NCRI (UK's National Cancer Research Institute) is collating information from patients and caregivers (even former, like myself) to help steer the future of research. I was happy to fill it- I am just sh...
by ronnieciao
Sat Aug 26, 2017 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage I've colon cancer Add Vectibix
Replies: 2
Views: 573

Re: Stage I've colon cancer Add Vectibix

Hi there, My Mum had lots of Vectibix and as far as we were concerned it is a miracle drug. It gave her 2 years she wouldn't have had without it. She was a stage 4b from diagnosis with mets across all her body and after adding vectibix she actually went on complete remission for a while. She did hav...
by ronnieciao
Tue Jul 11, 2017 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1912
Views: 159282

Re: The Grim Reaper took another swipe at me !!

So sad.....always enjoyed his humour and zest for life that transpired in all his posts. May he rest in peace, free from suffering. Big hugs to you, Diane.
by ronnieciao
Thu Jul 06, 2017 7:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eye Dr and dentist before chemo start (?)
Replies: 4
Views: 740

Re: Eye Dr and dentist before chemo start (?)

Hi Jep, I'm on my way out but I just wanted to say that I would definitely advise your husband to have his dental checks before starting chemo. my mother had several problem with her teeth during treatments (exacerbated by the chemo) which cause problems as it delayed her treatments and generally wa...
by ronnieciao
Tue Jun 27, 2017 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things people say or don't say but it's okay
Replies: 82
Views: 12733

Re: Things people say or don't say but it's okay

Ah yes. The website ran by the anti-vaccine, Big Pharma conspiracy quack. Thank you for your enlightenment.
by ronnieciao
Mon Jun 26, 2017 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 115
Views: 17348

Re: Things Not to Say and the Responses I want to Make (Rant)

BevG, Who said anything about walking up the mountain? Your hostile comments don't exactly comport with the terms of use of this site and with its purpose: The Colon Club Message Board was designed for those who have been diagnosed with colorectal cancer, their friends, family and caregivers to com...
by ronnieciao
Fri Jun 23, 2017 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 115
Views: 17348

Re: Things Not to Say and the Responses I want to Make (Rant)

I stopped being polite about stupid suggestions very early on. It was incredible how my mother's diagnosis suddenly made every Tom, Dick and Harry we knew a cancer specialist. No matter how many oncologists, surgeons, and specialists we consulted in our Italy, the UK, Europe, and worldwide, everybod...
by ronnieciao
Fri Jun 09, 2017 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 48
Views: 4340

Re: Age 30 (M) Recently Diagnosed, Family History

Hi all, Thanks for having me, I'm guessing this is going to be my first post in a very long journey. I've recently been through a series of tests, Colonoscopy, CT and MRI, after my Mum was diagnosed with colon cancer last month! Alas, I too have the condition, as did my Grandpa and did my Great Gra...
by ronnieciao
Mon May 01, 2017 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial NIVOLUMAB for Non MSI-H
Replies: 3
Views: 842

Re: Clinical Trial NIVOLUMAB for Non MSI-H

The trial you mention, NCT02060188, CheckMate142 is not just Nivolumab for MSS (that would have little chances to work: nivolumab monotherapy works well for most MSI-H, but not on itself for MSS). The trial proposed *combinations* of drugs. It has TWO arms for MSS --that is non MSI-High-- colorecta...
by ronnieciao
Tue Mar 21, 2017 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neulasta: the possibility that it may encourage tumor growth cannot be ruled out ?!
Replies: 3
Views: 508

Re: Neulasta: the possibility that it may encourage tumor growth cannot be ruled out ?!

My mother's oncologist did, yes. He was not a fan of it, prescribed it when absolutely necessary only.
by ronnieciao
Fri Jan 20, 2017 7:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IV Hydration at home
Replies: 16
Views: 1451

Re: IV Hydration at home

maia- that's good news about your friend. my mother had a disastrous peritoneal situation at diagnosis, with copious ascites etc. chemo killed it completely off - they couldnt even see anything when they removed her primary via laparo, and they did look. while they were in there, they gave her an o...
by ronnieciao
Thu Jan 19, 2017 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bladder issues?
Replies: 22
Views: 1711

Re: Bladder issues?

Hi Beansmama, I just wanted to let you know that you are not alone. My mother is also having issues with her bladder, similar and probably worse to what you are describing. They have not given her a reason yet. She had a cystoscopy+ urinedynamic testing a few months ago and it was inconclusive. Her ...
by ronnieciao
Fri Jan 13, 2017 7:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reduced ascites?
Replies: 3
Views: 716

Re: Reduced ascites?

Hi Brikee, i would take this as a good sign. it could mean the peritoneal nodules are decreasing in size and the fluid production is decreasing. As i mentioned in another post, my mum also had peritoneal carcinomatosis at diagnosis, and had several paracentesis to give her relief- her abdomen was hu...
by ronnieciao
Tue Jan 10, 2017 2:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IV Hydration at home
Replies: 16
Views: 1451

Re: IV Hydration at home

I have not an advice, but want to wish your husband the best. I.V. hydratation is something so helpful, immediately helpful! It's a bout of fresh energy. I.V nutrition is other level, indeed, but even that can be reversible if a treatment starts to work --I have a friend with peri mets from other c...

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