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by juliej
Wed Jun 19, 2019 6:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 13
Views: 281

Re: Currently in the ER...woo.

AmyG wrote:Bloods came back fine but still bleeding so I get a CT and an overnight stay. Yeehaw. :roll:

Well, good labs are a start. Hopefully the CT scan will show what's really going on. Hope you're back home and feeling better again soon!

Juliej
by juliej
Wed Jun 19, 2019 5:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 145
Views: 18259

Re: My CRC with liver mets journey

Personally, I'm terrified of liver resection. :shock: I think I put two and two together early on and figured there would be no actual cure without surgery. That helped me to feel a LOT better about the idea of it!! Now I need to get myself back in shape over the next four weeks so that my recovery...
by juliej
Wed Jun 19, 2019 4:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Currently in the ER...woo.
Replies: 13
Views: 281

Re: Currently in the ER...woo.

Swinging chickens and sending tons of good vibes your way!!!

Hopefully, it's just a nasty viral infection. Hang in there and let us know what you find out!

Juliej
by juliej
Wed Jun 19, 2019 4:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Take me away to that special place - Picture Thread
Replies: 5
Views: 159

Re: Take me away to that special place - Picture Thread

2 thumbs up if you can guess who I plagiarized for the thread title I think it's Guns 'N Roses "Sweet Child of Mine" too! :D She's got a smile that it seems to me Reminds me of childhood memories Where everything Was as fresh as the bright blue sky Now and then when I see her face It take...
by juliej
Mon Jun 17, 2019 5:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things I should know about Avastin
Replies: 11
Views: 338

Re: Things I should know about Avastin

I agree with others that Avastin's side effects are easier to handle than chemo! I bruised easily and had some bloody nose issues. Afrin Nasal Spray fixed that problem nicely. It's widely used by Avatin patients, but always check with your oncologist first before starting anything new. I also had hi...
by juliej
Mon Jun 17, 2019 5:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My CRC with liver mets journey
Replies: 145
Views: 18259

Re: My CRC with liver mets journey

Just got my CT scan results to see progress after 2 rounds of pump chemo and 3 of systemic. No change. Ugh. It's always hard to get news like this. You want to see progress, but Dr. K is right. Stable is way underrated! Most likely it means the chemo regimen that you're on now has done all it can d...
by juliej
Thu Jun 13, 2019 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Temporary Ileostomy and Bowel Movements
Replies: 4
Views: 218

Re: Temporary Ileostomy and Bowel Movements

Agree with Green Tea. It's possible to pass left-over bowel movements or mucous from your rectum after an ileostomy. The mucus can vary in consistency from thin and clear to opaque, thick stuff -- all of which are considered "normal." This should decrease over time, so I wouldn't worry abo...
by juliej
Thu Jun 13, 2019 7:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back From The Shadows Again - And Scanxiety....
Replies: 10
Views: 632

Re: Back From The Shadows Again - And Scanxiety....

Well as we say in Texas - poop! I got a call from the oncologist and my scan showed mets to both lobes of my liver and possibly one on a lung. The next step is a PET scan and then a biopsy to confirm that is recurrent CRC. I forgot what protocol he said we would follow - but it something and pill f...
by juliej
Thu Jun 13, 2019 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU as second line?
Replies: 12
Views: 732

Re: 5FU as second line?

Julie, Do you happen to know if your CC was tp53 mutated? I read, again as I have seen this expressed a number of times in various journal articles over the past couple years, that "CRC with mutated TP53 is resistant to 5-FU" in this extremely interesting article https://www.ncbi.nlm.nih....
by juliej
Thu Jun 13, 2019 6:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA
Replies: 9
Views: 882

Re: CEA

Mohrfamily wrote:CEA reports came back was 92 back down to 64!

Yes! Yes! Yes! :D :D :D
Doing the happy dance for you!

Juliej
by juliej
Wed Jun 12, 2019 5:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5FU as second line?
Replies: 12
Views: 732

Re: 5FU as second line?

mpbser wrote:Has anyone done, or heard of doing, only 5FU (monotherapy) instead of Folifiri/etc after surgery for a liver met recurrence? My signature below may provide a clue.

The only systemic chemo I did after my liver resection was Xeloda, which is the oral form of 5FU.
by juliej
Wed Jun 12, 2019 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Llooking to here from those that waited a loong time for surgery
Replies: 7
Views: 488

Re: Llooking to here from those that waited a loong time for surgery

Me, me, me! I had to wait about 15 months for my first surgery, so it does take awhile for some of us. I needed my (many) tumors to shrink to a more resectable size. I would second the suggestion about going to an NCI-Designated cancer center because they are 1) more experienced in cutting edge trea...
by juliej
Wed Jun 12, 2019 5:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Another 6 months
Replies: 13
Views: 641

Re: Another 6 months

AWESOME news, Dave! Congratulations!!! :D :D :D

I'm on 6-month CT scans and 3-month bloodwork, but I was a Stage IVB, which is probably why I have the extra labs. It never ceases to put a smile on my face thinking how far I've/we've come!

Juliej
by juliej
Thu Jun 06, 2019 7:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: UPDATE ON PETE
Replies: 8
Views: 719

Re: UPDATE ON PETE

Dr James MCClane, the younger brother of Steven is the head of Gastro Surgery at Norwalk Hospital in Connecticut. He is my forever hero and my nickname for him is Ace McDreamy. Dr. D'Angelica is pretty easy on the eyes too!!! :D I'm so happy to hear that you are both thriving and enjoying every mom...
by juliej
Tue Jun 04, 2019 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and Kidney function
Replies: 2
Views: 197

Re: CEA and Kidney function

Elevated CEA readings are found in chronic kidney disease, which is benign. So the rise in your wife's CEA could definitely be related to her kidney issues and not to cancer. And you're right, her CEA is still in the normal range, so I wouldn't worry quite yet. The tricky thing about CEA is that it'...

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