Search found 245 matches

Go to advanced search

by behconsult
Wed Apr 17, 2019 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 128
Views: 27210

Re: Keytruda....Working for MSS....Mutation Burden is the Key

i wanted to give you all an update on my off-label use of Keytruda (since I am MSS it is not approved for use by me....since it doesn’t generally work for colon cancer patients which microsatellite stable tumors.) HOWEVER, it looks like it is working for me....and here is the reason why (according ...
by behconsult
Tue Apr 16, 2019 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

The Senator liked the proposal and is agreeable to sponsoring. He is sending the proposal to Legislative Services to be drafted and they will be in touch with me to craft it. I will need Ohio Buckeye Help from locals on the colon club board. He was curious who would oppose it as every piece of legis...
by behconsult
Tue Apr 16, 2019 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

Bless you and Thank you!! Two more hours and I hope my chemo brain doesn't make me a fool. Bob
by behconsult
Thu Apr 11, 2019 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 927

Re: Question about Xeloda scheduling/timing differences

Connie, I have been on 5,000 mg per day (about 60 rounds) and recently had it cut to 4,000 mg per day. I think it is one of those things that impacts everyone differently. Certainly the longer you are on it the more significant the side-effects. I am on a 7-day a week on and 7 off (breast cancer pro...
by behconsult
Tue Apr 02, 2019 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

rp1954 , Have you proposed this regimen yourself? It is there for all Colon Club readers and adminstrators. My wife's treatment is based on a degree of personalization and stratification. Its somewhat more like a system of navigation and exploration on an advanced sailing vessel 250 years ago. Desp...
by behconsult
Tue Apr 02, 2019 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

.. I got in. Appt with my Senator on April 16 for a 1/2 hour proposal.....after my onc appt in the morning-- Irony. B Good! I'm happy to hear that you got an appointment. Have you decided what to focus on during your half-hour appointment? Do you have an actual proposal to present? Thank you. I wil...
by behconsult
Mon Apr 01, 2019 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

... If my senator or state rep calls me back, I will share an earful. I think all the change can occur from a bottom-up initiated force. Requiring a detailed pro-patient informed consent and required disclosure about treatment options. Good luck on your contact with your Senator. If you don't get a...
by behconsult
Mon Apr 01, 2019 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

I support this BUT there are some issues. You would have to constantly change the “Bill of Rights” if it includes the effectiveness of treatments because it’s always changing. I’m not saying it’s impossible, but it may not include this.i was talking to a cancer researcher the other day (neighbor, I...
by behconsult
Sun Mar 31, 2019 8:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

I think every colon cancer treating facility should have a ColonClub liaison. If my senator or state rep calls me back, I will share an earful. I think all the change can occur from a bottom-up initiated force. Requiring a detailed pro-patient informed consent and required disclosure about treatment...
by behconsult
Sun Mar 31, 2019 8:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Re: Oncology and chemo business as a monopoly on treatment

You have a point. You should not tar all oncologists with the same brush. Many are open to all kinds of treatments as they view their main job as curing the patient. All of us Stage 4 patients are different, but oncs are very different also. Just sayin' Hi Betsy, You are correct. I hope you didn't ...
by behconsult
Sat Mar 30, 2019 9:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 24
Views: 1559

Oncology and chemo business as a monopoly on treatment

This may be a little psychological venting: Twice so far I have had to battle my oncologists for alternative treatments such as cryo or SBRT consultants. Each onc was a "chemo for life" proponent. This most recent occasion I think I bludgeon my Onc to the point where he said I will support...
by behconsult
Wed Mar 27, 2019 1:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: any peeps with BRAF mutation on here?
Replies: 193
Views: 52631

Re: any peeps with BRAF mutation on here?

Thanks for the update. May complete healing be yours!! Bob
by behconsult
Tue Mar 26, 2019 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT vs Cryo for lung mets & Maint schedule
Replies: 7
Views: 429

Re: SBRT vs Cryo for lung mets & Maint schedule

The folks I've seen with SBRT tore up a lot of real estate and didn't gain as much as other methods of removal might have. We favor oral chemo extended by mild adjuncts. Daily versions of Xeloda can be enhanced by various nicer adjuncts, with less side effects, guided by MCV and other bloodwork. Yo...
by behconsult
Tue Mar 26, 2019 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT vs Cryo for lung mets & Maint schedule
Replies: 7
Views: 429

Re: SBRT vs Cryo for lung mets & Maint schedule

Hello everyone, A couple of nodules on my lungs have grown. I previously had cryo and got two years of time out of the procedure. The PET sees some avidity with one met having a higher SUV then before. I was thinking about cryo again but a second opinion doc weighed in that radiation seems to work ...
by behconsult
Tue Mar 26, 2019 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: SBRT vs Cryo for lung mets & Maint schedule
Replies: 7
Views: 429

SBRT vs Cryo for lung mets & Maint schedule

Hello everyone, A couple of nodules on my lungs have grown. I previously had cryo and got two years of time out of the procedure. The PET sees some avidity with one met having a higher SUV then before. I was thinking about cryo again but a second opinion doc weighed in that radiation seems to work b...

Go to advanced search