Search found 2859 matches

Go to advanced search

by juliej
Fri Aug 31, 2018 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry, I can't do that, I have cancer....
Replies: 10
Views: 1207

Re: Sorry, I can't do that, I have cancer....

Thanks for the laugh, Maggie Nell! The song is a riot! I often wished I had a button to wear on my subway ride home after an infusion. Seats were reserved for the Hugely Pregnant and the Very Elderly. I didn't fit either category. I did play the cancer card once to get my favorite Italian bakery in ...
by juliej
Thu Aug 30, 2018 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Disconnect
Replies: 11
Views: 718

Re: Disconnect

And a video from Johns Hopkins that shows you how to do it.

https://www.youtube.com/watch?v=eFEnfSx6vKw
by juliej
Thu Aug 30, 2018 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2018
Replies: 50
Views: 16108

Re: ***News Stories Thread*** ONGOING 2018

Very interesting article in Forbes: "Liquid Biopsy 'Weather Forecast' Can Predict When Tumors Will Return." It involves taking blood samples every 2-4 weeks and looking for mutational changes and then readjusting treatment based on the findings. I have a feeling liquid biopsies will be imp...
by juliej
Tue Aug 28, 2018 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1278
Views: 115809

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I'm going to use Vaseline Intensive Care on my rear end to try to promote healing. You might need something more robust. I recommend Calmoseptine. It really stops the pain and heals the area overnight. It's available at most drug stores or Amazon. http://www.calmoseptineointment.com/
by juliej
Tue Aug 28, 2018 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon cancer: my treatment and side effects
Replies: 40
Views: 3390

Re: Colon cancer: my treatment and side effects

Got my first mouth sore a week after disconnect from infusion #4 (2 days ago). Started doing the baking soda rinse religiously and it has healed up, thank goodness. Will make sure I do the baking soda rinse after chemo regularly from now on. So much to remember, ugh.... You might try kefir for your...
by juliej
Mon Aug 27, 2018 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The things people say to cancer patients
Replies: 44
Views: 2329

Re: The things people say to cancer patients

We have other threads on what not to say to a cancer patient, but pretty much nonexistent on what TO say, if anything @ all. I want simple acknowledgement: "I am so, so sorry this is happening to you." Then Love. This one is tricky because too much love can make you feel like you're atten...
by juliej
Thu Aug 23, 2018 5:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling better finally after liver resection
Replies: 4
Views: 412

Re: Feeling better finally after liver resection

I’m feeling better now, like I’ve turned the corner. I had a really good check up with my surgeon this week. CT shows almost complete regeneration, blood work looks great and my CEA is 4.3 which is the lowest it’s been since diagnosis when it was 400. I’ll see my Onc in a month with a repeat of lab...
by juliej
Fri Aug 17, 2018 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy 14 year cancerversary to me
Replies: 19
Views: 2026

Re: Happy 14 year cancerversary to me

Cappy, happy, happy birthday/cancerversary to you! Fourteen beautiful years! :D :D :D

Thank you for coming back and posting your story every year. May you have a long and healthy life!

Juliej
by juliej
Thu Aug 16, 2018 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So Frustrated....
Replies: 1
Views: 604

Re: So Frustrated....

The American Cancer Society announced new guidelines for colonoscopies this summer. Now the official start of screening age is 45, instead of 50. Generally speaking, insurance companies change their coverage to match the ACS guidelines. https://www.cancer.org/cancer/colon-rectal-cancer/detection-dia...
by juliej
Thu Aug 16, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 78
Views: 5894

Re: Dang 1cm Liver Met!

Yes, odds are it was there all along and just too small to see on a CT scan. The good news is they caught it very quick! Good thing you were being closely monitored! Surgical resection is the gold standard for removing liver mets, but radiofrequency ablation (RFA) therapy is frequently used for a si...
by juliej
Wed Aug 15, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally O/T
Replies: 23
Views: 1919

Re: Totally O/T

I send love - big love! - to the forum keepers like you CRguy. You keep us all connected in a circle of strength and empowerment. Knowledge is power and the wisdom here is off the scale! And I send love to the spirit lifters, the way-makers, the out-of-the-box thinkers, and the dream catchers. May t...
by juliej
Wed Aug 15, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 2569

Re: Stage 4 Colon Cancer

How can I contact to MSK ? Could both of you give me some contacts ? I am living in a Asia country, so it would be better if i can discuss through email at first step Dr. Nancy Kemeny is the HAI pump expert at MSK. Try contacting her office. The best way is to get a referral from your oncologist or...
by juliej
Wed Aug 15, 2018 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 16
Views: 2131

Re: Brain metastasis

Thanks for all the support everyone ❤️ JulieJ and everyone. They also found a met on his spine and hip. So brain surgery tomorrow followed by hip replacement next week. The spine met will be hit with radiation. Amazingly all organs are clear. The doctors at MSK truly amaze me. It was like no sweat,...
by juliej
Tue Aug 14, 2018 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help understanding CEA
Replies: 10
Views: 1108

Re: I need help understanding CEA

Just a quick note to remind people that HIPAA gives patients the right to get copies of all of their medical records. If your oncologist isn't sharing info like your CEA results, ask for a copy of your labs. Same goes for CT scans. In my experience it's better to know what's going on so you can ask ...
by juliej
Tue Aug 14, 2018 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 16
Views: 2131

Re: Brain metastasis

I sit here with tears in my eyes for your DH and this devastating new development! Fortunately, the treatment of brain metastases has advanced substantially in recent years. Surgery, radiation therapy, chemotherapy, immunotherapy, and targeted therapies are helping patients live longer and maintain ...

Go to advanced search