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by nobuttgirl
Tue Feb 28, 2017 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last day to submit On The Rise application!
Replies: 0
Views: 2207

Last day to submit On The Rise application!

Hey everybody today is the last day to submit your application to be a featured survivor for the 2018 On The Rise! Here's the link: https://colondar.wufoo.com/forms/mr9hjmb1qp6jin/ Being part of this project was a life changing experience for me and many others but you can't do it if you don't apply...
by nobuttgirl
Fri Feb 24, 2017 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Results – Need HIPEC recommendations
Replies: 7
Views: 1019

Re: CT Results – Need HIPEC recommendations

Both of my HIPEC surgeries were done by Dr. Herb Zeh in Pittsburgh, PA at UMPC.
by nobuttgirl
Mon May 02, 2016 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC recovery and extreme exhaustion
Replies: 4
Views: 559

Re: HIPEC recovery and extreme exhaustion

I had 2 HIPECs. They are tough. After the first one my new ileostomy leaked into the wound (they left open) I was septic. I couldn't walk anywhere even if I wanted. I was in the hospital for 4 month. When I came home I couldn't do anything for myself for a couple of months. I'm sorry you're feeling ...
by nobuttgirl
Mon Apr 04, 2016 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Blog Posts for the NEW YEAR !
Replies: 4
Views: 1601

Re: New Blog Posts for the NEW YEAR !

Thanks CRguy and O stoma mia for the encouraging words and blog boost!
by nobuttgirl
Sat Jul 25, 2015 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC
Replies: 11
Views: 1479

Re: HIPEC

I had my first HIPEC in 2005. I was in pretty bad shape...literally almost dead. I had tumors wrapped around my small intestines creating complete blockages. (whole colon was already removed) I had LOTS of chemo before, for months. Surgery was 9-10 hours. I was in ICU for 4 days. I was in the hospit...
by nobuttgirl
Fri Jun 12, 2015 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new member with ostomy question
Replies: 5
Views: 527

Re: new member with ostomy question

I'm allergic to adhesives. Tapes make my skin blister. I use Coloplast Assura wafers and no sting skin wipes. Sometimes my skin still gets irritated but this is what works best for me.
by nobuttgirl
Wed May 06, 2015 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many less than 50 at dx have Lynch syndrome?
Replies: 16
Views: 1149

Re: How many less than 50 at dx have Lynch syndrome?

I was dxd with stage iv cc at 30. I had a strong family history of cc and had ulcerative colitis since I was a teenager, so my surgeon and I thought a total colectomy was the best choice for me. After my cc dxd my aunt, uncle (both dxd with cc in their 30s also) and I were all genetically tested and...
by nobuttgirl
Wed May 06, 2015 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomies: fact or fiction? (changed from colostomies)
Replies: 39
Views: 2764

Re: Ostomies: fact or fiction? (changed from colostomies)

I'm sure that's not the only baggage she comes with! DOH. :shock:


Sooo not nice Kennytwisted
by nobuttgirl
Mon Apr 27, 2015 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blog
Replies: 5
Views: 614

Blog

Latest blog post is up. Written by Belle's dear friend Maria.
by nobuttgirl
Mon Apr 13, 2015 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Belle's last blog
Replies: 13
Views: 1139

Belle's last blog

FYI I posted Belle last blog last night.
by nobuttgirl
Tue Apr 07, 2015 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for a HIPEC surgeon
Replies: 9
Views: 1491

Re: Looking for a HIPEC surgeon

I had 2 HIPEC surgeries in Pittsburgh, PA by Dr. Herb Zeh. He is a partner of Dr. David Bartlett that Vilca11 mentioned. I love him. He saved my life. He took my case when other HIPEC surgeons wouldn't.
by nobuttgirl
Sun Apr 05, 2015 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Belle's last blog entries
Replies: 3
Views: 915

Belle's last blog entries

FYI, I posted the first of Belle's last blogs. I'll post the other one next Sunday. Happy Easter!

http://colonclub.com/very-terrible-horr ... y-bad-day/
by nobuttgirl
Wed Feb 25, 2015 12:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ANY long term stage 4/peritoneal mets survivors?
Replies: 10
Views: 2371

Re: ANY long term stage 4/peritoneal mets survivors?

Two docs turned me down for the HIPEC before I found one that would do it. I had two HIPECs. I've been cancer free for 7 years. Please get a second or 3rd opinion.
by nobuttgirl
Wed Feb 25, 2015 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: very low body temp & sunburned genitals what next?
Replies: 14
Views: 1077

Re: very low body temp & sunburned genitals what next?

Sless, please consider talking to a counselor. Your oncologist might be able to suggest one.

I'm glad you went to the ER. Hopefully you'll start feeling better now that the infection is being treated.

(hugs)
by nobuttgirl
Thu Feb 19, 2015 3:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV Newbie with a question
Replies: 9
Views: 1188

Re: Stage IV Newbie with a question

Hello T - I'm sorry to hear of your uncertain situation. If you get a chance, could you create a Signature so that readers can see your situation and your current status at a glance? A link to the Signature creation page is here: Create Signature http://coloncancersupport.colonclub.com/ucp.php?i=pr...

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