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by ForDad
Wed Oct 16, 2019 10:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 70
Views: 10581

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

I'm very sorry to share that Regonivo did not work for my father per his latest CT scans. He is currently too weak to try any other treatments. After consulting with our doctor, we made the decision to start hospice today. My dad gave it his all, and we are very grateful to the medical team who care...
by ForDad
Mon Aug 26, 2019 9:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 70
Views: 10581

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

simonseconddone wrote:My father has recently used this treatment. How much do you use nivolumab??


Dear simonseconddone,

I'm afraid I don't know the dosing amount for Nivolumab. I sent you a PM and email re: our oncologist.

Best wishes.
by ForDad
Sun Aug 11, 2019 11:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 70
Views: 10581

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

Thank you for this post. It’s encouraging to hear that this regimen is more tolerable than FOLFOX or FOLFIRI. I’m helping to track a number of patients responses to this regimen for the MSS Facebook group. Hopefully you won’t mind sharing future updates on efficacy and side effects so that I can in...
by ForDad
Wed Jul 31, 2019 6:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 70
Views: 10581

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

My dad started Stivarga and Opdivo on July 19. He takes 2 Stivarga pills (80mg) per day, and receives his Opdivo infusion once every 2 weeks. The infusion lasts about 30 minutes. After 3 weeks of Stivarga, he will take 1 week break, and then get back on Stivarga for 3 weeks, etc. The side effects so...
by ForDad
Fri Jul 05, 2019 11:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 70
Views: 10581

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

FYI, I’m reposting from the MSS Facebook group. There are also two trials one can join to test this combo. Pembrolizumab should be equivalent to nivolumab and there is a trial in Southern California and Florida. There is also a trial recruiting in Florida for reg + Opdivo. NCT03712943 (rego + nivol...
by ForDad
Fri Jul 05, 2019 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC
Replies: 70
Views: 10581

Re: Regorafenib + Nivolumab - Immunotherapy might work in MSS CRC

Thank you for starting this thread, Pyro70. Today, our oncologist recommended the Regorafenib (Stivarga) + Nivolumab (Opdivo) regimen for my dad. Our onc cited this study and informed us that he has several other patients who will start this regimen under his care. My dad will start this regimen in ...
by ForDad
Mon Mar 14, 2016 6:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating Seven Years
Replies: 65
Views: 7325

Re: Celebrating Seven Years

Many congrats on your 7 years, and those are some impressive pics. Here's to many more years of successful gardening!

Sue
by ForDad
Mon Mar 14, 2016 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on Mom, prayers needed...
Replies: 48
Views: 6570

Re: Update on Mom, prayers needed...

Dear Josh,
I'm so sorry to hear of your beloved mother's passing. What a beautiful photo of the two of you. Wishing you and your family peace.
Sue
by ForDad
Wed Feb 24, 2016 12:09 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My dearest husband is now in heaven
Replies: 36
Views: 6541

Re: My dearest husband is now in heaven

I'm very sorry to hear of your loss. Sincere condolences to your family.
by ForDad
Mon Feb 22, 2016 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice re: recurrence – multiple lung spots
Replies: 11
Views: 1994

Re: Seeking advice re: recurrence – multiple lung spots

Wow, Stephen, back at work so soon after your procedures! That's awesome. Continued NED to you.
by ForDad
Sun Feb 21, 2016 7:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Now on Hospice-How to Live While Dying????
Replies: 16
Views: 3426

Re: Now on Hospice-How to Live While Dying????

Cindie,
What an incredibly tough time this must be for you, your husband, and your sons. I just wanted to send you my best wishes.
Take care,
Sue
by ForDad
Sun Feb 21, 2016 7:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please share your right hemicolectomy experience
Replies: 20
Views: 11411

Re: Please share your right hemicolectomy experience

Hi KatyK, It's been almost two years since my dad's right hemicolectomy. He had his cecum, appendix, and a big chunk of the large intestines removed. He eats the same stuff as he used to (moderate amount of everything — he hasn't cut out anything from his diet) and has regular bowel movements everyd...
by ForDad
Sun Feb 21, 2016 7:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice re: recurrence – multiple lung spots
Replies: 11
Views: 1994

Re: Seeking advice re: recurrence – multiple lung spots

Thank you for the info, Rob. Great to hear that you're happy with your decisions and results. That's all we want, too — to be comfortable with our decisions and not have any regrets later. Continued successes to you.

Sue
by ForDad
Fri Feb 19, 2016 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice re: recurrence – multiple lung spots
Replies: 11
Views: 1994

Re: Seeking advice re: recurrence – multiple lung spots

Thank you Andretexas, Stephen, and Rob for your comments. Very happy and encouraged to hear of your successes. Continued best wishes to all of you. My dad is currently at a large cancer center in California (City of Hope). So far, we’ve been extremely happy with all the doctors and nurses. I didn’t ...
by ForDad
Fri Feb 19, 2016 1:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Seeking advice re: recurrence – multiple lung spots
Replies: 11
Views: 1994

Re: Seeking advice re: recurrence – multiple lung spots

Thank you Juliej and rp1954 for your replies. Much appreciated. Hmm, it seems that I've been away from these boards a little too long. I guess I got complacent while my dad was NED. I'm going to have to get up to speed on immunotherapy and Life Extension. I thought ADAPT was for folks only on mainte...

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