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by aja1121
Mon Oct 22, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update
Replies: 6
Views: 608

Update

I don't post much here anymore (more active on the Colontown Facebook groups) but figured I should provide an update. My husband's local recurrence of rectal cancer continued to grow throughout three clinical trials. The tumor is low in his pelvis and has broken through the skin of his perineum, cau...
by aja1121
Fri Jul 27, 2018 10:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 25
Views: 7000

Re: Goodbye

I would like to sincerely thank you, Risto (and you as well, GrouseMan) for sharing your experiences with us. As caregiver to someone with Stage IV cancer, fear of the end/hospice/unknown is always in the back of my mind. Your openness and honesty are helpful to me and to the many other people readi...
by aja1121
Mon Jun 11, 2018 1:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adverse reaction to capecitabine?
Replies: 14
Views: 837

Re: Adverse reaction to capecitabine?

Did your mom's oncologist prescribe Zofran and Lomotil with the capecitabine? Zofran is for nausea/vomiting and Lomotil is for diarrhea. Frankly I don't think she should have to ask for either of these when on chemo, they should have just given them to her. Nurse practitioner at my husband's oncolog...
by aja1121
Mon Jun 04, 2018 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's baaaaaaack!
Replies: 13
Views: 1855

Re: It's baaaaaaack!

This has nothing to do with colon cancer, but I encourage you to take early retirement if it's an option for you. My dad was unsure if he should stop working at 62 or keep at it for a few more years in order to receive more Social Security. He decided to go for it and retired shortly after his 62nd ...
by aja1121
Thu May 10, 2018 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5265

Re: Just diagnosed and it's EVERYWHERE...what to do now??

lovemyameliasky You must be worried sick. Believe it or not, you'll probably feel a little better once you have a plan.

Have your doctors been able to give you ANY information yet about your tumor?

How are they addressing your pain?
by aja1121
Tue May 08, 2018 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and it's EVERYWHERE...what to do now??
Replies: 24
Views: 5265

Re: Just diagnosed and it's EVERYWHERE...what to do now??

You must be completely shell-shocked right now. Just remember, nobody knows your expiration date. My husband was given six months after his rectal cancer recurred; that was two years ago. The first thing I'd want to know in your situation is whether my cancer is MSS or MSI and what specific mutation...
by aja1121
Thu Apr 19, 2018 10:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal Cancer
Replies: 2
Views: 652

Re: Rectal Cancer

I'm not an expert, but my husband has been fighting rectal cancer for almost 4 years. Here's my take; hope others will correct me if I'm wrong. "Multiple non-bleeding diverticula were seen in the descending colon and sigmoid colon. Diverticulosis appeared to be of moderate severity." Diver...
by aja1121
Thu Apr 12, 2018 12:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Partial radiation
Replies: 8
Views: 877

Re: Partial radiation

Would his doctors be willing to prescribe Valium or Ativan to help with sleep for the next couple weeks?
by aja1121
Tue Mar 13, 2018 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Napabucasin and Folfiri plus Avastin- anyone on this trial?
Replies: 20
Views: 6152

Re: Napabucasin and Folfiri plus Avastin- anyone on this trial?

My husband had two stable scans on the BBI-608 trial with FOLFIRI. At that point, due to some unrelated kidney problems (ureter obstruction caused by radiation) he was unable to receive FOLFIRI for seven weeks and unfortunately the next scan showed progression. However, growth WAS controlled when he...
by aja1121
Mon Feb 26, 2018 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Symptoms of local recurrence?
Replies: 5
Views: 1115

Re: Symptoms of local recurrence?

My husband had local recurrence of his rectal cancer. Symptoms were strong urge to have a bowel movement without anything coming out, and pain in his tailbone.
by aja1121
Fri Dec 08, 2017 10:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help with Disability please! UPDATED
Replies: 10
Views: 1415

Re: Help with Disability please!

My husband also applied for SSDI when his cancer was deemed inoperable/stage IV. I believe they fast-track the approval process for stage IV, and the people I spoke to at the social security office were very sympathetic and helpful. However, SSDI begins paying 6 months after the established date of ...
by aja1121
Wed Sep 13, 2017 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom's journey is over
Replies: 31
Views: 4602

Re: My mom's journey is over

I am so sorry for your loss. You are in my thoughts.
by aja1121
Tue Aug 29, 2017 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Napabucasin and Folfiri plus Avastin- anyone on this trial?
Replies: 20
Views: 6152

Re: Napabucasin and Folfiri plus Avastin- anyone on this trial?

Quick update... scans in July showed minor progression on Xeloda/Avastin. Received word today that my husband has been accepted into NCT02024607 (BBI608, also known as Napabucasin + FOLFIRI arm) at Mayo Clinic. He will take his first dose of the drug this Friday 9/1, and will get his first infusion ...
by aja1121
Thu Aug 03, 2017 11:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My husband walked out
Replies: 49
Views: 8105

Re: My husband walked out

I am sorry for this additional stress. I am the type of person who prefers to confront reality, and I know firsthand it can cause a lot of upheaval among those who prefer to ignore it. I'm keeping you in my thoughts.

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