I'm curious if anyone here has experience with Li-Fraumeni Syndrome (LFS)? I've seen it mentioned here and there, but can't recall if anyone has direct experience with the genetic defect. If so, I would be grateful for any insight (i.e., do you see a specific specialist, are your treatments and foll...

Please know that you and your husband are in my thoughts.

From the beginning my surgeon who reconnected me said it was a very low connect and could be challenging for me. She mentioned her patients who'd done the enemas so they could just get on with it. I guess I've been open to them since that time. To me it's better than an ostomy. My connect is very l...

Kenny - I think that question should be answered by your doctor. My colorectal surgeon wanted me to give it one year before I started incorporating a daily enema (I gave it 11 months). He never expressly said why, other than noting that it takes about a year for things to settle and that most of his...

Cherie wrote:I can't stop going, how does the enema work

Cherie -

Click on the link I provided above. On the second page of that thread, about halfway down, I describe how I administer an enema each morning. (I would rewrite the process here, but am at work and don't have a lot of time.)

Cherie, have you thought about trying the "daily enema"? Not for everyone but it works for some of us. Sorry you're having a hard time. I know the Bowel issues can literally mess with quality of life. I started incorporating a daily enema. I gave it one year after my reversal surgery for ...

I was diagnosed at the age of 30 and definitely did not fit into the "fat-any-lazy" mold. I was an active runner and cyclist, often doing half marathons and metric century rides (and still am, although I now do more cycling than running). There is a history cancer in my family (though not ...

My oncologist also recommended moderate red wine consumption during chemo. His theory was that a glass or two of fermented grape juice wasn't going to do anything that poisoning my body with FOLFOX already wasn't. If it made me feel better, then go for it (in moderation, of course). Since diagnosis,...

I echo tammylayne's comment about a daily enema. Before I incorporated the routine, I would be fine for most of the day, but just as I got into bed, it was as if my body relaxed and the floodgates opened. I would have clustering episodes that often lasted until 4 a.m. Needless to say, it affected bo...

Rest in peace, Marco. The way you fought this disease - with strength, dignity, and candor - inspired me. You'll be missed.

Marco -

I have been following your posts and am simply in awe of your strength and courage. Please know that you are in my thoughts.

Kathleen -

I am so sorry for your loss. I have been following your posts and your husband's journey since I started lurking here in August 2010. I admired the bond that the two of you shared and your husband's strength inspired me. You were a wonderful caretaker and I will keep you in my thoughts.

Sorry to hear about your diagnosis. You're in my thoughts and I'm pulling for you. Please come here for support.

I was a stage 3c with a T4 (I'm not sure what the "b" in your signature stands for). Diagnosed in August 2010 and did what I believe is the standard treatment for stage 3c rectal cancer - chemoradiation, a few rounds of FOLFOX, LAR and temp ileo, more FOLFOX with Avastin, and the ileo reve...

My chemo treatments ended in May 2011. I got scanned every three months for the first year; every four months for the second year; and every six months for the third year (CEA tests every 3 months when I moved to the 6-month plan). This past April was my second scan at the six-month interval. If tha...