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by juliej
Wed Sep 18, 2019 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had to have high hopes for a living...
Replies: 6
Views: 423

Re: Had to have high hopes for a living...

DH is finally moving forward in the steps toward surgery! The OSU campus has 3 old style pumps left and hubby has his name on one. No surgery date yet, he finished his bloodwork they wanted yesterday in prep for chemo today. Awesome news!!! It's interesting they still have a few Codman pumps there....
by juliej
Mon Sep 16, 2019 5:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ...progression...
Replies: 27
Views: 3137

Re: ...progression...

I'm sure I know but can't quite remember but what kind of side effects does one have after HAI placement? What are the chances that they will resect (the colon) during that surgery? There is a very good chance they will resect the colon during the HAI pump placement surgery. It's pretty standard. I...
by juliej
Mon Sep 16, 2019 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 35
Views: 2453

Re: Liver and lung mets

Just checking in to mention that Jesper's new scan came in after his 12th round of FOLFIRI. His lung mets are stable (biggest met is 1cm) and his liver mets have shrunk further. At diagnosis, the biggest mets were 5-6 cm. Now they are 1.8-2cm! That's over a 60% decrease in size! We're very pleased ...
by juliej
Mon Sep 16, 2019 5:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Screw Cancer, Hospice is Here
Replies: 19
Views: 1024

Re: Screw Cancer, Hospice is Here

It’s how you live that matters. You made a choice that allows you to live your remaining days, weeks, months, years in the best way possible for you.

Now get out there and enjoy that vacation in Hawaii to the max!!! :D :D :D

Juliej
by juliej
Mon Sep 09, 2019 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need Support - Told today I'm on Palliative Care
Replies: 48
Views: 12543

Re: Need Support - Told today I'm on Palliative Care

One month ago I had my CRS-HIPEC surgery. Cannot believe it's been a month already. So far nothing to report, except that my husband tells me that when the surgeon came out to see him afterward, he said things went well and he was positive he'd gotten 99% of it. It was a long surgery - I went in at...
by juliej
Mon Sep 09, 2019 4:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rogaine! seems to be working for me
Replies: 14
Views: 817

Re: Rogaine! seems to be working for me

I read an article somewhere along the line that suggested that Rogaine actually worked to grow or maintain hair in patients who were going through chemo. I figured it was worth a shot and bought the generic version to try out. I started in early July, about the same time that I was on a chemo break...
by juliej
Mon Sep 09, 2019 4:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 35
Views: 2453

Re: Liver and lung mets

Thank you Juliej! I am worried about Jesper's small increase in CEA and I HOPE it's just one of the fluctuations we have heard are normal. We've been told the CEA can fluctuate a little, but it's the first time his goes up. From 70,000 it's just been going down, down, down. But maybe now that it's ...
by juliej
Thu Sep 05, 2019 3:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 35
Views: 2453

Re: Liver and lung mets

Wow Juliej, thank you so much! I LOVE your story. Congratulations on making it through! You must be a pretty badass person to go through something like that so successfully. I have read so many good things about Dr Kemeny that by now she sounds like a celebrity to me. Is it possible to get a real-l...
by juliej
Wed Sep 04, 2019 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver and lung mets
Replies: 35
Views: 2453

Re: Liver and lung mets

Wow, thank you all for your responses! The HAI pump is very interesting, but are you eligible for it if you have extra-hepatic spread? My boyfriend has lung mets too, and I thought they only accepted patients with isolated hepatic metastasis. Anyone know? Jesper will have his 12th FOLFIRI (with Pan...
by juliej
Tue Sep 03, 2019 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T : I wish Brownbagger were here
Replies: 12
Views: 868

Re: O/T : I wish Brownbagger were here

Beautiful and insightful thoughts, CRguy! I wasn't ready to lose him either. As you know, Eric's motto was "Live your life like it's going to be a long one, because it just might, and then you'll be glad you did." And boy, did he live by those words! He biked, gardened, traveled, cut and s...
by juliej
Fri Aug 30, 2019 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried about chemo port
Replies: 24
Views: 1467

Re: Worried about chemo port

More on the subject of the chemo port: it's feeling sore. And I don't think that has anything to do with the fact that it was accessed yesterday, because it's been feeling sore for a few days. Maybe it's just a psychosomatic thing because I was worried about the little accident that I had with it. ...
by juliej
Fri Aug 30, 2019 3:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: second guessing everything right now . . .
Replies: 10
Views: 753

Re: second guessing everything right now . . .

I think I need to take some deep breaths and let these consultations at Yale and MSK happen before I totally lose my mind. Exactly! Very wise advice to yourself! Let the experts pore over all the information. Make sure both locations share their notes and possibly get them involved in a group phone...
by juliej
Fri Aug 30, 2019 3:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver has been chopped!!
Replies: 44
Views: 2836

Re: Liver has been chopped!!

AmyG wrote:This post brought to you by all the lovely drugs they keep giving me.

Yep, love those drugs!!! :D :D :D

Congratulations on a successful liver resection! It sounds like you're doing very well. Walking and eating lots of protein will help you heal faster.

Juliej
by juliej
Wed Aug 28, 2019 6:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad News About Arizona Mom
Replies: 3
Views: 997

Re: Sad News About Arizona Mom

I'm so very sorry to hear this news, but thank you Cynthia for letting us know.

Lara touched my life and I will remember her bravery, her honesty, and how she used her own struggles to help others. Farewell to an amazing woman, mother, wife and friend.

Juliej
by juliej
Tue Aug 27, 2019 5:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Quick intro -- diagnosed Friday
Replies: 129
Views: 10824

Re: Quick intro -- diagnosed Friday

I'll start to do research on Xeloda pills vs IV -- does anyone have insight into the efficasy of either? I hate needles and don't want a port, so would prefer pills if the outcome is not changed. A number of studies have shown that Xeloda and IV 5-FU have about the same efficacy, so no worries ther...

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