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by juliej
Thu Jul 11, 2019 7:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Feeling nervous, that time again
Replies: 7
Views: 341

Re: Feeling nervous, that time again

I'll be thinking of you on Friday, Hopegirl, and sending lots of prayers for another clear scan!!!

Juliej
by juliej
Thu Jul 11, 2019 7:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 177
Views: 22719

Re: My CRC with liver mets journey

I am gearing up for my first of two liver resections at MSK, which will be happening next Wednesday the 17th. We will fly out next Tuesday and stay through my follow-up appointment the 29th. I feel more settled approaching this surgery versus the first one, which is a relief. I've been told to expe...
by juliej
Wed Jun 26, 2019 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial radiation
Replies: 12
Views: 1602

Re: Partial radiation

First of all, calmoseptine is awesome! It really helps with the burning and pain from bad diarrhea. And yes, it's undoubtedly the tumor that's giving him the sensation of having to go all the time. The tumor will start shrinking in just a few weeks and he'll feel so much better then. It also makes i...
by juliej
Tue Jun 25, 2019 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 year scan
Replies: 17
Views: 1370

Re: 2 year scan

Congratulations, benben! 2 years and 2 months is awesome! :D :D :D

Take the plunge - move to Hawaii with your lovely lady! Cancer has stolen enough from you. Claim some back!!!

Juliej
by juliej
Tue Jun 25, 2019 7:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All all ileostomy reversals open wounds?
Replies: 12
Views: 791

Re: All all ileostomy reversals open wounds?

CRguy wrote:They knew I was a vet, so I could handle the "duties" !

They thought...

This guy KNOWS what's what so we can go straight to staples and if there's an issue HE'LL be the first to tell us!

If I was a dog/cat/tiger/muskrat I'd want you to do my closure!

JJ
by juliej
Mon Jun 24, 2019 6:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Having a really hard time with ileostomy
Replies: 7
Views: 482

Re: Having a really hard time with ileostomy

Visit your ostomy nurse as often as necessary until you get the right fit for your stoma and no pain or skin issues. It takes time to learn what's best for your particular case. And remember that stomas reduce in size for the first few weeks after surgery, so you'll need to cut the hole smaller as t...
by juliej
Mon Jun 24, 2019 5:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair removal - help?
Replies: 13
Views: 679

Re: Hair removal - help?

Sooooo.... I got my upper lip threaded today. The good news: it worked. The bad news: holy f%^# was that a painful experience! I wonder if you could use something like EMLA cream beforehand??? That's what I used on my port before they accessed it because I have super-sensitive skin. It's a prescrip...
by juliej
Mon Jun 24, 2019 4:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just had my latest colonoscopy
Replies: 14
Views: 941

Re: Just had my latest colonoscopy

My colon was totally clear this time . No sign of any polyps , no diverticulitis and no colitis. Excellent news, Ron!!! It's always a relief to get the "all clear". Hope you went out to celebrate! My 5 year scope is coming up in August and I'm already anxious about it.....and, of course, ...
by juliej
Mon Jun 24, 2019 4:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: All all ileostomy reversals open wounds?
Replies: 12
Views: 791

Re: All all ileostomy reversals open wounds?

I have heard of a few people who had their wound glued or stapled shut. Personally, I'd worry about the possibility of getting an infection in it with that procedure. It's more common to pack the wound with gauze combined with a saline solution. It's not hard to do - just squirt a little saline onto...
by juliej
Mon Jun 24, 2019 4:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 13 years ago today!
Replies: 8
Views: 500

Re: 13 years ago today!

Thanks for sharing, Jaynee! You are living proof that a pro-active approach makes all the difference.

Congratulations on 13 years! :D :D :D I'll raise a glass to you tonight to wish you a lifetime of good health!

Juliej
by juliej
Mon Jun 24, 2019 4:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT shows my liver met is SMALLER!!
Replies: 18
Views: 1068

Re: CT shows my liver met is SMALLER!!

AmyG wrote:CEA is down to 24!!!!!!!!

Omfg, this is awesome. Went from 167 when I started chemo, to 98 to 20 freaking 4. Yall, I'm stoked.

Halle-freakin-lujah!!! :D :D :D

I'm stoked for you too! Keep kicking cancer's butt and you'll be scheduling a liver resection soon!

Juliej
by juliej
Fri Jun 21, 2019 7:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 177
Views: 22719

Re: My CRC with liver mets journey

I tried to eat clean during my first five cycles but wound up losing almost 25 lbs and was down to 90 lbs total. Nothing appealed to me so I wound up just not eating. My husband convinced me I needed to be less strict to gain back the weight and maintain it. I’m still down about 5 lbs since my surg...
by juliej
Fri Jun 21, 2019 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: If you want prayer stop in here!
Replies: 583
Views: 79040

Re: If you want prayer stop in here!

Courage is fear that has said its prayers.

JJ
by juliej
Fri Jun 21, 2019 5:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Questions, questions, too many questions.
Replies: 24
Views: 1740

Re: Questions, questions, too many questions.

I think you've gotten excellent advice. There does seem to be somewhat of a divide amongst oncologists on this issue. Personally, I'd be looking for someone who was willing to work towards becoming operative. Mohrfamily: I agree with boxhill that there's a divide among oncologists on aggressive tre...
by juliej
Thu Jun 20, 2019 5:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hair removal - help?
Replies: 13
Views: 679

Re: Hair removal - help?

I had a list going for a little while called "cancer's little indignities" and this is right there at the top of that list. One of the worst moments for me was when my toenails just peeled off in a bloody, gooey mess! :shock: Thinning hair, blotchy skin, Avastin-induced bruises (which mea...

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