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by Redwingfan3991
Fri Sep 16, 2016 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any news on Lonsurf? Hubby just started
Replies: 6
Views: 2988

Re: Any news on Lonsurf? Hubby just started

My mom only did one round of lonsurf. She passed away the day was due to start her 2nd round.
Her heart was to weak ....

Best of luck to anyone starting this.



Michelle
by Redwingfan3991
Sat Apr 16, 2016 11:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any news on Lonsurf? Hubby just started
Replies: 6
Views: 2988

Re: Any news on Lonsurf? Hubby just started

Hello
I don't have to much info. My mom started the pills on Wed. So far she's just really really tired. She felt this way before starting the chemo and I'm sure this isn't helping

Michelle
by Redwingfan3991
Tue Dec 29, 2015 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need some new trial options/Running out of Time
Replies: 7
Views: 1781

Re: Need some new trial options/Running out of Time

My mom has not started the xilonix trial. She is on the one thru karmanos.
She has been on it for 1 week and is tolerating it well.
If you would like to speak with her about, I will put you in contact with her


Michelle
by Redwingfan3991
Tue Dec 29, 2015 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need some new trial options/Running out of Time
Replies: 7
Views: 1781

Re: Need some new trial options/Running out of Time

Ceebo,

My mom started this trial last Monday.
She is tolerating it well a bit tired but otherwise
No major issues.

Feel free to contact me, and if you want I can put you in
Touch with her.

Good luck to your husband

Michelle
by Redwingfan3991
Wed Oct 28, 2015 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Voice issues - Erbitux - FOLFIRI
Replies: 8
Views: 760

Re: Voice issues - Erbitux - FOLFIRI

On Folfori and Stivarga my mom sounded like she had a permanent case of larangitis. Now that's she's done with chemo her voice has come back
by Redwingfan3991
Fri Oct 09, 2015 5:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 138
Views: 45595

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

The doctors don't feel that a reduction in dose would be beneficial for my mom due to her reactions to the chemo. He is pulling her off and trying to find a clinical trial.

I hope this chemo works for someone , unfortunately my mom wasn't one of them
by Redwingfan3991
Wed Oct 07, 2015 6:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 138
Views: 45595

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Janie and Cindie

Thank you for your input
I printed out the information on Tas-102 for the doctor on Friday, as well as lowering her dosage, which will hopefully help. That chemo stuff is brutal. I would rather have her ENJOY her time with us than sitting /sleeping on the couch all day.

Michelle
by Redwingfan3991
Wed Oct 07, 2015 7:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES
Replies: 138
Views: 45595

Re: STIVARGA (Regorafenib) - ONGOING PATIENT EXPERIENCES

Hello. My mom is currently taking Stivarga. She has been on it for a week. At this point the only side effect is extreme fatigue. As in she can't even sit up or carry a conversation without needing a break to rest. The Stivarga nurse just says fatigue is "common ". I'm not really sure to t...
by Redwingfan3991
Fri Sep 04, 2015 5:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for advise
Replies: 3
Views: 666

Re: Looking for advise

My mom has to much cancer in her for a hipec surgery. We were hoping the chemo would shrink / slow down the growth enough for surgery. I will look into clinical trials.

Thanks
by Redwingfan3991
Thu Sep 03, 2015 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for advise
Replies: 3
Views: 666

Looking for advise

Hello. I haven't been on much as mom has been stable. We had her cea tested last month it was 287 She had it tested again this month it's now 511 It appears folfiri isn't working anymore. She isn't a canadite for surgery as she has to much seeding The onc was making noises last month about strivaga ...
by Redwingfan3991
Mon Oct 20, 2014 12:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice
Replies: 12
Views: 1788

Re: Need advice

At Ray and SkiFletch..

Thank you for your information.. This is what I'm looking for First hand knowledge and experience!!


Michelle
by Redwingfan3991
Mon Oct 20, 2014 9:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice
Replies: 12
Views: 1788

Re: Need advice

I want her out of Oakwoods system, but mom likes the dr and won't go. I can fly her anywhere around the country, won't go, I sorta understand the not leaving the state due to family being here, but not going to u of m ?!? All I can do is support her and her decision .. Ultimately the choice is hers ...
by Redwingfan3991
Sat Oct 18, 2014 5:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice
Replies: 12
Views: 1788

Re: Need advice

Thank you for the replies My mom is kras mutant ( I believe that's what he said, need to double check ) , and He took her scans and results from chemo to the tumor board, so I guess we will see what this other dr recommends . I just worry, because she's 64, and reading about this surgery and the rec...
by Redwingfan3991
Sat Oct 18, 2014 9:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice
Replies: 12
Views: 1788

Re: Need advice

She is being treated by dr Khan out of Oakwood , but he is referring her to Dr Berri out of St Johns to see if she is a canadite
For Hipec.
by Redwingfan3991
Sat Oct 18, 2014 5:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice
Replies: 12
Views: 1788

Need advice

Hello... So folfox isn't working for my mom. Her mets are in her omentumn and are growing Her doctor has had her case sent to the tumor board Here in MI , the recommendation is to meet with Dr Berri and see if she is a candidate for hipec surgery. So, I guess I'm wondering what type of questions sho...

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