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by FindTheBestHelp
Tue Nov 13, 2018 3:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 10
Views: 1078

Re: Recurrence, Surgery, and Post-Surgery CEA

But how would I best be able to identify the best oncologist in my Kaisers in my area.. there are like 3 major Kaisers within 30 minutes. Do you have a primary care physician you know and trust? They will definitely have some insights about who the best local oncologist might be. And I found that t...
by FindTheBestHelp
Mon Jul 30, 2018 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Original colon cancer spread to peritoneal
Replies: 6
Views: 904

Re: Original colon cancer spread to peritoneal

Thank you both for your replies. If anyone else has some input or advice, I hope you please share... I would be grateful to know if I have other options because the current oncologist is taking a wait and see approach and I am wanting a 2nd opinion but feel trapped because of Medicare restrictions o...
by FindTheBestHelp
Mon Jul 30, 2018 12:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Original colon cancer spread to peritoneal
Replies: 6
Views: 904

Original colon cancer spread to peritoneal

Having had colon cancer approximately 4 years ago, with surgery to remove the tumor (which required a total colectomy), some lymph nodes, followed by 6 months of chemo (Folfox - last 2 months a bit toned down due to the toll it was taking), about 1.5 years later, CEA started creeping up from 1.x to ...
by FindTheBestHelp
Fri Jul 20, 2018 1:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2nd opinions outside of your hospital network
Replies: 3
Views: 419

Re: 2nd opinions outside of your hospital network

unfortunately I was told that even if I'm paying cash they (Sutter) can't see me because I'm with Kaiser has anybody ever heard of such a thing?

Do you think it's some kind of a liability concern on their part?
by FindTheBestHelp
Mon Jul 16, 2018 3:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2nd opinions outside of your hospital network
Replies: 3
Views: 419

2nd opinions outside of your hospital network

As a member of kaiser who wanted a second opinion from an oncologist at Sutter, I was told that the Sutter oncologist can't see someone from Kaiser, even if it's paid for out of pocket. I'm not understanding why this is... Do you?
by FindTheBestHelp
Sun Jul 01, 2018 4:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 10
Views: 1078

Re: Recurrence, Surgery, and Post-Surgery CEA

But how would I best be able to identify the best oncologist in my Kaisers in my area.. there are like 3 major Kaisers within 30 minutes. Do you have a primary care physician you know and trust? They will definitely have some insights about who the best local oncologist might be. And I found that t...
by FindTheBestHelp
Sun Jul 01, 2018 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 10
Views: 1078

Re: Recurrence, Surgery, and Post-Surgery CEA

I would be a little concerned about the statement "it was on top of something and that couldn't be removed". Like you, wondering what "that" is? Unfortunately CEA just isn't a reliable marker for everyone. It wasn't for me until it went from 1.9 to a whopping 447 in just 7 month...
by FindTheBestHelp
Fri Jun 29, 2018 3:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 10
Views: 1078

Re: Recurrence, Surgery, and Post-Surgery CEA

Thanks a lot for the replies. What's the best way to find your medical provider's best oncologist in the area (Kaiser N. Calif)? Asking the nurses or staff, I don't think they'll be candid with you because there may be some policy against it? Definitely think getting 2nd opinions and 2nd looks from ...
by FindTheBestHelp
Thu Jun 28, 2018 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence, Surgery, and Post-Surgery CEA
Replies: 10
Views: 1078

Recurrence, Surgery, and Post-Surgery CEA

Hi All, After recurrence was diagnosed in May 2018, just last month, the surgery to remove the tumor in the same area as the original cancer from 4 years ago was said to be successful. Surgeons said it wasn't touching any organs and was surrounded by some fatty or other tissue. Pathology report, per...
by FindTheBestHelp
Wed May 23, 2018 4:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Situation Update- would appreciate your input!
Replies: 1
Views: 314

Situation Update- would appreciate your input!

After about 2.5 years from surgery to chemo to NED CEA started rising for 6 quarters and ct scan and pet scan confirmed a mass 1cmx3cm in same general area as original colon cancer for which a total colectomy was performed. There appears to be no scans showing metasasis and the mass in the right abd...
by FindTheBestHelp
Wed May 02, 2018 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence Questions
Replies: 3
Views: 874

Re: Recurrence Questions

Thank you for explaining. This is very helpful. I'm not sure why the oncologist has not mentioned some sort of maintenance chemo after this recurrence (should the only thing found be the 1cm x 3cm mass in the abdomen and nowhere else), either the same FOLFOX or some other treatment. She said FOLFOX ...
by FindTheBestHelp
Tue May 01, 2018 10:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence Questions
Replies: 3
Views: 874

Recurrence Questions

As a brief recap, due to finding a mass in the right side of abdomen during a CT Scan 2 weeks or so ago, the surgical board met and reviewed the scans and determined that the surgeon is able to remove the mass (1cm x 3cm), but they want to have a PE Scan done tomorrow and review the scans to make su...
by FindTheBestHelp
Fri Apr 27, 2018 3:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update CEA & CT Scan Results - Advice/Feedback Needed
Replies: 6
Views: 1272

Re: Update CEA & CT Scan Results - Advice/Feedback Needed

Hi all, just as an update: I have several questions embedded below and would greatly appreciate all of your feedbacks! Anyway, about 4 years ago, since chemo (FOLFOX) was already given to treat colon cancer following a surgery to remove a cancerous mass which made necessary a total colectomy the onc...
by FindTheBestHelp
Tue Apr 24, 2018 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update CEA & CT Scan Results - Advice/Feedback Needed
Replies: 6
Views: 1272

Re: Update CEA & CT Scan Results - Advice/Feedback Needed

Do you have any inflammation? That could cause CEA to go up bit not sure by how much.
by FindTheBestHelp
Tue Apr 24, 2018 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update CEA & CT Scan Results - Advice/Feedback Needed
Replies: 6
Views: 1272

Update CEA & CT Scan Results - Advice/Feedback Needed

Hi Everyone, Your feedback/advice would be greatly appreciated. Here is a brief history: Mid-June 2014 - Diagnosed with "Stage 3" colon cancer, met with surgeon for pre-op advisement which was that a total colectomy was needed/best. The following week, a surgery was scheduled and the tumor...

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