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by juliej
Thu Aug 16, 2018 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So Frustrated....
Replies: 1
Views: 142

Re: So Frustrated....

The American Cancer Society announced new guidelines for colonoscopies this summer. Now the official start of screening age is 45, instead of 50. Generally speaking, insurance companies change their coverage to match the ACS guidelines. https://www.cancer.org/cancer/colon-rectal-cancer/detection-dia...
by juliej
Thu Aug 16, 2018 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dang 1cm Liver Met!
Replies: 11
Views: 287

Re: Dang 1cm Liver Met!

Yes, odds are it was there all along and just too small to see on a CT scan. The good news is they caught it very quick! Good thing you were being closely monitored! Surgical resection is the gold standard for removing liver mets, but radiofrequency ablation (RFA) therapy is frequently used for a si...
by juliej
Wed Aug 15, 2018 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Totally O/T
Replies: 19
Views: 673

Re: Totally O/T

I send love - big love! - to the forum keepers like you CRguy. You keep us all connected in a circle of strength and empowerment. Knowledge is power and the wisdom here is off the scale! And I send love to the spirit lifters, the way-makers, the out-of-the-box thinkers, and the dream catchers. May t...
by juliej
Wed Aug 15, 2018 5:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Colon Cancer
Replies: 31
Views: 1166

Re: Stage 4 Colon Cancer

How can I contact to MSK ? Could both of you give me some contacts ? I am living in a Asia country, so it would be better if i can discuss through email at first step Dr. Nancy Kemeny is the HAI pump expert at MSK. Try contacting her office. The best way is to get a referral from your oncologist or...
by juliej
Wed Aug 15, 2018 4:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 14
Views: 823

Re: Brain metastasis

Thanks for all the support everyone ❤️ JulieJ and everyone. They also found a met on his spine and hip. So brain surgery tomorrow followed by hip replacement next week. The spine met will be hit with radiation. Amazingly all organs are clear. The doctors at MSK truly amaze me. It was like no sweat,...
by juliej
Tue Aug 14, 2018 7:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need help understanding CEA
Replies: 10
Views: 482

Re: I need help understanding CEA

Just a quick note to remind people that HIPAA gives patients the right to get copies of all of their medical records. If your oncologist isn't sharing info like your CEA results, ask for a copy of your labs. Same goes for CT scans. In my experience it's better to know what's going on so you can ask ...
by juliej
Tue Aug 14, 2018 5:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brain metastasis
Replies: 14
Views: 823

Re: Brain metastasis

I sit here with tears in my eyes for your DH and this devastating new development! Fortunately, the treatment of brain metastases has advanced substantially in recent years. Surgery, radiation therapy, chemotherapy, immunotherapy, and targeted therapies are helping patients live longer and maintain ...
by juliej
Thu Aug 09, 2018 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 421

Re: NIH trail update .. my T cells are growing!!

Lots of good news! :D :D :D

Grow. little T cells, grow!!! Become an army and kill the tumors!!!
by juliej
Thu Aug 09, 2018 7:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to site
Replies: 2
Views: 199

Re: New to site

Congratulations, hiker! Thanks for sharing your good news. I know how much those kind of posts meant to me when I was first diagnosed! Dr. K and Dr. D'A are my docs too! Both are brilliant and I would not be here today if it wasn't for them. Thanks goodness you were hard headed/determined enough to ...
by juliej
Thu Aug 09, 2018 7:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family friend Stage IV recurrence
Replies: 13
Views: 749

Re: Family friend Stage IV recurrence

I can imagine how frustrating this must be for you! It's hard when someone doesn't take advice very well and yet you know of things that will improve your family member's outcome. But you can only do so much. Your heart is in the right place. If they don't listen, it's not your fault. Dr Kemeny's st...
by juliej
Fri Jul 06, 2018 4:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1168
Views: 98927

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

My fitness center manager speculated that all of the exercise is causing the inflammation which is a possibility. I'm a fitness buff too and was told during treatment not to do heavy exercise shortly before a CT scan due to possible false readings in both CEA and blood test results. There's a stron...
by juliej
Fri Jul 06, 2018 4:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 1173

Re: Are we doing everything we can?

My chief concerns are: a) Should we get a 2nd opinion (we do really like this guy and he is VERY thorough) b) Has anyone else done OXALPLATIN for Stage II? c) Can we or SHOULD we have the tissue sent anywhere else (like a major cancer center) don't know if this is possible a) Yes!!! Get a 2nd opini...
by juliej
Thu Jul 05, 2018 5:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mom's surgery 5/23 (HAI pump)
Replies: 5
Views: 488

Re: Mom's surgery 5/23 (HAI pump)

Her CEA on 6/20 when she started receiving HAI therapy was 36 and that was drop from her pre surgery CEA of 55 (4/25). Today 7/3 her CEA is down to 4.5 which is just 13 days post first treatment with HAI! She just started systemic again today as well at a lower dose then what she was getting presur...
by juliej
Thu Jul 05, 2018 5:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1168
Views: 98927

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The CEA number was negative news this morning at 4.5. 3.8 and lower is considered normal so it is accelerating. I have a CT scan tomorrow to check. The oncologist considers these values low and he's only seen one case where rising numbers was actually a metastasis and that one was successfully rese...

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