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by juliej
Thu Dec 06, 2018 8:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mixed bag kinda day: progression, genomic results, and trial
Replies: 17
Views: 804

Re: Mixed bag kinda day: progression, genomic results, and trial

My oncologist was telling me how incredibly detailed and thorough Dr. Kemeny is. When my onc and I were discussing the possibility of Duke offering HAI, she cautioned me about the success rates at other hospitals that perform HAI implants. She said, Dr. Kemeney's results are basically unmatched. Ha...
by juliej
Wed Nov 14, 2018 9:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need prayers
Replies: 30
Views: 1359

Re: Need prayers

Hopegirl wrote:Feeling so thankful and blessed right now , got Another clear scan . Thank you again for your prayers .

Yahooooo!!!! That's the news I wanted to hear, Hopegirl! :D :D :D

Now go out there and celebrate! You deserve a treat!

xo,
Juliej
by juliej
Wed Nov 14, 2018 9:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 1191

Re: Almost 6 years

She woke me up at 4:00 AM this morning after our cat decided to lick her face with his sandpaper tongue. I'm just glad to hear you rescued him from the toilet in the old place! :D We moved from a small unit (apartment or condo in the US I guess?) of about 1,000 square feet to a really old terrace b...
by juliej
Wed Nov 14, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV to NED in 9.5 months!
Replies: 12
Views: 680

Re: Stage IV to NED in 9.5 months!

Totally agree with you! I am alive today because of Dr. Kemeny, Dr. D'Angelica, and all the brilliant fellows and nurses at MSKCC! I love this line in your signature: 9/12/18: Buy new Corvette, because fuck cancer. Yes!!!! :D :D :D Congratulations on your NED status! Here's to a long and healthy lif...
by juliej
Wed Nov 14, 2018 6:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI of Peritoneum with Ostomy
Replies: 1
Views: 238

Re: MRI of Peritoneum with Ostomy

You need a diet that is non-irritating and easily digested - the point being to have very little residue left in your intestines before the MRI. That way they can get a better image. Usually it's a diet low in fat, fiber and lactose, which isn't too hard to do. As long as I can have peanut butter, I...
by juliej
Wed Nov 14, 2018 5:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump without Dr. K at MSK
Replies: 26
Views: 972

Re: HAI pump without Dr. K at MSK

Hi Juliej, I will be having surgery for the HAI pump next week at MSK. I will be also be traveling there every other week for treatment. I plan on flying to NYC in the morning, receive treatment and fly home that evening. I know it is going to be a very long day and very challenging, but I am up fo...
by juliej
Tue Nov 13, 2018 8:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump without Dr. K at MSK
Replies: 26
Views: 972

Re: HAI pump without Dr. K at MSK

I've been told not to look too far ahead, but reading stories on here give me hope still of long-term life. Is that false hope? "False hope" is a term that's thrown around a lot, especially if you're a Stage IV CRC patient. The fact is many Stage IV CRC patients are living longer lives an...
by juliej
Thu Nov 08, 2018 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 4 /2018
Replies: 227
Views: 78799

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Nov/2018

Hopefully, a closer examination via CT scan will show it to be just a "summation artifact" due to the angle of the x-ray and not a true nodule. my resolve is STRONG it's never weak survival is my PLAN[/i] YES!!!!!! Survival is the plan! I always tell people that I am fearless because I've ...
by juliej
Thu Nov 08, 2018 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removed - 1.5 years later.
Replies: 11
Views: 478

Re: Port Removed - 1.5 years later.

Congratulations! You've been "deported"! :D

Now go and enjoy your life!
by juliej
Thu Nov 08, 2018 6:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I got second opinions- HAI pump, HIPEC, and now decisions
Replies: 4
Views: 393

Re: I got second opinions- HAI pump, HIPEC, and now decisions

First of all, the good news is that you have lots of options . That's a great position to be in, even though I agree with you that the decision-making process is unnerving! My highly respected local surgeon wants to go with an aggressive resection and ablatement of my liver, and believes that he can...
by juliej
Thu Nov 08, 2018 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need prayers
Replies: 30
Views: 1359

Re: Need prayers

Sending lots of prayers your way!!!

Hang in there! Waiting to hear scan results can be excruciating. Try to distract yourself by hanging out with your besties or doing something super-nice for yourself!

xo,
Juliej
by juliej
Wed Nov 07, 2018 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Almost 6 years
Replies: 29
Views: 1191

Re: Almost 6 years

Talk about coming full circle, Kiwi! That is an amazing way to claim back your BC (before cancer) life! :D

A new home is a place for memories to be made and dreams to come true, and your biggest dream has already come true! Wishing you all the very best and a long and healthy life!

xo,
Julie
by juliej
Thu Nov 01, 2018 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HOPE officially three years clean
Replies: 11
Views: 807

Re: HOPE officially three years clean

Yes! NED for three years is a BIG milestone!!! :D :D :D

Congratulations to your mom! You're a wonderful daughter and support to her!

xo,
Juliej
by juliej
Thu Nov 01, 2018 7:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Study - Sensitive Topics
Replies: 8
Views: 768

Re: Study - Sensitive Topics

Phuong, I'd have no problem answering questions about my sex life during treatment or post-treatment if it was posed in the context of a medical survey. You're right that it isn't something discussed by oncologists and yet it is a vital part of a person's life. I don't think it needs to be an option...
by juliej
Fri Aug 31, 2018 6:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sorry, I can't do that, I have cancer....
Replies: 10
Views: 1967

Re: Sorry, I can't do that, I have cancer....

Thanks for the laugh, Maggie Nell! The song is a riot! I often wished I had a button to wear on my subway ride home after an infusion. Seats were reserved for the Hugely Pregnant and the Very Elderly. I didn't fit either category. I did play the cancer card once to get my favorite Italian bakery in ...

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