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by muskokamike
Mon Aug 06, 2018 6:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port removed
Replies: 7
Views: 227

Re: Port removed

Hey Snoop 5 years this Halloween since dx and not a week goes by without thinking about recurrence. The slightest tweak or ache always triggers the thought. The slight raises in my CEA triggers the thoughts. I will say that I am way better than I was in the early stages of my journey when recurrence...
by muskokamike
Mon Jul 23, 2018 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to board: Rectal Cancer 2a
Replies: 7
Views: 310

Re: New to board: Rectal Cancer 2a

You're new. If you've been here as long as I have (four years) you would've read many post from members who did not do the mop up chemo and regretted it. I was in the same stage as you were (see my sig) and you said you had a few high risk factors. Seriously this is a NO BRAINER!!! Put the final nai...
by muskokamike
Sat Jul 14, 2018 9:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it possible for a rectal polyp to grow to 10cm aggressive T4 advanced tumour in 3 years?
Replies: 16
Views: 706

Re: Is it possible for a rectal polyp to grow to 10cm aggressive T4 advanced tumour in 3 years?

He highlighted signs of diverticulitis but did not require treatment. He also mentioned a small cluster of [I'm sure he said polyps] about a cm or so in size but there was nothing to be concerned about but it would be advised to check again in 10>15 years. Hope that dr has a great malpractice insur...
by muskokamike
Mon Jun 25, 2018 7:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 31
Views: 1658

Re: Better news, Neuropathy & questions

May I ask, did you ever have neuropathy in your hands or was it only in your feet? Did you take anything for it--prescribed or OTC? May your good reports continue I had very minor tingling in my hands while on treatment and maybe a couple months afterward but nothing major. I never took anything fo...
by muskokamike
Sun Jun 24, 2018 2:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Better news, Neuropathy & questions
Replies: 31
Views: 1658

Re: Better news, Neuropathy & questions

On July 4th it will mark four years since I had my last FOLFOX treatment which was #8. I still have lingering neuropathy that I most likely will have for the rest of my life. I have never experienced pain just a clumsy numbness in my feet. Hands are good and the feet get worse at night. Neuropathy h...
by muskokamike
Sun Jun 17, 2018 8:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 15
Views: 1395

Re: A cautionary tale

I have told this story on here before When I was dx four years ago a work colleague that I had dealings with was also dx with the exact same cancer. We saw each other weekly during the summers since he was in the marine business. I had my surgeries and was doing well but he refused surgery due to th...
by muskokamike
Sun May 27, 2018 7:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: newly diagnosed stage 2a @ 38
Replies: 8
Views: 541

Re: newly diagnosed stage 2a @ 38

For me there was no debating even with a pcr. I did the chemo. It was my choice also and I simply asked my onc what she would do if she was me. Due to the fact I was also a T3 and had one suspicious node which she doubted was cancerous (we will never know) I wanted to be treated as a stage III. I di...
by muskokamike
Sun Apr 29, 2018 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW - From New Zealand - Great folk here
Replies: 13
Views: 1354

Re: NEW - From New Zealand - Great folk here

You can't get something for nothing. My GI doctor told me that average Canadian hospitals are better than average US hospitals. At the same time best US hospitals are better than best Canadian hospitals. So people who have access to MD Andersen, MSK, Mayo, Cleveland, Dana-Farber, UCLA etc. are gett...
by muskokamike
Thu Apr 26, 2018 7:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW - From New Zealand - Great folk here
Replies: 13
Views: 1354

Re: NEW - From New Zealand - Great folk here

so you have stumbled upon, dare I say, a common wealth :shock: :mrgreen: of info and good folks now that's good Sounds like NZ folks are treated just as well as us Canucks. Apparently I have been told my journey will be close to a half million bucks once I am done next year. My biggest expense to d...
by muskokamike
Sat Mar 31, 2018 10:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Finally figured out why I got Colon Cancer
Replies: 5
Views: 1272

Finally figured out why I got Colon Cancer

So how does a guy who does not smoke, maybe drinks one beer a year, who cycles over a thousand miles a summer and plays hockey in the winter get diagnosed with colorectal cancer? How does a guy with absolutely no family history of cancer get to hear those three dreaded words “you have cancer”? Well ...
by muskokamike
Thu Mar 29, 2018 8:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pressuer
Replies: 7
Views: 901

Re: Rectal pressuer

Double post...DELETED
by muskokamike
Thu Mar 29, 2018 8:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal pressuer
Replies: 7
Views: 901

Re: Rectal pressuer

"My understanding is that this is a Colorectal Cancer board and it doesn't seem like you had cancer. If I'm wrong, then I'm sure that someone will correct me." You are wrong. A person that comes here for any colon related issues should be given the courtesy of a response and a redirect to ...
by muskokamike
Mon Mar 26, 2018 5:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New member seeking support
Replies: 19
Views: 2599

Re: New member seeking support

Trevor Your journey is just beginning. You have come to the right place, I learned more here than from anywhere else. Take a deep breath and take one day at a time. There will be bad days and hopefully more good days. My number one advice is stay away from Dr Google. I had myself dead and buried fiv...
by muskokamike
Wed Mar 07, 2018 6:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Can't believe it's been 4 years
Replies: 7
Views: 1033

Re: Can't believe it's been 4 years

Thanx everyone for the replies. It is with mixed feelings that I post my good news story because I know for many warriors the journey just continues to get harder. When I was starting out it was stories like mine that I would search for and read over and over. I hope that some here can find their ow...
by muskokamike
Sat Mar 03, 2018 6:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 colon Cancer, CEA levels, CT scans
Replies: 13
Views: 1481

Re: Stage 1 colon Cancer, CEA levels, CT scans

If you look at my signature you can see my ongoing levels. They fluctuate but always in the normal range 0-4. You will see a level of 1.4 and then a increase to 2.9. This was in the span of 15 months. My onc bumped up the scan and it was good. She was just being cautious but was not to overly concer...

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