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by Mattie
Mon Aug 14, 2017 9:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: update on me
Replies: 8
Views: 940

update on me

Just back from the Onc. with news of my latest scan. Still in remission. Stage IV In the battle 7 years 4 mos.

Dropping xeloda and moving to avastin only for now. NED since Last fall.
by Mattie
Wed Jan 11, 2017 1:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to NED again!
Replies: 17
Views: 1464

Back to NED again!

All, Just wanted to share some good news. I am stage IVb and experienced a recurrence almost a year ago. After xeloda/avastin for nearly a year, I"m back to NED again. This treatment is working, so I'm going to stay on it for awhile longer. Hoping to get a chemo break soon. I'm coming up on my ...
by Mattie
Sun Nov 13, 2016 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just checking in.
Replies: 3
Views: 452

Just checking in.

6.5 years out. They think the rib thing is damage from SBRT. Latest scan shows a fracture. Going to wait and see. It "might" not be cancer but can't know for sure. Still doing Xeloda and Avastin. It's keeping everything under control so far. Side effects minimal. Stiff, Tired, Sore feet. G...
by Mattie
Mon Sep 26, 2016 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo Lifer
Replies: 12
Views: 1104

Re: Chemo Lifer

Hi Marejenny, I'm also a 4B. I'm coming up on 6.5 years, with no end in sight yet.:-) Info in my signature below. I was in remission for a long time after my first round of Chemo. I've been aggressive with Radiation and surgery when just one or two things popped up. This year 5 thingy's popped, so I...
by Mattie
Fri Sep 16, 2016 4:17 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just diagnosed and trying to keep from freaking out
Replies: 19
Views: 1915

Re: Just diagnosed and trying to keep from freaking out

Hang in there Lgoulet. I know it's shocking and hard at first. Stage IV is a scary diagnosis, but it doesn't mean the end is looming either. ONce you get in and start doing something about the disease, you will feel better. I worked throughout all my chemo (and I'm still working) with no problems. E...
by Mattie
Fri Jul 29, 2016 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Trial -avastin only
Replies: 0
Views: 1086

Maintenance Trial -avastin only

I heard from my onc that there is a trial going on right now to test avastin only as a maint therapy. I had a few things pop up earlier this year and started Xeloda and Avastin in March, all six mets identified are shrinking on the treatment based on my last scan.... My onc said he is waiting for th...
by Mattie
Wed May 25, 2016 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ned from Hipec ends here
Replies: 33
Views: 3133

Re: Ned from Hipec ends here

I'm sorry about your recurrence.
by Mattie
Wed Apr 27, 2016 6:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV long term survivors here?
Replies: 37
Views: 4340

Re: Any Stage IV long term survivors here?

6 years for me. Still doing okay.
by Mattie
Mon Apr 04, 2016 11:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 year mark
Replies: 4
Views: 501

6 year mark

Just checking in on the board. Icesk8tr passing has shook me to the my core. so sad, we were both diagnosed around the same time. I'm out of remission, five lymph things starting to glow, possible bone met on 8th rib. Going back to xeloda and avastin to see if it will control it. We will see. feelin...
by Mattie
Sat Mar 12, 2016 7:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating Seven Years
Replies: 65
Views: 4475

Re: Celebrating Seven Years

Love reading your story!! May there be many more wood cuttings and fewer chemo rounds in your future.

Congrats
by Mattie
Wed Jan 27, 2016 12:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Survival stories
Replies: 31
Views: 4224

Re: Stage 4 Survival stories

Hi Felicity,

I'm coming up on six years. I have not had Chemo since 2011. I've been NED for 1 year. See signature below. It gets easier the further out you get......best of luck to you.
by Mattie
Thu Dec 31, 2015 11:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC with one small liver met, low CEA
Replies: 21
Views: 2337

Re: CRC with one small liver met, low CEA

Hi.... Your husband's experience sounds close to mine. I also had one liver met. It disappeared with chemo after just a couple of months. It came back 3 years later and I had a resection. I had another small met pop up about a year later, and we zapped it with sbrt. I have been NED for about a year ...
by Mattie
Fri Nov 06, 2015 12:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone else ever dealt with this?
Replies: 1
Views: 481

Anyone else ever dealt with this?

I've been having major pain on the right side under my ribs. It is very non specific and seems to move around alot. At times the pain could also be felt when I lie down on my back. Laying on the area, leaning over to tie my shoes, coughing, would also cause pain. I did not think this was cancer rela...
by Mattie
Mon Nov 02, 2015 10:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Decision time: SBRT or ablation to lung mets?
Replies: 6
Views: 537

Re: Decision time: SBRT or ablation to lung mets?

I had good results with SBRT. three easy 10 minute treatments and I was done. Nothing has come back in the treated areas. Good luck.
by Mattie
Fri Oct 23, 2015 7:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How good is this good news?
Replies: 20
Views: 2946

Re: How good is this good news?

Sounds like you are responding well! That is exactly what you want!

My response was also strong to chemo, and I haven't had to go back on it for 4 years now. It really beat back the cancer in my nodes. Although I'm not NED, the cancer in nodes is stable.

Good luck to you.

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