Search found 66 matches

Go to advanced search

by Mattie
Fri Nov 29, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 1841

Re: 10 Years and Counting

Nice to see your post Ski.....from another oldie still hanging in.....:-)
by Mattie
Fri Apr 19, 2019 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1781

Re: Anyone Managing Stage IV with Avastin Only?

Thank you all for your posts. I appreciated the different sides presented to my question. I am out here on the tail of that curve and looking for others. Would love to join Betsydoglover--drop the Avastin and have 14 more years. I think in my case it will be unlikely....but can't imagine doing avast...
by Mattie
Fri Apr 19, 2019 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1781

Re: Anyone Managing Stage IV with Avastin Only?

One of the problems that individual mCRC survivors have is the difficulty of their oncologists to lift the hood, so to speak, to work an individual's problems, and then reconcile these treatment actions with rather crude statistical recommendations often meted out today. A lot of veterans here know...
by Mattie
Fri Apr 19, 2019 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1781

Re: Anyone Managing Stage IV with Avastin Only?

Hi Mattie, My husband is on Xeloda plus Avanstin maintenance for about two years. We are also so scared for the recurrence if quit or drop one of them. Can you share why you dropped Xeloda? And how often you get Avanstin infusion currently? My husband gets Avanstin every 3 weeks now but his oncolog...
by Mattie
Sun Apr 14, 2019 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1781

Re: Anyone Managing Stage IV with Avastin Only?

Thanks Betsy,

Onc tells me it will come back if I quit. Just starting to get wierd side-effects, like choking. Worried about long term use. Agree it is impossible to tell if it is working, but the longest I've gone without a recurrance is about 3 years.

Thanks for your response.
by Mattie
Sun Apr 14, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 1781

Anyone Managing Stage IV with Avastin Only?

Hi all,

I've been on maintenance Avastin for awhile. Is anyone else doing it? It seems to control my disease, but wondering if anyone stopped and what the outcome was?
by Mattie
Mon Feb 18, 2019 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 31
Views: 11289

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

Hi, I'm starting my 10th year. I'm NED at the present time and doing Avastin only. It seems to be controlling it. My last recurrence was in March 2016. My oldest was 10 and my twins were 7 when I was Dx. It can happen. I still work and live a pretty "normal" life. I've always been pretty a...
by Mattie
Sun Jan 06, 2019 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checking in to say Hello. Stage IV still NED
Replies: 8
Views: 2484

Checking in to say Hello. Stage IV still NED

Hi all,

Happy new year. I don't post often, but happy to say I'll be starting year #10 NED. Still doing avastin only (since I dropped xeloda 9/17).

I hope everyone has a great year and praying for new breakthroughs for us all this year.
by Mattie
Sat Nov 10, 2018 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Input & comments sought on stage IV treatment plan
Replies: 16
Views: 1951

Re: Input & comments sought on stage IV treatment plan

The only thing I can share is that when I did chemo, my liver met completely disappeared and did not come back for 3 years. I had my liver resection when it came back. Good luck. Having a plan always feels so good. I wish you the best!
by Mattie
Sat Nov 10, 2018 3:19 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Xeloda + Avastin Maintenance for NED people
Replies: 7
Views: 1114

Re: Xeloda + Avastin Maintenance for NED people

I went back to Xeloda+Avastin in March of 2016 when I had a recurrence in my abdomen. I was NED by Dec 2016. I kept on it until Sept of 2017 and then dropped the Xeloda. I'm still doing avastin only every three weeks without much trouble. I've been NED for almost 2 years. If it comes back, will prob...
by Mattie
Sat Oct 13, 2018 1:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 54
Views: 10613

Re: Stage 4 to NED- Please tell us

Mattie, what are your thoughts on the FOLFOX vs. Xeloda. At my last appointment, my onc offered both as viable options but that FOLFOX had more data behind it overall because it's been around longer. He also implied that Xeloda might have more side effects for caucasians (?). With that data I went ...
by Mattie
Thu Oct 11, 2018 9:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 to NED- Please tell us
Replies: 54
Views: 10613

Re: Stage 4 to NED- Please tell us

Hi.

Don't despair. I know it's scary...been there. 8.5 years later I am still here. I am in and out of NED. My journey below. My life has not changed much except for treatment every three weeks. I'm still living, working and managing my disease.

I wish you and your hubby the best.

Sue
by Mattie
Thu May 24, 2018 11:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 8 years later
Replies: 8
Views: 1196

8 years later

Hi Colon Club.

Just dropping in to let everyone know my scan results came in. Still NED. Continuing avastin only. Peace to all.
by Mattie
Sat Apr 21, 2018 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone have a Dye Study on their Port?
Replies: 1
Views: 628

Anyone have a Dye Study on their Port?

For the last couple of treatments, my port has not been returning anything. They've been using cathflow to try and clean things out, but it's not working. Hoping I don't have to deal with replacing....avastin seems to be going in okay.... Appreciate hearing about any experiences and outcomes... Than...
by Mattie
Thu Mar 01, 2018 11:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any Stage IV currently in NEDville? Please share any advice or tips? P
Replies: 72
Views: 20646

Re: Any Stage IV currently in NEDville? Please share any advice or tips? P

Hi There. I don't really have any tips. I have had recurrences but have been able to beat them back down each time. My signature has my history. It doesn't really get easier, although I try to convince myself otherwise. Each time I have a recurrence I think it's the beginning of the end....but then ...

Go to advanced search