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by juliej
Tue Jan 21, 2020 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy
Replies: 5
Views: 347

Re: Colonoscopy

I am a fan of the Miralax and Gatorade combo too. My GI doc also throws in a couple of Dulcolax. I was never allowed to eat anything the day before (only clear liquids and non-red jello). I've learned it's smart to go low residue for a few days before though. Congrats on a clear scan! :D Now go eat ...
by juliej
Tue Jan 21, 2020 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI PUMP OUT TODAY!
Replies: 2
Views: 145

Re: HAI PUMP OUT TODAY!

At Sloan now as Pete is having his Hai Pump and Port out. We asked Dr D’Angelica’s surgical assistant if we can have the pump! Hope so. This is a very exciting day for us as 2011 looked bleak. Our message to all is keep fighting, ask tons of questions and get more than one opinion. We are so gratef...
by juliej
Thu Jan 16, 2020 6:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020
Replies: 276
Views: 118304

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020

CRguy wrote:Recent Imaging and bloods ALL looking good, as in
" no further scans or follow ups required "

WOO-HOO!!!!! That's what I want to hear!!! :D :D :D

Here's to a lifetime of health and mind/body/spirit harmony.

xoxo,
JJ
by juliej
Thu Jan 16, 2020 6:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 49101

Re: My CRC with liver mets journey

The drain is out! And, like yours, my body just sort of pushed it right out when they went to remove it. I wore a tight dress to the office today for the first time in three months. Yippee! I hear you! Getting that damn drain out was one of the happiest days of my life! :D :D :D As the calendar sli...
by juliej
Tue Jan 14, 2020 7:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 301
Views: 49101

Re: My CRC with liver mets journey

I was so wired / worried last night I tossed and turned the entire night. Hoping that things sort of settle in today. Tomorrow I'll head to IR for either a drain pull or replacement. I'm almost afraid to hope they will pull it, it would be like all my cancer dreams coming true! Good scan, no adjuva...
by juliej
Fri Jan 10, 2020 4:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 557

Re: Muscle joint soreness - but not as a result of chemo?

I am noticing less all over soreness now - maybe because I really pulled something in my shoulder / back. It hurts to breathe! I’m sure it happened because I’ve been hobbling around trying to compensate for my various aches and pains. Plus carrying my laptop in my purse - I really feel it when I sl...
by juliej
Thu Jan 09, 2020 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: COMING OUT!!!!!
Replies: 6
Views: 756

Re: COMING OUT!!!!!

Mrned82 wrote:remember always
NO EXPIRATION DATE !!!!!!

I love this line!

You are right, Daniele. No one truly knows our expiration date. You keep traveling, dancing, and enjoying your life to the fullest!

Thanks for the wonderful post!
Juliej
by juliej
Thu Jan 09, 2020 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 557

Re: Muscle joint soreness - but not as a result of chemo?

No chemo right now, no. Tomorrow I’m going in for labs and an iron infusion. I’ll ask them to pull B12 - that’s one I haven’t been checking. And I know someone mentioned one other thing, was it D3 maybe? I know last labs, my magnesium and iron were below normal range. Potassium was super low side o...
by juliej
Wed Jan 08, 2020 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Muscle joint soreness - but not as a result of chemo?
Replies: 8
Views: 557

Re: Muscle joint soreness - but not as a result of chemo?

You're not on chemo right now, correct? My first guess would be a magnesium/potassium deficiency. That played hell with my joints and muscles during treatment. The potassium infusions helped but not enough on a day-to-day basis. Finally, I started eating a banana (I hate bananas) every day and that ...
by juliej
Wed Jan 08, 2020 7:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1632
Views: 360532

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Second try and I was able to get my heartrate up to 135 on the second time out. I only did 3 miles at a moderate pace but I think that heartrate gains are doable. The thing is the balance. I got in 4 miles running today and 3 miles cycling and both felt great. I do want to increase speed and distan...
by juliej
Mon Jan 06, 2020 8:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 Year cancerversary
Replies: 20
Views: 2321

Re: 7 Year cancerversary

Hi Julie I just logged back on and noticed you are a competitive runner. What sort of running do you do? What do you focus on? What sort of training plans do you use? Do you have a running coach, or do it yourself? Garmin, Suunto? I have lots of questions. Run solo, groups? 2019 was not a good year...
by juliej
Mon Jan 06, 2020 5:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Belly band?
Replies: 2
Views: 346

Re: Belly band?

There are several possibilities - belly bands, abdominal binders, and compression sports clothing. Belly bands are available in Target or any store with a pregnancy section. They provide medium support to the abdominal area. Even though these are made for women, they will easily fit a man (think of ...
by juliej
Fri Jan 03, 2020 7:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A Toast to 2020!
Replies: 10
Views: 684

A Toast to 2020!

In August of 2010, on a perfect summer day, I was told I was dying. I didn't really believe it at first. I was healthy, fit, young, with no history of cancer in my family. Then they showed me the images. There were tumors everywhere. How could someone who looked so well on the outside be so sick on ...
by juliej
Mon Dec 30, 2019 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Jan 15/2020
Replies: 276
Views: 118304

Re: Review of my Journey so far -> ⓊⓟⒹⒶⓉⒺ Dec 26/2019

CRguy wrote:Sorry gotta go now
back into the workshop to get the theremin retuned to scream LOUD and Proud
for the World Junior Hockey Championships :mrgreen:

And.....

CANADA BEATS GERMANY 4-1 !!!!!!

Bring on the screamin' theremin! :D :D :D :D

Now on to the Czechs!!!

JJ
by juliej
Thu Dec 26, 2019 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can chemo increase ALT & AST
Replies: 6
Views: 576

Re: Can chemo increase ALT & AST

Remember is really poison going into you system and after a while, your liver starts to talk to you. Me: Here's some nice Folfox for you. Yum! My liver: @#$%&*!!! Me: I know, but the doctors say it's gooood for you. It'll make you well! Really! (fingers crossed behind back) My liver: That [expl...

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