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by megan120
Tue Jul 05, 2016 12:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new guy here
Replies: 8
Views: 1137

Re: new guy here

I was also able to work with my pump, I'm an ER nurse and I work 12 hour night shifts. I wore my pump under my scrubs in a poppy pocket. I had a hard time with the cold sensitivity and some neuropathy. I had a hard time flipping the tops off the med vials sometimes and I still feel like my hands are...
by megan120
Tue May 31, 2016 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rare Colon Cancer Metastasis to Uterus
Replies: 16
Views: 3987

Re: Rare Colon Cancer Metastasis to Uterus

My last pet was last June. I get ct scans every 3 months for now. My onc isn't planning any more pet scans unless something shows up on a ct scan.
by megan120
Tue May 31, 2016 11:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Huge respect for you Northern Hemisphereites
Replies: 6
Views: 1348

Re: Huge respect for you Northern Hemisphereites

I live in North Idaho, and the chemo last winter was torture. I would go outside and my eyelashes would spasm and the cold air would make me slur like I was having a stroke or I was drunk. The six rounds of folfox that I had in the summer were so much easier.
by megan120
Tue May 31, 2016 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rare Colon Cancer Metastasis to Uterus
Replies: 16
Views: 3987

Re: Rare Colon Cancer Metastasis to Uterus

I was diagnosed with my stage IV colon cancer when it was found in my cervix. Initially my surgeon wasn't sure if it was a metastasis or a second primary, since this spread is so uncommon. I ended up needing my resection about a week after I got my diagnosis, so we figured out pretty quickly that it...
by megan120
Sun Jan 31, 2016 6:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT scan and PET scan
Replies: 44
Views: 3681

Re: CT scan and PET scan

You seem to be jumping way ahead of yourself. You simply cannot say that if you are not stage I then you are stage IV. It does not work like that. You need to understand that any area of increased metabolism is going to light up on a pet scan. There are many areas that will light up that is consider...
by megan120
Sun Jan 31, 2016 6:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Give it to me straight--the leak test
Replies: 8
Views: 2823

Re: Give it to me straight--the leak test

I just had my leak test last week. I also had one in June before my end ileostomy was taken down and my loop ileostomy was formed. I didn't tolerate the one in June very well, the tube for the barium was too painful, so they used a foley catheter with gastrografin instead. I also leaked that time, w...
by megan120
Wed Dec 30, 2015 2:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Withering away without help
Replies: 48
Views: 11553

Re: Withering away without help

I know you are still reading, so I thought I would ask a few questions that I have. I don't really expect a response, but I do hope you will at least think about what I am saying. How long have you been taking the anti-depressant? Many of the concerns that you are having are also listed as common si...
by megan120
Sun Dec 06, 2015 5:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new member... this is hard!
Replies: 13
Views: 2058

Re: new member... this is hard!

I also worked during chemo. I used a poppy pocket to wear my pump under my scrubs at work. I thought it looked and felt a little awkward, but none of my patients seemed to notice it, so maybe it wasn't as obvious as I thought. I got it from one of my chemo nurses during my infusion, but they are als...
by megan120
Sat Oct 31, 2015 12:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FYI- Ports
Replies: 11
Views: 1686

Re: FYI- Ports

BS-I know you can become septic from an infection in a port. That is why I mentioned sterile technique during insertion of the port and while it is being accessed. The risk is less if it is being used with proper technique. The port isn't the source of the bacteria, it has to be introduced into the ...
by megan120
Sat Oct 31, 2015 3:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FYI- Ports
Replies: 11
Views: 1686

Re: FYI- Ports

I'm confused. Did your doctor mean that your previous port has increased your risk for staph infections? I am not sure I understand how having a port would increase your risk for staph, or more specifically MRSA, which is the staph nasty staph that is a concern in the hospital. The port itself, whil...
by megan120
Sat Oct 31, 2015 3:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OT-ish: How many ER visits...
Replies: 17
Views: 2009

Re: OT-ish: How many ER visits...

I have had 4 ER visits. Three of those lead to admissions. I also had an admission to the hospital from the clinic. Between 3 major surgeries and 3 other admissions I have spent 32 nights in the hospital since diagnosis in May 2014. Definitely sucky. What are the symptoms that end up sending you to ...
by megan120
Fri Oct 02, 2015 8:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Right hemicolectomy
Replies: 81
Views: 11789

Re: Right hemicolectomy

Is there a reason you don't want an epidural? I have had 3 surgeries due to my cancer, and had an epidural with 2 of them. My first surgery (an extended rt hemicolectomy with ileostomy) was an emergency and since I had been on blood thinners I couldn't have an epidural. The epidural was nice because...
by megan120
Fri Sep 18, 2015 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Issues after Ostomy Reversal
Replies: 15
Views: 4198

Re: Issues after Ostomy Reversal

Has he talked to his doctor about using Imodium or lomotil to help slow down the diarrhea? There is a cream that our ER docs recommend to pts who severely broken down skin from stool, it is calmseptine and I don't think you need a prescription for it, but it is behind the pharmacy counter. I hope he...
by megan120
Fri Sep 18, 2015 11:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomy nurse -- where to find/ how to get? Perm ileo surgery soon.
Replies: 5
Views: 1069

Re: Ostomy nurse -- where to find/ how to get? Perm ileo surgery soon.

I would call the hospital where he is having surgery and see if there is an ostomy nurse he can meet with before surgery. They can mark a good spot for the stoma that will work best for bag placement. I have seen some horrendous stomas that were a huge challenge to prevent leaks that may have been b...
by megan120
Fri Sep 18, 2015 11:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Shingles.... Seriously?
Replies: 14
Views: 1347

Re: Shingles.... Seriously?

I'm sorry. I had them pop up with my 7th round of folfox. They suck and mine was a pretty mild case, just a few on my side and back. Are you having pain around your whole waistline? Usually shingles follow the nerve and only effect one side. I hope you can figure it out quickly and get some relief s...

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