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by Colonless in NY
Thu Dec 26, 2013 2:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Kock Pouch
Replies: 2
Views: 934

Kock Pouch

Anyone out here with a Kock pouch that wouldn't mind chatting offline?
by Colonless in NY
Wed Sep 25, 2013 4:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recovery time....
Replies: 5
Views: 1128

Re: Recovery time....

Assuming you are in the U.S., a full time employee and covered under the FMLA, I recommend taking the full 12 weeks that you may be entitled to under the FMLA. You're having a lot done all at once. And while the body does heal quickly, it's not as quick as most of us would like. You're going to need...
by Colonless in NY
Mon Sep 23, 2013 12:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: looking for research on lynch recurrence
Replies: 15
Views: 2741

Re: looking for research on lynch recurrence

Hi Sophie: The good news about having Lynch, is that there we are not high risk for recurrence . The bad news is that we are still high risk (compared to the general population) for a host of other gastro-related primary cancers, as well as brain, skin, and most recently, breast. However, after colo...
by Colonless in NY
Wed Aug 28, 2013 10:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Voluntary Ostomy?
Replies: 11
Views: 2392

Re: Voluntary Ostomy?

Thank you all for your posts and comments. Belle, your blog was especially helpful and you essentially articulated nearly everything that I am feeling and experiencing. I didn't know about the ostomy.org boards before now, and, like Colonclub, has a wealth of information. I have a lot to think about...
by Colonless in NY
Tue Aug 27, 2013 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Voluntary Ostomy?
Replies: 11
Views: 2392

Voluntary Ostomy?

I can't think of a better forum to pose this. Here's my background. Five years ago at age 41, I was diagnosed with advanced stage endometrial cancer and was subsequently discovered to have Lynch Syndrome (MH2 & MH6 mutations). About 18 months after my final chemo treatment, I was diagnosed with ...
by Colonless in NY
Tue Aug 27, 2013 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My go at a things people say that irritate me post
Replies: 57
Views: 7718

Re: My go at a things people say that irritate me post

This post reminds me of a great little article that appeared in the NY Times a couple of year's ago. "You Look Great’ and Other Lies," Published: June 10, 2011 Here's a link: http://www.nytimes.com/2011/06/12/fashion/what-to-say-to-someone-whos-sick-this-life.html?pagewanted=all&_r=0
by Colonless in NY
Tue Aug 09, 2011 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Subtotal Colectomy for Lynch Syndrome?
Replies: 9
Views: 3503

Re: Subtotal Colectomy for Lynch Syndrome?

Hi Lisa: We share not only the same first name, but a very similar trajectory. I tested positive for Lynch after my first cancer diagnosis in 2008, which was endometrial. Before then, I had always enjoyed excellent health. From then on, I started getting annual colonoscopies. My scope in June 2010 r...
by Colonless in NY
Fri Jul 01, 2011 12:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Zofran headaches?
Replies: 6
Views: 1620

Re: Zofran headaches?

I was prescribed Emend for nausea during chemo. It was excellent. Much more effective than Zofran, I thought.
by Colonless in NY
Sun Nov 28, 2010 1:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How did everyone do with Thanksgiving?
Replies: 9
Views: 1290

Re: How did everyone do with Thanksgiving?

Onions are the devil's food as far as my new plumbing is concerned. Garlic is a close second. Won't be going near either for a long time.
by Colonless in NY
Mon Nov 15, 2010 11:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hereditary Cancer/ Lynch Syndrome
Replies: 22
Views: 4835

Re: Hereditary Cancer/ Lynch Syndrome

Grant: I tested positive for Lynch Syndrome after my first cancer diagnosis (endometrial) in 2008. The only good thing that I can say about a Lynch diagnosis is that as a result, I am screened aggressively on an annual basis for other Lynch related cancers. I had a colonoscopy June 2009 (clean) and ...
by Colonless in NY
Wed Nov 10, 2010 11:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Asking for prayers...
Replies: 18
Views: 2430

Re: Asking for prayers...

Many people who have total colectomies due to ulcerative colitis or severe IBS swear that the surgery turns out to a godsend for them. If your nephew's lived for years with UC, perhaps he will feel the same. I had my entire colon removed four and half months ago. Never had UC or IBS (in fact, never ...
by Colonless in NY
Wed Oct 06, 2010 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Do you change clothes when you have a scan?
Replies: 18
Views: 1544

Re: Do you change clothes when you have a scan?

I'm with you disco nap...hospital gown and underwear only. It's a Canadian and New York thing. I had the breast shield for the first time about 2 weeks ago. Wish they would have done it years ago.
by Colonless in NY
Mon Sep 20, 2010 8:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for help and info.....please!
Replies: 3
Views: 1040

Re: Looking for help and info.....please!

Elissa: I'm sorry for what you and your husband are having to deal with. It sucks. Period. Fortunately, living in the New York area gives you access to excellent healthcare. I am a 43 year old woman with Lynch Syndrome. I had my first cancer diagnosis at 41 (endometrial) and my second (colon) this p...
by Colonless in NY
Sun Sep 19, 2010 4:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Greatest Wet Wipe Ever
Replies: 6
Views: 1050

The Greatest Wet Wipe Ever

It's been nearly 3 months since my colectomy. In this time, I've gone from about 25 bowel movements a day to about 10. From 25 to 10 is heavenly in comparison, but my butt continues to take a beating with all of this activity. While Calmoseptine and A&D offer some relief, I find it uncomfortable...
by Colonless in NY
Fri Sep 10, 2010 10:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is Genetic testing covered by insurance?
Replies: 11
Views: 1836

Re: Is Genetic testing covered by insurance?

Mine was. I have United Healthcare POS Plan.

Lisa

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