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by juliej
Thu Jun 21, 2018 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 969
Views: 83527

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I was in a hurry to get the reversal and then the Dana Farber Oncologist said four months so my frame of mind was four months. Then I called the surgeon and she said one month after end of chemo. Most people seem to have it done one month after but I have seen a few people report two months or thre...
by juliej
Thu Jun 21, 2018 5:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Home from the hospital
Replies: 2
Views: 191

Re: Home from the hospital

Cyn, I am so glad to hear there were no major complications and it was a successful surgery! :D :D :D Your job now is to take it easy and recover your strength. Eating protein will help heal the incision faster and also help your resected liver grow back sooner. Going for walks will also help the he...
by juliej
Thu Jun 21, 2018 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Areas of high density in lungs...infection or cancer?
Replies: 1
Views: 95

Re: Areas of high density in lungs...infection or cancer?

Areas of increased density on a lung scan don't necessarily mean metastasis. They can be caused by any process that fills the alveoli with fluid, pus, blood, cells (including tumor cells) or other substances resulting in lobar, diffuse or multifocal ill-defined opacities. An infection can easily do ...
by juliej
Wed Jun 20, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 15
Views: 646

Re: Got both good news and scary news (HAI pump)

I know I mentioned this in another response, but I really hope I can still eat avocados! I live on the west coast. Avocados are daily food here - avocado toast for breakfast, on a salad for lunch, guacamole and chips, avocado+kale+pineapple+coconut smoothies -- you get the idea!!! :D I have never h...
by juliej
Wed Jun 20, 2018 5:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pet scan result...what the .....?
Replies: 15
Views: 569

Re: pet scan result...what the .....?

Trying wrote:That would be amazing. Do you know if posdible if they are in both lobes of the liver?

I had tumors in all lobes of my liver and had a resection. Know that it's possible and stay strong!
by juliej
Wed Jun 20, 2018 5:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Send Good Vibes for Friday
Replies: 3
Views: 139

Re: Please Send Good Vibes for Friday

I will be sending him (and you!) positive thoughts, energy, and strength all throughout the day on Friday!

I know this is a rough and uncertain time for you both. Lean on us - we're here for you!

Hugs to you,
Juliej
by juliej
Tue Jun 12, 2018 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed with rectal cancer and terrified
Replies: 15
Views: 672

Re: Just diagnosed with rectal cancer and terrified

Hi, Jessica! I know how you feel. Getting a cancer diagnosis is probably the most frightening event in a person's life. Your mind shuts down and you're terrified of what it means, what's to come, will you ever get your life back, etc. Back in 2010, I was informed by a dismayed oncologist that I woul...
by juliej
Tue Jun 12, 2018 4:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Got both good news and scary news (HAI pump)
Replies: 15
Views: 646

Re: Got both good news and scary news (HAI pump)

I agree with radnyc: a gall bladder is an organ you can easily live without. I have the HAI pump so my gall bladder was removed too and I don't miss it at all. About your squeamishness about needles, ports, etc. -- it's time to pull back - WAY BACK - and look at the BIGGER picture! The HAI pump has ...
by juliej
Tue Jun 05, 2018 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA
Replies: 7
Views: 477

Re: CEA

Hi everyone, just got my blood results and cea has gone from 2.2 to 2.8 - concerned about this.....have my ct results on Thursday. Any thoughts?? I don't know much about this, but do know when it starts to go up its not good right?? thanks Decimal point changes aren't considered important in CEA re...
by juliej
Wed May 30, 2018 4:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Miseries - But 'Hey I have it pretty good...'
Replies: 28
Views: 1359

Re: The Miseries - But 'Hey I have it pretty good...'

You just want to cry and cry .... oh come on Steve real men don't cry (well those soldiers in war do, but they saw their mates die) and to be honest unnerving.... Oh brother...... :( :( :( Soldiers and cancer patients have something in common - they both experience PTSD. Yep, a recent study showed ...
by juliej
Wed May 30, 2018 3:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 27
Views: 883

Re: CEA dropped!

Thank you so much everyone for the positive vibes and wishes! I'm actually throwing myself a birthday party this weekend because I was in the hospital a year ago on my birthday with the dreaded blockage and surgery. This year I definitely get to eat cake :) The CEA drop is truly icing on my cake! H...
by juliej
Tue May 29, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Meeting with surgeon Tuesday...what to ask?
Replies: 24
Views: 844

Re: Meeting with surgeon Tuesday...what to ask?

Ok, just got back from surgeon appointment. I’m not sure how I should feel about this news.....here goes: -CT still has to be done tomorrow and pathology report still not back, however.... -surgeon tentatively puts this at stage 3. He says T3, N? (Although he’s not a radiologist he looked up hubbys...
by juliej
Tue May 29, 2018 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 27
Views: 883

Re: CEA dropped!

Awesome news! :D :D :D

That's a big drop in 2 weeks. Keep kicking cancer butt!
by juliej
Tue May 29, 2018 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying Keytruda Off-Label (MSS with a Twist)
Replies: 33
Views: 2597

Re: Trying Keytruda Off-Label (MSS with a Twist)

UPDATE: I had one treatment and 3 weeks later my CEA has gone from 39.4 to 60.1....so I am thinking that Keytruda is not working for me. I had my second treatment but I don't expect it to help. (MY oncologist said it may be too early to make that determination...). Just wanted to update you all on ...
by juliej
Mon May 21, 2018 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Treos Bio’s PolyPEPI™ Precision Cancer Vaccine Metastatic Colorectal Cancer
Replies: 3
Views: 330

Re: Treos Bio’s PolyPEPI™ Precision Cancer Vaccine Metastatic Colorectal Cancer

Really interesting vaccine. The trial uses the vaccine (which induces an optimized immune response) as an add-on treatment to regular chemo. Sounds promising! They are recruiting patients at the Mayo Clinic in Rochester, Minnesota. Here's the trial info: https://clinicaltrials.gov/ct2/show/NCT033912...

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