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by ronnieciao
Sat Oct 27, 2018 10:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan + mAbs (???)
Replies: 6
Views: 857

Re: Irinotecan + mAbs (???)

Thank you Veronica! So the mAbs is Vectibix . . . I'm so happy to hear that it worked well for your mom . . . hoping that my husband will respond well too! Yes it could be Vectibix, or Avastin. If your husband has not had Vectibix or Erbitux yet and is not KRAS mutant I would expect they will give ...
by ronnieciao
Sat Oct 27, 2018 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Irinotecan + mAbs (???)
Replies: 6
Views: 857

Re: Irinotecan + mAbs (???)

Hi Jep With "mabs" your oncologist could be referring to either Erbitux or Vectibix (which are their commercial names:the actual drug names are Panitumumab and Cetuximab. Both are very similar); or he is still referring to Avastin, which is the commercial name of the drug Bevacizumab. As y...
by ronnieciao
Sat Sep 22, 2018 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 29
Views: 10077

Re: MSI or MSS

Hi Stu

From an European perspective (I know you're in the UK)- my mum was tested very early on. We're in Italy. It could have been because of her family history, however.

Best wishes

Veronica
by ronnieciao
Tue Mar 27, 2018 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can someone who is stage 4 really end stage still benifit from Keytruda?
Replies: 6
Views: 1316

Re: Can someone who is stage 4 really end stage still benifit from Keytruda?

My mum is no longer here unfortunately. But if I were in your shoes, I would really, really hope she tries it. Of course it carries risks, especially if she is very weak already. It also carries enormous potential, but at the end of the day, is the doctor who has to assess if she can withstand the t...
by ronnieciao
Mon Sep 18, 2017 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: National Cancer Reserach Institute Survey (UK Only)
Replies: 1
Views: 605

National Cancer Reserach Institute Survey (UK Only)

My cousin (who lives in Scotland) is a Nurse and she brought to my attention this survey from the NCRI (UK's National Cancer Research Institute) is collating information from patients and caregivers (even former, like myself) to help steer the future of research. I was happy to fill it- I am just sh...
by ronnieciao
Sat Aug 26, 2017 10:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage I've colon cancer Add Vectibix
Replies: 2
Views: 937

Re: Stage I've colon cancer Add Vectibix

Hi there, My Mum had lots of Vectibix and as far as we were concerned it is a miracle drug. It gave her 2 years she wouldn't have had without it. She was a stage 4b from diagnosis with mets across all her body and after adding vectibix she actually went on complete remission for a while. She did hav...
by ronnieciao
Tue Jul 11, 2017 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1933
Views: 260461

Re: The Grim Reaper took another swipe at me !!

So sad.....always enjoyed his humour and zest for life that transpired in all his posts. May he rest in peace, free from suffering. Big hugs to you, Diane.
by ronnieciao
Thu Jul 06, 2017 7:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Eye Dr and dentist before chemo start (?)
Replies: 4
Views: 1241

Re: Eye Dr and dentist before chemo start (?)

Hi Jep, I'm on my way out but I just wanted to say that I would definitely advise your husband to have his dental checks before starting chemo. my mother had several problem with her teeth during treatments (exacerbated by the chemo) which cause problems as it delayed her treatments and generally wa...
by ronnieciao
Tue Jun 27, 2017 4:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things people say or don't say but it's okay
Replies: 82
Views: 19301

Re: Things people say or don't say but it's okay

Ah yes. The website ran by the anti-vaccine, Big Pharma conspiracy quack. Thank you for your enlightenment.
by ronnieciao
Mon Jun 26, 2017 7:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 28379

Re: Things Not to Say and the Responses I want to Make (Rant)

BevG, Who said anything about walking up the mountain? Your hostile comments don't exactly comport with the terms of use of this site and with its purpose: The Colon Club Message Board was designed for those who have been diagnosed with colorectal cancer, their friends, family and caregivers to com...
by ronnieciao
Fri Jun 23, 2017 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 28379

Re: Things Not to Say and the Responses I want to Make (Rant)

I stopped being polite about stupid suggestions very early on. It was incredible how my mother's diagnosis suddenly made every Tom, Dick and Harry we knew a cancer specialist. No matter how many oncologists, surgeons, and specialists we consulted in our Italy, the UK, Europe, and worldwide, everybod...
by ronnieciao
Fri Jun 09, 2017 10:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Age 30 (M) Recently Diagnosed, Family History
Replies: 48
Views: 8273

Re: Age 30 (M) Recently Diagnosed, Family History

Hi all, Thanks for having me, I'm guessing this is going to be my first post in a very long journey. I've recently been through a series of tests, Colonoscopy, CT and MRI, after my Mum was diagnosed with colon cancer last month! Alas, I too have the condition, as did my Grandpa and did my Great Gra...
by ronnieciao
Mon May 01, 2017 6:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial NIVOLUMAB for Non MSI-H
Replies: 3
Views: 1370

Re: Clinical Trial NIVOLUMAB for Non MSI-H

The trial you mention, NCT02060188, CheckMate142 is not just Nivolumab for MSS (that would have little chances to work: nivolumab monotherapy works well for most MSI-H, but not on itself for MSS). The trial proposed *combinations* of drugs. It has TWO arms for MSS --that is non MSI-High-- colorecta...
by ronnieciao
Tue Mar 21, 2017 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Neulasta: the possibility that it may encourage tumor growth cannot be ruled out ?!
Replies: 3
Views: 847

Re: Neulasta: the possibility that it may encourage tumor growth cannot be ruled out ?!

My mother's oncologist did, yes. He was not a fan of it, prescribed it when absolutely necessary only.

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