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by behconsult
Sat Jun 05, 2021 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Chemo Break??
Replies: 6
Views: 2471

Re: Stage 4 Chemo Break??

I Take a break every 4 cycles otherwise I am too tired and weak to anything other than my work. Breaks give the body a chance to reboot. :D B
by behconsult
Tue May 04, 2021 3:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA After 2 1/2 Years on Keytruda
Replies: 22
Views: 5578

Re: Rising CEA After 2 1/2 Years on Keytruda

Cynthia, Peace to you. I can understand and appreciate the CEA & SUV anxiety as I also have that to deal with that- Even now as I type. I too talked with God about not leaving my children age 11 & 13 and wife to go through life without me. If I may, what needs to be revealed for your long-te...
by behconsult
Mon May 03, 2021 9:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA Level question
Replies: 4
Views: 1440

CEA Level question

As I step through the anxiety, I have ongoing angst about my above normal CEA. Note that previously my cancer always had cea in the normal range, even when I had blockage of a large tumor. In July of 2020, I had the growth of a lung lesion, CEA increase (Mutation) and had cryoablation. Hence, the CE...
by behconsult
Thu Mar 11, 2021 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mum needs prayers
Replies: 27
Views: 5046

Re: My mum needs prayers

Prayers sent. Peace to you and your family. Bob
by behconsult
Sun Mar 07, 2021 8:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 13
Views: 3393

Re: Anyone on daily Xeloda?

My wife used daily chemo for 8 years with frequent IV vitamin C, and supplements for support of higher chemo dosages than possible without IVC, with a high quality of life and pretty good immune function e.g. WBC over 4 - 5. Frequent enough IV vitamin C can help with fatigue and some chemo side eff...
by behconsult
Sun Mar 07, 2021 3:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone on daily Xeloda?
Replies: 13
Views: 3393

Anyone on daily Xeloda?

I have been on a schedule of one week on and one week off of Xeloda and Avastin. A second opinion onc suggested a low dose daily as opposed to my current schedule to address fatigue. Has anyone done this and did you notice a difference? Thanks Bob
by behconsult
Tue Jan 05, 2021 10:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Covid 19 vaccine
Replies: 98
Views: 29628

Re: Covid 19 vaccine

I got mine first dose today as I work in the medical field. I called my onc as I was taking Xeloda, Avastin, and the Moderna all in the same day. He reported I was good to go. Bottoms up with the triple combo. I am grateful. B
by behconsult
Wed Apr 17, 2019 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 152
Views: 41061

Re: Keytruda....Working for MSS....Mutation Burden is the Key

i wanted to give you all an update on my off-label use of Keytruda (since I am MSS it is not approved for use by me....since it doesn’t generally work for colon cancer patients which microsatellite stable tumors.) HOWEVER, it looks like it is working for me....and here is the reason why (according ...
by behconsult
Tue Apr 16, 2019 4:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4195

Re: Oncology and chemo business as a monopoly on treatment

The Senator liked the proposal and is agreeable to sponsoring. He is sending the proposal to Legislative Services to be drafted and they will be in touch with me to craft it. I will need Ohio Buckeye Help from locals on the colon club board. He was curious who would oppose it as every piece of legis...
by behconsult
Tue Apr 16, 2019 12:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4195

Re: Oncology and chemo business as a monopoly on treatment

Bless you and Thank you!! Two more hours and I hope my chemo brain doesn't make me a fool. Bob
by behconsult
Thu Apr 11, 2019 8:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about Xeloda scheduling/timing differences
Replies: 15
Views: 2101

Re: Question about Xeloda scheduling/timing differences

Connie, I have been on 5,000 mg per day (about 60 rounds) and recently had it cut to 4,000 mg per day. I think it is one of those things that impacts everyone differently. Certainly the longer you are on it the more significant the side-effects. I am on a 7-day a week on and 7 off (breast cancer pro...
by behconsult
Tue Apr 02, 2019 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4195

Re: Oncology and chemo business as a monopoly on treatment

rp1954 , Have you proposed this regimen yourself? It is there for all Colon Club readers and adminstrators. My wife's treatment is based on a degree of personalization and stratification. Its somewhat more like a system of navigation and exploration on an advanced sailing vessel 250 years ago. Desp...
by behconsult
Tue Apr 02, 2019 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4195

Re: Oncology and chemo business as a monopoly on treatment

.. I got in. Appt with my Senator on April 16 for a 1/2 hour proposal.....after my onc appt in the morning-- Irony. B Good! I'm happy to hear that you got an appointment. Have you decided what to focus on during your half-hour appointment? Do you have an actual proposal to present? Thank you. I wil...
by behconsult
Mon Apr 01, 2019 4:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4195

Re: Oncology and chemo business as a monopoly on treatment

... If my senator or state rep calls me back, I will share an earful. I think all the change can occur from a bottom-up initiated force. Requiring a detailed pro-patient informed consent and required disclosure about treatment options. Good luck on your contact with your Senator. If you don't get a...
by behconsult
Mon Apr 01, 2019 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oncology and chemo business as a monopoly on treatment
Replies: 25
Views: 4195

Re: Oncology and chemo business as a monopoly on treatment

I support this BUT there are some issues. You would have to constantly change the “Bill of Rights” if it includes the effectiveness of treatments because it’s always changing. I’m not saying it’s impossible, but it may not include this.i was talking to a cancer researcher the other day (neighbor, I...

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