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by FindTheBestHelp
Wed Apr 17, 2019 2:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy and high triglyceride level
Replies: 0
Views: 205

Immunotherapy and high triglyceride level

Has anyone here gotten blood work done ahead of their first or subsequent immunotherapy infusion appointments and been told that their triglyceride level was too high to proceed with the infusion? Just got blood work back a day ago and the infusion department called and said the triglyceride level w...
by FindTheBestHelp
Mon Apr 15, 2019 6:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I declined Oxaliplatin
Replies: 8
Views: 1264

Re: I declined Oxaliplatin

Thank you for this. My mom is 75 and I worry about her handling the Oxi and am also starting to question the benefit of it for a person of her age vs the potential side effects and subsequent decline in quality of life. Also just found out her tumor is MSI so genetic testing is next. It’s my unders...
by FindTheBestHelp
Mon Apr 15, 2019 6:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Switching back to Pembro
Replies: 70
Views: 28631

Re: Switching back to Pembro

Henry: I have no specific data but antidotally, my oncologist (the one prescribing the Keytruda) stated that if after 2 years on Keytruda I had any potential cancer evident in my body (via CT scan or via CEA) he suggested, based on past experience that we maintain the course and continue treatment ...
by FindTheBestHelp
Mon Apr 15, 2019 6:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 23
Views: 2044

Re: Adjuvant immunotherapy

I really wish that cancer treatments such as immunotherapies would be granted to all viable candidates, especially since it gives a relatively good chance of response and durability. It's a shame that cancer patients who already have enough to worry about would also have to worry about footing the b...
by FindTheBestHelp
Mon Apr 15, 2019 6:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 23
Views: 2044

Re: Adjuvant immunotherapy

Pyro wrote:Anyone get Keytruda on Medicare?


Yes. If you have any question about it feel free to ask, either in thread or PM in case I don't catch the update in thread.
by FindTheBestHelp
Mon Apr 15, 2019 5:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 23
Views: 2044

Re: Adjuvant immunotherapy

Thank you everyone. Such great stories! I was just months from being treated with immunotherapy in the first line setting... But, I’m so greatful for being NED. Just wish I could have immunotherapy now, not wait for it to show up again... Are you still on folfox or stopped at 5 cycles? i sometimes ...
by FindTheBestHelp
Mon Apr 15, 2019 5:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 23
Views: 2044

Re: Adjuvant immunotherapy

I think it was about 18 months of treatment before the colitis began. It was treated successfully with prednisone. Although I still have lights bouts of it kinda daily, nothing that stops me! It is not why I stopped. I hit the 2 year mark and had a clean PET and CT scan. It took almost 2 years thou...
by FindTheBestHelp
Mon Apr 15, 2019 5:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 23
Views: 2044

Re: Adjuvant immunotherapy

Wonderfullymade wrote:I am also msi-h and 2 different types of chemo failed me as well! See my sig!
Wonderfullymade


Was the DVT/PE a result of the immunotherapy?
by FindTheBestHelp
Mon Apr 15, 2019 5:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant immunotherapy
Replies: 23
Views: 2044

Re: Adjuvant immunotherapy

I am MSI-H as well. Did FOLFOX + Erbitux as well as FOLFIRI as adjuvant chemo after surgeries. Had recurrences after both. After that I was put on Keytruda and I am about to hit my 2 year mark on the drug. I have been NED for almost the whole time on immunotherapy. I know it’s useless to think abou...
by FindTheBestHelp
Mon Apr 15, 2019 5:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy Questions
Replies: 5
Views: 570

Re: Immunotherapy Questions

That is good news that she got a response and the tumor completely resolved. It's probably a good idea in that it probably killed things that couldn't be caught in scans or detected also. I was curious though if other immunotherapy options were on the table and discussed by the oncologist, such as O...
by FindTheBestHelp
Tue Apr 09, 2019 10:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy Questions
Replies: 5
Views: 570

Re: Immunotherapy Questions

Thanks Jack&KatiesMommy and henry123 for your replies. Looks like one of you is taking Keytruda and the other Opdivo. Apparently Keytruda and Opdivo are said to be more or less about equivalent, although there may be some differences not yet fully understood well enough to choose one over the ot...
by FindTheBestHelp
Sun Apr 07, 2019 6:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy Questions
Replies: 5
Views: 570

Immunotherapy Questions

Has anyone ever gone on Immunotherapy, was then later found NED (maybe after a cleanup surgery), and then off of immunotherapy for some time now? If so, is there any limitation on being able to revisit the immunotherapy in the future if needed? Does it lose its effectiveness?
by FindTheBestHelp
Wed Apr 03, 2019 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 33
Views: 2829

Re: Starting immunotherapy next week

I'm really glad it's working well for you Beth, as it gives hope to others. Thanks for your replies Beth and everyone! Still deciding whether to try Opdivo + Yervoy or just go with Keytruda alone. It's a tough decision because of not wanting to come short of doing enough to give a fighting chance at...
by FindTheBestHelp
Fri Mar 22, 2019 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 33
Views: 2829

Re: Starting immunotherapy next week

My oncologist presented my two immunotherapy options as keytruda alone, or Opdivo plus Yervoy. We went with keytruda because it is generally somewhat easier on the body. From what I've read recently, stats show Keytruda clearly beating Opdivo, but Opdivo plus Yervoy works better than Opdivo alone. ...
by FindTheBestHelp
Sun Mar 17, 2019 7:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Starting immunotherapy next week
Replies: 33
Views: 2829

Re: Starting immunotherapy next week

Hello fellow Lynchie and opdivoite, I pray that immunotherapy works out for you. Good to know that my input here is helping someone. Do consider aspirin also with Nivolumab after talking to your oncologist. As a side note, Nivolumab has been not too bad so far. Hi, I've heard that aspirin could be ...

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