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by juliej
Tue Jan 29, 2019 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Post- Rectal Metastatic to Liver, now cured
Replies: 14
Views: 756

Re: Happy Post- Rectal Metastatic to Liver, now cured

WOOO-HOOO!!! HIGH FIVE, Jane!!! :D :D :D I remember you were part of the original pump gang. I'm due to have my HAI pump and medi-port removed in a few weeks too. My case was a little more complicated than yours (tumors in all lobes of my liver plus in both lungs), but here we both are, Stage 4's wh...
by juliej
Mon Jan 28, 2019 7:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coming out of the Tunnel of Hospitalisation
Replies: 5
Views: 406

Re: Coming out of the Tunnel of Hospitalisation

You definitely deserve a break! May 2019 bring you good health, continued NED status, and a fantastic new job!
by juliej
Mon Jan 28, 2019 7:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 26/2019
Replies: 251
Views: 93118

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 26/2019

I know Atticus's spirit is still walking beside you. You two were so connected. He will be your spiritual ballast as you wander this world. And he will be there to greet you in the next one.

I am so sorry for your loss.

xo,
JJ
by juliej
Wed Jan 23, 2019 6:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA
Replies: 4
Views: 466

Re: CEA

You're right. That's not a large jump. Would it help if I told you that's only a 3% increase? :) CEA results vary in small amounts from hour-to-hour and day-to-day. If they took another reading the following day, it would be yet another number (possibly back to the lower number). I completely unders...
by juliej
Wed Jan 23, 2019 5:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Managing erractic mood swings. Is psychologist the answer ?
Replies: 27
Views: 1648

Re: Managing erractic mood swings. Is psychologist the answer ?

Be aware that the corticosteroids you receive as part of your chemotherapy infusions are likely a key component of your mood swings. Dexamethasone is the corticosteroid more commonly partnered with chemotherapy infusions. Dexamethasone has a long-half life in the body and has a strong effect per un...
by juliej
Wed Jan 23, 2019 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW-Need some positivity here.
Replies: 498
Views: 114896

Re: NEW-Need some positivity here.

I guess it could be. But it is often under the rib. I’m hoping it’s only healing... Your liver has completely grown back since your resection date was back on September 12th. However, there's a fair amount of fluid left surrounding the area that needs to dissipate. Sometimes it can cause weird twin...
by juliej
Wed Jan 23, 2019 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox v. Folfiri?
Replies: 19
Views: 1398

Re: Folfox v. Folfiri?

Thanks, julie! This is all very helpful! My husband's IQ is over 165 and mine isn't too shabby, either, so we also don't suffer fools gladly. That's actually one of my husband's favorite sayings. Xelox worked extremely well for my husband but I don't know of any way to differentiate the effects of ...
by juliej
Wed Jan 23, 2019 5:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What to do after immunotherapy works
Replies: 11
Views: 1030

Re: What to do after immunotherapy works

In your shoes, I might be looking for literature and data about which of any nutrient(s) might interact like a switch with Keytruda and then going to a long term plan in the other immune related directions. My experience in 5FU chemo has been oncology overclaimed negative interactions in lieu of da...
by juliej
Wed Jan 23, 2019 4:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another anniversary
Replies: 16
Views: 931

Re: Another anniversary

Ron, may year 22 be your best year ever!!! :D :D :D

Thanks so much for sharing the good news with us! It's people like you who give everyone hope!
by juliej
Wed Jan 23, 2019 4:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Folfox v. Folfiri?
Replies: 19
Views: 1398

Re: Folfox v. Folfiri?

Interesting. I'd love to know some of the questions that should not be asked. You've really piqued my curiosity! Any question involving skipping a treatment because 1) you want to go on vacation, 2) you want to enjoy the holidays, 3) you're tired of chemo. Dr. K is a strong believer in aggressive t...
by juliej
Tue Jan 22, 2019 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy New Year- Update on mom- clean
Replies: 5
Views: 366

Re: Happy New Year- Update on mom- clean

Hey, Lisa!

Tell your mom congrats from me! I'm getting ready to have my pump removed in the next few months!!! :D

I'm glad she's getting the MRI. Can't hurt and might point out some arthritic issues that she can head off with PT or meds.

xo,
Juliej
by juliej
Tue Jan 22, 2019 8:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 39
Views: 4888

Re: My CRC with liver mets journey

3) I do jog now and Dr. Kingham said that many of his patients run and live normal lives. He is the one who basically convinced me to get the pump. He said that Dr. Kemeny is like a "strict grandmother" in this regard, but that he does not see any issue with his patients running and that ...
by juliej
Tue Jan 22, 2019 8:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 39
Views: 4888

Re: My CRC with liver mets journey

Maybe this is TMI, but also interested in hearing whether others maintained their period while on chemo? I got it once after my second round of chemo in late October, right on schedule. Then it went away for Nov / Dec, but is back again now after my 7 week chemo break. Everything I read suggested t...
by juliej
Thu Jan 17, 2019 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 39
Views: 4888

Re: My CRC with liver mets journey

We are making a mini vacation out of it. DH insists on bringing the kids going to Niagara falls on the way home I told him all I really wanted was to see the statue of liberty so I think we'll try squeezing that in to. Trying to stay positive though. Good news for you! The Statue of Liberty is stay...
by juliej
Thu Jan 17, 2019 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Waiting for PET results & HAI pump issue
Replies: 33
Views: 3455

Re: Waiting for PET results & HAI pump issue

julie, I just noticed that you got the HAI pump although you had lung mets. For some reason (in addition to the fact that extrahepatic cancer disqualifies people from the pump trial at MSK) I thought that one cannot get the pump if there are lung mets. I am curious because a family friend had two l...

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