I'm very sorry to share that Regonivo did not work for my father per his latest CT scans. He is currently too weak to try any other treatments. After consulting with our doctor, we made the decision to start hospice today. My dad gave it his all, and we are very grateful to the medical team who care...
Thank you for this post. It’s encouraging to hear that this regimen is more tolerable than FOLFOX or FOLFIRI. I’m helping to track a number of patients responses to this regimen for the MSS Facebook group. Hopefully you won’t mind sharing future updates on efficacy and side effects so that I can in...
My dad started Stivarga and Opdivo on July 19. He takes 2 Stivarga pills (80mg) per day, and receives his Opdivo infusion once every 2 weeks. The infusion lasts about 30 minutes. After 3 weeks of Stivarga, he will take 1 week break, and then get back on Stivarga for 3 weeks, etc. The side effects so...
FYI, I’m reposting from the MSS Facebook group. There are also two trials one can join to test this combo. Pembrolizumab should be equivalent to nivolumab and there is a trial in Southern California and Florida. There is also a trial recruiting in Florida for reg + Opdivo. NCT03712943 (rego + nivol...
Thank you for starting this thread, Pyro70. Today, our oncologist recommended the Regorafenib (Stivarga) + Nivolumab (Opdivo) regimen for my dad. Our onc cited this study and informed us that he has several other patients who will start this regimen under his care. My dad will start this regimen in ...
Hi KatyK, It's been almost two years since my dad's right hemicolectomy. He had his cecum, appendix, and a big chunk of the large intestines removed. He eats the same stuff as he used to (moderate amount of everything — he hasn't cut out anything from his diet) and has regular bowel movements everyd...
Thank you for the info, Rob. Great to hear that you're happy with your decisions and results. That's all we want, too — to be comfortable with our decisions and not have any regrets later. Continued successes to you.
Thank you Andretexas, Stephen, and Rob for your comments. Very happy and encouraged to hear of your successes. Continued best wishes to all of you. My dad is currently at a large cancer center in California (City of Hope). So far, we’ve been extremely happy with all the doctors and nurses. I didn’t ...
Thank you Juliej and rp1954 for your replies. Much appreciated. Hmm, it seems that I've been away from these boards a little too long. I guess I got complacent while my dad was NED. I'm going to have to get up to speed on immunotherapy and Life Extension. I thought ADAPT was for folks only on mainte...