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by juliej
Wed Jan 17, 2018 8:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back in the fight
Replies: 7
Views: 300

Re: Back in the fight

Will be having MRI on head and full body CT Tomorrow. Doc has said will have a better plan tomorrow and he's meeting with oncology, neurosurgery and radio oncology. Sending lots of prayers for your MRI and CT scan tomorrow! Hope it's benign and can be removed with a minimal amount of discomfort. St...
by juliej
Wed Jan 17, 2018 8:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery scheduled, clinical study for Lifeseal, questions about recovery
Replies: 20
Views: 354

Re: Surgery scheduled, clinical study for Lifeseal, questions about recovery

Lots of questions here. My LAP is scheduled for 1/31/18. Finished neoadjunct 12/8/17. It is a terrible month, my skin on legs, genital area for fried. Finally feeling "Normal" still issues with wrinkly fingers, itchy skin, but walking a couple miles a day. Stanford is participating in stu...
by juliej
Tue Jan 16, 2018 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tribute to my dear friend Anne - aka BeansMama
Replies: 24
Views: 1101

Re: Tribute to my dear friend Anne - aka BeansMama

We all cheered BeansMama on in her fight, amazed at her passion and strength. The world is a bit darker without her light today. We were blessed to know her, but not for nearly long enough. My thoughts and condolences to her family.

Stand strong. F*ck cancer.
by juliej
Fri Jan 12, 2018 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 56 went for a colonoscopy they found 5 cm tumor
Replies: 28
Views: 1401

Re: 56 went for a colonoscopy they found 5 cm tumor

But they say I will not be able to eat as much or have a much control over my rectum. Mainly because a colon is not a rectum and I will not have the muscle control. I will need to go the bath room more frequently, and will not be able to hold it as long. Has any one on this site that had part of th...
by juliej
Thu Jan 11, 2018 7:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Primer on Genetic and Genomic testing
Replies: 1
Views: 107

Re: Primer on Genetic and Genomic testing

Primer on genetic/genomic cancer testing. I received this link from Dana Farber this morning: http://blog.dana-farber.org/insight/2017/12/dna-sequencing-cancer-therapy/?utm_source=newsletter&utm_medium=email&utm_content=%3E%3E%20READ%20MORE&utm_campaign=spotlight Cancer therapy is incre...
by juliej
Thu Jan 11, 2018 6:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice for first appointment with oncologist after diagnosis
Replies: 6
Views: 235

Re: Advice for first appointment with oncologist after diagnosis

Teri, I'm assuming you had a CT scan since they ruled out metastasis, but if not, make sure you ask for one. When you get your port, ask for a "power port" -- one that is capable of being used for CT scans as well as chemo. It will make your treatments a lot easier! Also, arrange the locat...
by juliej
Tue Jan 09, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother stage IV, terrified
Replies: 7
Views: 510

Re: Mother stage IV, terrified

I too was diagnosed Stage IV like your mom. I had 7 lesions in my liver (all lobes were affected) and a tumor in each lung. They gave me a 6-month life expectancy without chemo, and 18-24 months if I managed to "do well" on chemo. After 13 months of chemo and considerable shrinkage of all ...
by juliej
Mon Jan 08, 2018 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice
Replies: 4
Views: 333

Re: Seeking advice

I think it's best if I start from the beginning. 2 years ago I started having random bouts of blood in my stool it's a lot bright red and sometimes with clots. I was told hemroids 8 months after it started I noticed I was very bloated, my doctor noticed this to and ordered a CT scan. A few things w...
by juliej
Mon Jan 08, 2018 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal
Replies: 15
Views: 490

Re: Port Removal

Anyways, it’s out, and they let me keep it as a souvenir. Funny how something so little can do such big things. Congrats, AAC, on your "deportation"! :D :D :D I'm due to have mine removed soon so I don't really like hearing all the convo about tugging, pulling, etc. :shock: But I am looki...
by juliej
Tue Jan 02, 2018 5:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lung surgery advice
Replies: 15
Views: 1031

Re: Lung surgery advice

DH is 5 weeks post-op and still having lots of nerve pain and general tiredness. He is going for pre-testing for the second surgery in two weeks. Is pain at this stage normal and expected and ok for second surgery? Would love to hear your experiences with recovery. He's also lost ten pounds which i...
by juliej
Tue Jan 02, 2018 5:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dont know if she was on here, was on colontown
Replies: 4
Views: 563

Re: Dont know if she was on here, was on colontown

Sigh. GOODBYE 2017 After losing a son to colon cancer august 2014 and a daughter may 2017 to suicide compounded by depression of grief I really would like my easy button back Exaussie, you have had one hell of a year!!! To lose a child is to lose the very heart and soul of you . I know you will car...
by juliej
Tue Jan 02, 2018 4:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone doing xelox and xeloda. Please help
Replies: 23
Views: 560

Re: Anyone doing xelox and xeloda. Please help

Agree with Lee about trying ginger. It works for many people. Don't let your stomach get too empty in-between meals. Nibble on Goldfish crackers, ginger, whatever works for you. And make sure you are drinking plenty of water (or, even better, water with electrolytes). Also, be careful with the timin...
by juliej
Thu Dec 28, 2017 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: When are mets controlled/stable?
Replies: 4
Views: 527

Re: When are mets controlled/stable?

Every HIPEC surgeon has his/her own standards/guidelines on when they think it's appropriate to operate. However, if the lung nodules have been unchanged for over a year and a half, they would be considered "stable."

Hope that helps!
Juliej
by juliej
Thu Dec 28, 2017 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Healthy 42 year old diagnosed with stage 4 colon cancer
Replies: 8
Views: 1083

Re: Healthy 42 year old diagnosed with stage 4 colon cancer

It sounds like you might be a good candidate for an HAI pump. I also was diagnosed Stage 4 with numerous liver mets. My local cancer center said I was inoperable. I went to Sloan, got an HAI pump, and am NED (no evidence of disease) now. I would ask for a consultation with Dr. Nancy Kemeny at Sloan....
by juliej
Wed Dec 27, 2017 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question
Replies: 18
Views: 778

Re: Question

First of all, make sure you are going to a board-certified gastroenterologist and a board-certified colorectal surgeon. I can't stress the importance of this enough. You need an expert when you're dealing with cancer. Second, make sure you get genetic testing. There are a couple types of colon cance...

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