Search found 139 matches

Go to advanced search

by Maddielolo
Tue May 29, 2018 11:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Will they operate in more than one spot affected. Im so sad
Replies: 8
Views: 632

Re: Will they operate in more than one spot affected. Im so sad

Firstly, you really need an opinion at a top cancer hospital if possible. Where do you live? Second, there are people who have had “inoperable” liver mets at diagnosis that are cancer free years later. Not easy and need some luck, but possible. Try not to get too far ahead of yourself. Get the diagn...
by Maddielolo
Tue Dec 12, 2017 12:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mass in cecum / liver mets
Replies: 22
Views: 2055

Re: Mass in cecum / liver mets

DeMatteo is one of the best period. Glad he is involved. Whoever the oncologist, maybe you could see Kemeny at MSKCC so she manages hai chemo, and have Penn onc manage systemic chemo.
by Maddielolo
Fri Nov 03, 2017 11:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I did it!
Replies: 8
Views: 846

Re: I did it!

SG, Very glad to hear that you are currently cancer free. Here’s to staying there! Second, you did not cure cancer naturally. You were stage II and rightly had surgery to remove your primary tumor. You had your colon cancer surgically removed, not cured naturally. As the American Cancer Association ...
by Maddielolo
Wed Oct 04, 2017 11:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stella (vilca11) went home (more than a month ago)
Replies: 21
Views: 2945

Re: Stella (vilca11) went home (more than a month ago)

Spitfire indeed, and a great force throughout. Open minded, fierce, and independent. May she be pain free and happy in her next adventure. Love all around...
by Maddielolo
Fri Sep 15, 2017 11:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI pump treatment in the US besides MSKCC?
Replies: 9
Views: 1255

Re: HAI pump treatment in the US besides MSKCC?

You want someone to implant it with experience. MSKCC, Fong at City of Hope, and Mayo at OHSU seem to be current options.
by Maddielolo
Thu Jul 27, 2017 12:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coming to the end of the journey....
Replies: 12
Views: 2455

Re: Coming to the end of the journey....

Will be thinking of you, your wife, and her family and friends in the coming days. Clearly you both have been fighting for many years, and deserve peace in the days ahead.
by Maddielolo
Wed May 24, 2017 11:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DeMatteo Leaving MSK
Replies: 3
Views: 801

Re: DeMatteo Leaving MSK

Scratch that - heading to UPenn...
by Maddielolo
Wed May 24, 2017 11:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DeMatteo Leaving MSK
Replies: 3
Views: 801

Re: DeMatteo Leaving MSK

No, nothing yet - what did it say?
by Maddielolo
Thu Mar 16, 2017 1:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH / Trump Budget Proposal
Replies: 2
Views: 778

NIH / Trump Budget Proposal

Politics aside (I don't post about politics and don't want to here - this is not about the budget overall), I believe the current budget proposal re: NIH and overall science funding should be unacceptable to all, but especially all of us. Slashing NIH funding could have devastating effects to cancer...
by Maddielolo
Mon Mar 13, 2017 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Four months in , scared, confused and overwhelmed about how to proceed
Replies: 35
Views: 6623

Re: Four months in , scared, confused and overwhelmed about how to proceed

Hi Sarah. I agree w Julia re: HAI. I would contact Kemenys office, and see what they say. They may want to see the next CT scan to see burden outside (and in) liver. Otherwise, Maia has provided some good links. This is a good time to be looking while he's doing chemo, especially if you're seeing re...
by Maddielolo
Sun Mar 12, 2017 11:49 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Medical expenses - tax deduction question
Replies: 12
Views: 1856

Re: Medical expenses - tax deduction question

You may deduct $50/night per person (max 2 people). Not much... but something.
by Maddielolo
Sun Mar 12, 2017 4:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Fellow DK37 (Tom Marsilje) with Katie Couric on TV!
Replies: 9
Views: 1867

Re: Fellow DK37 (Tom Marsilje) with Katie Couric on TV!

Tom did a great job explaining his own experience and offering insights into others'. Wonderful to have such an advocate, one with the science and personal story. Well done Tom!
by Maddielolo
Wed Mar 08, 2017 3:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice/Insight Please - Wife Just Diagnosed
Replies: 27
Views: 3902

Re: Advice/Insight Please - Wife Just Diagnosed

Re: Kemeny that is not accurate. She will see you during chemo to evaluate and potentially schedule surgery, but prefers to do the pump earlier than later always; she has data that suggests better outcomes the earlier one does the pump. So her ideal time to implant pump and resect primary is before ...
by Maddielolo
Thu Mar 02, 2017 12:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally some good news!
Replies: 37
Views: 4558

Re: Finally some good news!

That's a great sign, and happy to hear your feeling better. Hoping for a fantastic scan!
by Maddielolo
Fri Feb 10, 2017 12:39 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice/Insight Please - Wife Just Diagnosed
Replies: 27
Views: 3902

Re: Advice/Insight Please - Wife Just Diagnosed

Echoing others (go to Sloan & Kemeny given liver only disease) but understand your instinct to start folfox and stay local. Two things to consider. The sooner you start hai pump, the better success generally. Second, pretty much all other institutions don't have the surgeons and Kemeny that MSKC...

Go to advanced search