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by muskokamike
Sun Jun 17, 2018 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 8
Views: 305

Re: A cautionary tale

I have told this story on here before When I was dx four years ago a work colleague that I had dealings with was also dx with the exact same cancer. We saw each other weekly during the summers since he was in the marine business. I had my surgeries and was doing well but he refused surgery due to th...
by muskokamike
Sun May 27, 2018 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly diagnosed stage 2a @ 38
Replies: 8
Views: 426

Re: newly diagnosed stage 2a @ 38

For me there was no debating even with a pcr. I did the chemo. It was my choice also and I simply asked my onc what she would do if she was me. Due to the fact I was also a T3 and had one suspicious node which she doubted was cancerous (we will never know) I wanted to be treated as a stage III. I di...
by muskokamike
Sun Apr 29, 2018 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW - From New Zealand - Great folk here
Replies: 13
Views: 1242

Re: NEW - From New Zealand - Great folk here

You can't get something for nothing. My GI doctor told me that average Canadian hospitals are better than average US hospitals. At the same time best US hospitals are better than best Canadian hospitals. So people who have access to MD Andersen, MSK, Mayo, Cleveland, Dana-Farber, UCLA etc. are gett...
by muskokamike
Thu Apr 26, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW - From New Zealand - Great folk here
Replies: 13
Views: 1242

Re: NEW - From New Zealand - Great folk here

so you have stumbled upon, dare I say, a common wealth :shock: :mrgreen: of info and good folks now that's good Sounds like NZ folks are treated just as well as us Canucks. Apparently I have been told my journey will be close to a half million bucks once I am done next year. My biggest expense to d...
by muskokamike
Sat Mar 31, 2018 10:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally figured out why I got Colon Cancer
Replies: 5
Views: 1162

Finally figured out why I got Colon Cancer

So how does a guy who does not smoke, maybe drinks one beer a year, who cycles over a thousand miles a summer and plays hockey in the winter get diagnosed with colorectal cancer? How does a guy with absolutely no family history of cancer get to hear those three dreaded words “you have cancer”? Well ...
by muskokamike
Thu Mar 29, 2018 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pressuer
Replies: 7
Views: 837

Re: Rectal pressuer

Double post...DELETED
by muskokamike
Thu Mar 29, 2018 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pressuer
Replies: 7
Views: 837

Re: Rectal pressuer

"My understanding is that this is a Colorectal Cancer board and it doesn't seem like you had cancer. If I'm wrong, then I'm sure that someone will correct me." You are wrong. A person that comes here for any colon related issues should be given the courtesy of a response and a redirect to ...
by muskokamike
Mon Mar 26, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member seeking support
Replies: 19
Views: 2289

Re: New member seeking support

Trevor Your journey is just beginning. You have come to the right place, I learned more here than from anywhere else. Take a deep breath and take one day at a time. There will be bad days and hopefully more good days. My number one advice is stay away from Dr Google. I had myself dead and buried fiv...
by muskokamike
Wed Mar 07, 2018 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can't believe it's been 4 years
Replies: 7
Views: 966

Re: Can't believe it's been 4 years

Thanx everyone for the replies. It is with mixed feelings that I post my good news story because I know for many warriors the journey just continues to get harder. When I was starting out it was stories like mine that I would search for and read over and over. I hope that some here can find their ow...
by muskokamike
Sat Mar 03, 2018 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 colon Cancer, CEA levels, CT scans
Replies: 13
Views: 1354

Re: Stage 1 colon Cancer, CEA levels, CT scans

If you look at my signature you can see my ongoing levels. They fluctuate but always in the normal range 0-4. You will see a level of 1.4 and then a increase to 2.9. This was in the span of 15 months. My onc bumped up the scan and it was good. She was just being cautious but was not to overly concer...
by muskokamike
Wed Feb 28, 2018 10:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can't believe it's been 4 years
Replies: 7
Views: 966

Can't believe it's been 4 years

Four years ago today I was two days post op from LAR open surgery. My gut looked like the zipper of my hockey bag, I had a temp ileostomy that just kept filling with nasty green stuff. I had not eaten for three days and would go another five without food. Jello is not food. In three days I would be ...
by muskokamike
Sat Feb 10, 2018 6:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOBT
Replies: 6
Views: 741

Re: FOBT

My 2 cents I had a negative FOBT and a year later was found to have a tennis ball size tumor which my surgeon said would of been there when I did the FOBT. My surgeon told me that he could send 100 patients with actual colon cancer to do the FOBT and 40 would test positive. The test is not very accu...
by muskokamike
Fri Jan 19, 2018 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tumor gone, cea level of 1
Replies: 28
Views: 1707

Re: Tumor gone, cea level of 1

Yes You are stage III which means you have node involvement. Do yourself a favour have the surgery and do the mop up chemo and put that final nail in the cancer coffin. I wanted to be able to say I did everything possible in case I had a recurrence there would be no 'what if's' I also had no tumor a...
by muskokamike
Thu Nov 16, 2017 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many diagnosed have family with history?
Replies: 7
Views: 597

Re: How many diagnosed have family with history?

You are due for a scope now. Do not put it off. I have been told by doctors that they will usually start scopes on sons and daughters of CRC parents 10 years prior to when parent was dx. I was dx at 53 and my daughter has been told they will start at 40 with her. I would prefer earlier for her to ge...
by muskokamike
Wed Nov 15, 2017 1:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tom marsilje
Replies: 40
Views: 3780

Re: Tom marsilje

Tom always had 'the eye of the tiger' in his battle. I always read his blog and know that he literally helped thousands battle cancer. He will be missed and my condolences to his wife and two daughters.
As a CRC advocate he will be hard to replace.
RIP Tom :cry:

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