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by juliej
Mon Dec 10, 2018 7:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 4 /2018
Replies: 229
Views: 79251

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 4 /2018

CRguy, I hope you have lots more time with your big, beautiful, headstrong grandpuppy. You are right. Your spirit and his are connected at a very deep level. I firmly believe that what we generate multiplies. You both generate wisdom and strength, and you are both anchored together on this plane of ...
by juliej
Mon Dec 10, 2018 6:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ladies what did you do with your hair during chemo?
Replies: 9
Views: 224

Re: Ladies what did you do with your hair during chemo?

I had my hair cut in a shorter, layered style during treatment to disguise the thinning. It helped it look fuller so I'd advise going in that direction -- maybe not quite as short as a pixie cut though. As far as color, you can use chemo-safe products like Goldwell. Just see if there is a salon arou...
by juliej
Mon Dec 10, 2018 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: No longer NED - DEVASTATED
Replies: 27
Views: 1158

Re: No longer NED - DEVASTATED

Well, that sucks big time! What a way to find out! As one of Dr. Kemeny's patients, I can confidently state she wouldn't have allowed him to skip the mop-up chemo. I'm also sorry that you have an important career meeting tomorrow morning. This is exactly the kind of thing you don't need before a ner...
by juliej
Mon Dec 10, 2018 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A little advice port removal stage 4
Replies: 2
Views: 143

Re: A little advice port removal stage 4

Usually ports aren't removed if a patient is still undergoing treatment (or might resume treatment in the future) unless the port is giving them problems (soreness, infection, hard to access, etc.). I think some oncs like to recommend port removal in stable patients because they think it will make t...
by juliej
Mon Dec 10, 2018 5:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fingertip and toe numbness from Cape or Oxaly?
Replies: 4
Views: 147

Re: Fingertip and toe numbness from Cape or Oxaly?

Oxaliplatin is the 800-pound gorilla when it comes to neuropathy. Capecitabin is also a factor and I often wonder if those of us who've taken both at the same time have increased detrimental effects. I had the classic HFS (hand-foot syndrome) with Cape -- red, peeling, and hot hands and feet. Althou...
by juliej
Thu Dec 06, 2018 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 869

Re: Mixed bag kinda day: progression, genomic results, and trial

My oncologist was telling me how incredibly detailed and thorough Dr. Kemeny is. When my onc and I were discussing the possibility of Duke offering HAI, she cautioned me about the success rates at other hospitals that perform HAI implants. She said, Dr. Kemeney's results are basically unmatched. Ha...
by juliej
Wed Nov 14, 2018 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need prayers
Replies: 30
Views: 1374

Re: Need prayers

Hopegirl wrote:Feeling so thankful and blessed right now , got Another clear scan . Thank you again for your prayers .

Yahooooo!!!! That's the news I wanted to hear, Hopegirl! :D :D :D

Now go out there and celebrate! You deserve a treat!

xo,
Juliej
by juliej
Wed Nov 14, 2018 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 1214

Re: Almost 6 years

She woke me up at 4:00 AM this morning after our cat decided to lick her face with his sandpaper tongue. I'm just glad to hear you rescued him from the toilet in the old place! :D We moved from a small unit (apartment or condo in the US I guess?) of about 1,000 square feet to a really old terrace b...
by juliej
Wed Nov 14, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV to NED in 9.5 months!
Replies: 12
Views: 700

Re: Stage IV to NED in 9.5 months!

Totally agree with you! I am alive today because of Dr. Kemeny, Dr. D'Angelica, and all the brilliant fellows and nurses at MSKCC! I love this line in your signature: 9/12/18: Buy new Corvette, because fuck cancer. Yes!!!! :D :D :D Congratulations on your NED status! Here's to a long and healthy lif...
by juliej
Wed Nov 14, 2018 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI of Peritoneum with Ostomy
Replies: 1
Views: 248

Re: MRI of Peritoneum with Ostomy

You need a diet that is non-irritating and easily digested - the point being to have very little residue left in your intestines before the MRI. That way they can get a better image. Usually it's a diet low in fat, fiber and lactose, which isn't too hard to do. As long as I can have peanut butter, I...
by juliej
Wed Nov 14, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump without Dr. K at MSK
Replies: 26
Views: 1001

Re: HAI pump without Dr. K at MSK

Hi Juliej, I will be having surgery for the HAI pump next week at MSK. I will be also be traveling there every other week for treatment. I plan on flying to NYC in the morning, receive treatment and fly home that evening. I know it is going to be a very long day and very challenging, but I am up fo...
by juliej
Tue Nov 13, 2018 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump without Dr. K at MSK
Replies: 26
Views: 1001

Re: HAI pump without Dr. K at MSK

I've been told not to look too far ahead, but reading stories on here give me hope still of long-term life. Is that false hope? "False hope" is a term that's thrown around a lot, especially if you're a Stage IV CRC patient. The fact is many Stage IV CRC patients are living longer lives an...
by juliej
Thu Nov 08, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 4 /2018
Replies: 229
Views: 79251

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Hopefully, a closer examination via CT scan will show it to be just a "summation artifact" due to the angle of the x-ray and not a true nodule. my resolve is STRONG it's never weak survival is my PLAN[/i] YES!!!!!! Survival is the plan! I always tell people that I am fearless because I've ...
by juliej
Thu Nov 08, 2018 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removed - 1.5 years later.
Replies: 11
Views: 484

Re: Port Removed - 1.5 years later.

Congratulations! You've been "deported"! :D

Now go and enjoy your life!
by juliej
Thu Nov 08, 2018 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got second opinions- HAI pump, HIPEC, and now decisions
Replies: 4
Views: 404

Re: I got second opinions- HAI pump, HIPEC, and now decisions

First of all, the good news is that you have lots of options . That's a great position to be in, even though I agree with you that the decision-making process is unnerving! My highly respected local surgeon wants to go with an aggressive resection and ablatement of my liver, and believes that he can...

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