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by Awreed
Fri May 12, 2017 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lonsurf experience
Replies: 1
Views: 1624

Lonsurf experience

My doc wants me to start Lonsurf while I wait to do Y90 to my liver. Can you share success or failures and side effects?
Thanks!
by Awreed
Sat Nov 12, 2016 12:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help on AARP Medicare gap policy need a prescription plan
Replies: 1
Views: 625

Help on AARP Medicare gap policy need a prescription plan

Switching Medicare gap policy, Aetna sent me a letter stating they will no loner offer my policy in 2017. I live in Northern Virginia, just outside DC. Virginia has very limited Medicare early disability policies, in fact none that will work for me so I am moving back to Bethesda, Maryland and going...
by Awreed
Thu Sep 29, 2016 10:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: $$561 a month for Xeloda on Medicare??? Help!!
Replies: 10
Views: 2291

$$561 a month for Xeloda on Medicare??? Help!!

Xeloda costing me $561 a month on Medicare?? Anything I can do? I have Aetna supplemental but evidently Xeloda is not covered by my rx coverage but rather my medical coverage which I have to pay 20% up to my max out of pocket. Anyone have experience with this?
by Awreed
Sun Sep 25, 2016 9:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Struggling with terminal diagnosis
Replies: 12
Views: 2450

Struggling with terminal diagnosis

Does anyone else struggle with a stage IV terminal diagnosis but currently feel strong? I know this will change, not sure how long though, i.e. Sooner vs later. I've exhausted all chemo except lonsurf and straviga so I'm assuming sooner. But it's SO strange, on paper, I've never been this close to d...
by Awreed
Fri Aug 12, 2016 1:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped 82 percent after 2 vectibix infusions...
Replies: 5
Views: 1399

CEA dropped 82 percent after 2 vectibix infusions...

I am curious if anyone has had experience with the EGFR inhibitor, Vectibix being used as a single agent, so not with irrinotican or Folfox. I heard it works better in combo with something else but I decided to use alone. My CEA was 282, highest ever in my 4 plus years. After 1 infusion it went to 1...
by Awreed
Wed Aug 12, 2015 4:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have experience w/ sup. insurance w/ Medicare?
Replies: 8
Views: 1110

Anyone have experience w/ sup. insurance w/ Medicare?

I am going on Medicare in couple months and believe I will need supplemental insurance for coverage and prescriptions. I live in VA.
Thanks!
by Awreed
Tue Jun 30, 2015 2:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have experience with Y-90
Replies: 1
Views: 776

Anyone have experience with Y-90

They say it's palliative, can it put you in position for resection? Side effects? Down time?
by Awreed
Sat Jun 13, 2015 12:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 635
Views: 259430

Re: TIL Immunotherapy at NCI

I'm in... unofficially. They all meet Monday but they called today and want me in for brain scan, pulmonary test, EKG and to meet with thoracic surgeon. Am I the 1st male mouse from the boards??
by Awreed
Wed Jun 10, 2015 6:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Meeting w NIH TIL docs tomorrow, help!!
Replies: 3
Views: 765

Meeting w NIH TIL docs tomorrow, help!!

Total bilirubin is 1.7 needs to be under 1.6...any suggestions on how to get it down overnight??
Also cea has gone from 5 to 200!!!! Am I screwed??!!
by Awreed
Wed Jun 03, 2015 10:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IL 12 immunotherapy trial
Replies: 2
Views: 711

IL 12 immunotherapy trial

Has anyone done/ researched or heard anything about the IL 12 immunotherapy trial that helps the immune system become more active and kill cancer cells that didn't respond to 1st or 2nd line treatment?
I'm stage IV Ned on ADAPT and have to decide if I'm willing to go off ADAPT to get the IL 12.
by Awreed
Sun May 31, 2015 11:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: postpone ct?
Replies: 13
Views: 1321

Re: postpone ct?

Don't want to upset your oncologist? Then I say be with your son, enjoy. Dr K is on your payroll.
by Awreed
Wed May 20, 2015 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ASCO '15 HAI - 80% 5-year survival rate. Dr. Kemeny
Replies: 14
Views: 4242

Re: ASCO '15 HAI - 80% 5-year survival rate. Dr. Kemeny

That's because she is extremely picky about what patients she takes on, does not want her #'s skewed. Really not impressed.
by Awreed
Thu May 07, 2015 10:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm gearing up for.....
Replies: 46
Views: 4018

Re: I'm gearing up for.....

Hope it's a smooth flight Kenny!

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