Anyone out here with a Kock pouch that wouldn't mind chatting offline?

Assuming you are in the U.S., a full time employee and covered under the FMLA, I recommend taking the full 12 weeks that you may be entitled to under the FMLA. You're having a lot done all at once. And while the body does heal quickly, it's not as quick as most of us would like. You're going to need...

Hi Sophie: The good news about having Lynch, is that there we are not high risk for recurrence . The bad news is that we are still high risk (compared to the general population) for a host of other gastro-related primary cancers, as well as brain, skin, and most recently, breast. However, after colo...

Thank you all for your posts and comments. Belle, your blog was especially helpful and you essentially articulated nearly everything that I am feeling and experiencing. I didn't know about the ostomy.org boards before now, and, like Colonclub, has a wealth of information. I have a lot to think about...

I can't think of a better forum to pose this. Here's my background. Five years ago at age 41, I was diagnosed with advanced stage endometrial cancer and was subsequently discovered to have Lynch Syndrome (MH2 & MH6 mutations). About 18 months after my final chemo treatment, I was diagnosed with ...

This post reminds me of a great little article that appeared in the NY Times a couple of year's ago. "You Look Great’ and Other Lies," Published: June 10, 2011 Here's a link: http://www.nytimes.com/2011/06/12/fashion/what-to-say-to-someone-whos-sick-this-life.html?pagewanted=all&_r=0

Hi Lisa: We share not only the same first name, but a very similar trajectory. I tested positive for Lynch after my first cancer diagnosis in 2008, which was endometrial. Before then, I had always enjoyed excellent health. From then on, I started getting annual colonoscopies. My scope in June 2010 r...

I was prescribed Emend for nausea during chemo. It was excellent. Much more effective than Zofran, I thought.

Onions are the devil's food as far as my new plumbing is concerned. Garlic is a close second. Won't be going near either for a long time.

Grant: I tested positive for Lynch Syndrome after my first cancer diagnosis (endometrial) in 2008. The only good thing that I can say about a Lynch diagnosis is that as a result, I am screened aggressively on an annual basis for other Lynch related cancers. I had a colonoscopy June 2009 (clean) and ...

Many people who have total colectomies due to ulcerative colitis or severe IBS swear that the surgery turns out to a godsend for them. If your nephew's lived for years with UC, perhaps he will feel the same. I had my entire colon removed four and half months ago. Never had UC or IBS (in fact, never ...

I'm with you disco nap...hospital gown and underwear only. It's a Canadian and New York thing. I had the breast shield for the first time about 2 weeks ago. Wish they would have done it years ago.

Elissa: I'm sorry for what you and your husband are having to deal with. It sucks. Period. Fortunately, living in the New York area gives you access to excellent healthcare. I am a 43 year old woman with Lynch Syndrome. I had my first cancer diagnosis at 41 (endometrial) and my second (colon) this p...

It's been nearly 3 months since my colectomy. In this time, I've gone from about 25 bowel movements a day to about 10. From 25 to 10 is heavenly in comparison, but my butt continues to take a beating with all of this activity. While Calmoseptine and A&D offer some relief, I find it uncomfortable...

Mine was. I have United Healthcare POS Plan.

Lisa