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by smudgesicle
Wed Sep 11, 2019 5:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Did anyone ever decide to go back to ileostomy after reversal
Replies: 34
Views: 6087

Re: Did anyone ever decide to go back to ileostomy after reversal

I opted for a permanent colostomy after 7 months of a nightmare reversal. I was in pain, incontinent, going 20+ times a day and getting no sleep. That was 5 years ago last week. It was the best decision I've ever made for myself. My quality of life is so much and I'm really not limited in any way.
by smudgesicle
Wed Mar 25, 2015 1:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Calling all aussies
Replies: 11
Views: 1568

Re: Calling all aussies

Bit late on this one. But yep David has been mentioned a lot in Aussie cancer forums and the media, and I know some others that have investigated HIPEC at Peter Mac so they would probably be your best places to start some research.
by smudgesicle
Wed Mar 25, 2015 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lowest CEA ever
Replies: 19
Views: 1685

Re: Lowest CEA ever

Woo Hoo! That's great news!
by smudgesicle
Wed Feb 18, 2015 4:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: thinking of you, BELLE
Replies: 153
Views: 18432

Re: thinking of you, BELLE

I have been MIA from here for quite awhile for a myriad of reasons, but one is definitely that I was afraid to hear this news. I pray hospice is a peaceful, loving time for you spent with the people who you love best. You have been a great comfort to me since I was dx and I hope these messages are a...
by smudgesicle
Thu Oct 16, 2014 3:58 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leaky Bag Issues! Argh!
Replies: 22
Views: 2551

Re: Leaky Bag Issues! Argh!

So my *touch wood* didn't work because I had my first blow out yesterday! Driving to a function of all times. Thank goodness it was easily contained. I think it was due to pancaking. I had mac and cheese for lunch yesterday and I was wearing fitted pants to the function. So thick, thick output combi...
by smudgesicle
Mon Oct 13, 2014 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Leaky Bag Issues! Argh!
Replies: 22
Views: 2551

Re: Leaky Bag Issues! Argh!

If you haven't already, you might want to post on the United Ostomy Association boards at uoaa.org. Lots of ostomy specific advice there! I had an oval stoma with my ileostomy and had quite a few leaks when I was using a one-piece bags. Not sure if that was the reason for those leaks but it might ha...
by smudgesicle
Mon Oct 06, 2014 1:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gratitude Thread
Replies: 120
Views: 17099

Re: Gratitude Thread

I've been away a little while, but what a great thread! I'm so, so grateful for my colostomy. It has truly given me my life back. In the last week I've been out for dinner (twice!), something I hadn't been able to do since my reversal in January.
by smudgesicle
Mon Oct 06, 2014 12:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Marco has passed
Replies: 64
Views: 10578

Re: Marco has passed

I have been away for a little while and it's so sad to return to this news. RIP Marco, you were a beautiful soul here on earth and so you will be in the stars.
by smudgesicle
Tue Sep 23, 2014 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: GWEN GWEN GWEN ---->>>>> Update Oct 6
Replies: 133
Views: 20598

Re: GWEN GWEN GWEN - Update Sept 23

Sending hugs and loving thoughts to Gwen and her family.
by smudgesicle
Mon Sep 22, 2014 6:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Where are you going, my little one?.....
Replies: 88
Views: 9827

Re: Where are you going, my little one?.....

RIP Katie. Thinking of you and your family.
by smudgesicle
Fri Sep 19, 2014 6:33 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port out, take down done!
Replies: 25
Views: 2323

Re: Port out, take down done!

What great news! And your new pic is divine!
by smudgesicle
Wed Sep 17, 2014 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Big day tomorrow...
Replies: 5
Views: 1155

Re: Big day tomorrow...

Congratulations. Fabulous news!
by smudgesicle
Wed Sep 17, 2014 9:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ugh. In hospital with pevic abscess - updated 9/21/14
Replies: 50
Views: 4925

Re: Ugh. In hospital with pevic abscess

I pretty much had the same experience as CRguy after my original resection. Although I went back to theatre to have a washout. Took another week and some antibiotics to heal up. Hoping for the same for you!
by smudgesicle
Thu Sep 11, 2014 7:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: News...Some bad, some good.
Replies: 60
Views: 6218

Re: News...Some bad, some good.

What beautiful newlyweds. It's lovely to see Katie enjoying her day.
by smudgesicle
Tue Sep 09, 2014 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: fertility questions
Replies: 4
Views: 931

Re: fertility questions

That's a good point Elise. I'm definitely not fertile thanks to radiation but we stored some embryos quickly after my diagnosis. I now have to work out if the radiation fried my uterus too, but we are open to surrogacy. Plus, after 4 abdominal surgeries and a stoma I'm not sure if I'm prepared to pu...

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