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by Mattie
Mon Jun 01, 2020 8:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 18
Views: 853

Re: Celebrating 10 years since my Stage IV DX!!!!!

I did the Folfox/Avastin only when I was first diagnosed---I think about six months, then went to Xeloda right after. Agree that Xeloda much easier, and I believe it is exactly the same as 5FU. I always ask my onc what he would do if he were me. I'd did ask to drop the xeloda after over a year of NE...
by Mattie
Sat May 30, 2020 6:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 18
Views: 853

Re: Celebrating 10 years since my Stage IV DX!!!!!

Hi there. Since my last recurrence in March 2016, my Onc has suggested I need to stay on something because "it will definitely come back". Xeloda seems to kick Cancer ass every time I take it. When it comes back, I'll probably add that back in first to see if it still works. I dropped to A...
by Mattie
Mon May 25, 2020 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time
Replies: 8
Views: 698

Re: Time

Stage I is curable.
by Mattie
Sun May 24, 2020 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 18
Views: 853

Re: Celebrating 10 years since my Stage IV DX!!!!!

Hi Lovelife,

thank you for your note. I had mets in my liver and lymph nodes in my abdomen.

When first Diagnosed 13 of 16 lymph nodes came back positive for cancer.

Best,
Sue
by Mattie
Sun May 24, 2020 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating 10 years since my Stage IV DX!!!!!
Replies: 18
Views: 853

Celebrating 10 years since my Stage IV DX!!!!!

Hi all, JUST SO HAPPY With these results!!!! CT SCAN OF THE CHEST, ABDOMEN AND PELVIS with IV contrast 5/14/2020 9:10 AM HISTORY: Colon cancer, follow-up TECHNIQUE: CT examination of the chest, abdomen, and pelvis was performed following the intravenous administration of 125 mL Isovue-370. Sagittal,...
by Mattie
Thu Dec 26, 2019 12:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thinking this might be the start of another recurrence
Replies: 1
Views: 742

Thinking this might be the start of another recurrence

Hi all,

On Xmas eve, got my latest scan results. It was a good result, considering my history. the only new finding was:

"Mild wall thickening at anastomosis"

I'm thinking the only thing that would cause this is the start of a new met. Anyone have any insights?

Thanks,
Sue
by Mattie
Fri Nov 29, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Years and Counting
Replies: 30
Views: 4260

Re: 10 Years and Counting

Nice to see your post Ski.....from another oldie still hanging in.....:-)
by Mattie
Fri Apr 19, 2019 9:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 2214

Re: Anyone Managing Stage IV with Avastin Only?

Thank you all for your posts. I appreciated the different sides presented to my question. I am out here on the tail of that curve and looking for others. Would love to join Betsydoglover--drop the Avastin and have 14 more years. I think in my case it will be unlikely....but can't imagine doing avast...
by Mattie
Fri Apr 19, 2019 9:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 2214

Re: Anyone Managing Stage IV with Avastin Only?

One of the problems that individual mCRC survivors have is the difficulty of their oncologists to lift the hood, so to speak, to work an individual's problems, and then reconcile these treatment actions with rather crude statistical recommendations often meted out today. A lot of veterans here know...
by Mattie
Fri Apr 19, 2019 9:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 2214

Re: Anyone Managing Stage IV with Avastin Only?

Hi Mattie, My husband is on Xeloda plus Avanstin maintenance for about two years. We are also so scared for the recurrence if quit or drop one of them. Can you share why you dropped Xeloda? And how often you get Avanstin infusion currently? My husband gets Avanstin every 3 weeks now but his oncolog...
by Mattie
Sun Apr 14, 2019 2:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 2214

Re: Anyone Managing Stage IV with Avastin Only?

Thanks Betsy,

Onc tells me it will come back if I quit. Just starting to get wierd side-effects, like choking. Worried about long term use. Agree it is impossible to tell if it is working, but the longest I've gone without a recurrance is about 3 years.

Thanks for your response.
by Mattie
Sun Apr 14, 2019 11:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone Managing Stage IV with Avastin Only?
Replies: 17
Views: 2214

Anyone Managing Stage IV with Avastin Only?

Hi all,

I've been on maintenance Avastin for awhile. Is anyone else doing it? It seems to control my disease, but wondering if anyone stopped and what the outcome was?
by Mattie
Mon Feb 18, 2019 6:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.
Replies: 31
Views: 12037

Re: Newly diagnosed stage 4 colon cancer at 42. Looking for hope and inspiration.

Hi, I'm starting my 10th year. I'm NED at the present time and doing Avastin only. It seems to be controlling it. My last recurrence was in March 2016. My oldest was 10 and my twins were 7 when I was Dx. It can happen. I still work and live a pretty "normal" life. I've always been pretty a...
by Mattie
Sun Jan 06, 2019 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Checking in to say Hello. Stage IV still NED
Replies: 8
Views: 2662

Checking in to say Hello. Stage IV still NED

Hi all,

Happy new year. I don't post often, but happy to say I'll be starting year #10 NED. Still doing avastin only (since I dropped xeloda 9/17).

I hope everyone has a great year and praying for new breakthroughs for us all this year.
by Mattie
Sat Nov 10, 2018 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Input & comments sought on stage IV treatment plan
Replies: 16
Views: 2292

Re: Input & comments sought on stage IV treatment plan

The only thing I can share is that when I did chemo, my liver met completely disappeared and did not come back for 3 years. I had my liver resection when it came back. Good luck. Having a plan always feels so good. I wish you the best!

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