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by nobuttgirl
Sun Jan 14, 2018 12:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Family History
Replies: 10
Views: 304

Re: Family History

Did your dad have colorectal cancer? How old was he when he did? Do you have siblings? You are definitely at an increased risk so waiting until 50 is out of the question. My opinion, as long as you have NO symptoms and you are poop watching you should be okay until 40 but don'y put off ANY symptoms....
by nobuttgirl
Sat Jan 13, 2018 11:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Chemo questions
Replies: 9
Views: 488

Re: Maintenance Chemo questions

Yes, the brother with cancer is in the Steeler jersey in this picture. And yes he had a recurrence. The other two have been screened and are both clear. He finished 6 months of Folfox, had one scan that was "iffy" second one 3 months later confirmed cancer was back on small intestine. He h...
by nobuttgirl
Thu Jan 11, 2018 5:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Maintenance Chemo questions
Replies: 9
Views: 488

Maintenance Chemo questions

My brother is 46, Stage IV and he works for a company snaking sewers. He is almost finished with 6 months of Fulfiri Doctors say they want him to be on maintenance chemo indefinitely. I'm not sure the name of the drug. If you're on maintenance chemo, what are you on? How long have you been on it? Ho...
by nobuttgirl
Tue Feb 28, 2017 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Last day to submit On The Rise application!
Replies: 0
Views: 2372

Last day to submit On The Rise application!

Hey everybody today is the last day to submit your application to be a featured survivor for the 2018 On The Rise! Here's the link: https://colondar.wufoo.com/forms/mr9hjmb1qp6jin/ Being part of this project was a life changing experience for me and many others but you can't do it if you don't apply...
by nobuttgirl
Fri Feb 24, 2017 7:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CT Results – Need HIPEC recommendations
Replies: 7
Views: 1091

Re: CT Results – Need HIPEC recommendations

Both of my HIPEC surgeries were done by Dr. Herb Zeh in Pittsburgh, PA at UMPC.
by nobuttgirl
Mon May 02, 2016 12:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC recovery and extreme exhaustion
Replies: 4
Views: 587

Re: HIPEC recovery and extreme exhaustion

I had 2 HIPECs. They are tough. After the first one my new ileostomy leaked into the wound (they left open) I was septic. I couldn't walk anywhere even if I wanted. I was in the hospital for 4 month. When I came home I couldn't do anything for myself for a couple of months. I'm sorry you're feeling ...
by nobuttgirl
Mon Apr 04, 2016 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Blog Posts for the NEW YEAR !
Replies: 4
Views: 1665

Re: New Blog Posts for the NEW YEAR !

Thanks CRguy and O stoma mia for the encouraging words and blog boost!
by nobuttgirl
Sat Jul 25, 2015 3:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HIPEC
Replies: 11
Views: 1533

Re: HIPEC

I had my first HIPEC in 2005. I was in pretty bad shape...literally almost dead. I had tumors wrapped around my small intestines creating complete blockages. (whole colon was already removed) I had LOTS of chemo before, for months. Surgery was 9-10 hours. I was in ICU for 4 days. I was in the hospit...
by nobuttgirl
Fri Jun 12, 2015 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new member with ostomy question
Replies: 5
Views: 556

Re: new member with ostomy question

I'm allergic to adhesives. Tapes make my skin blister. I use Coloplast Assura wafers and no sting skin wipes. Sometimes my skin still gets irritated but this is what works best for me.
by nobuttgirl
Wed May 06, 2015 5:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many less than 50 at dx have Lynch syndrome?
Replies: 16
Views: 1194

Re: How many less than 50 at dx have Lynch syndrome?

I was dxd with stage iv cc at 30. I had a strong family history of cc and had ulcerative colitis since I was a teenager, so my surgeon and I thought a total colectomy was the best choice for me. After my cc dxd my aunt, uncle (both dxd with cc in their 30s also) and I were all genetically tested and...
by nobuttgirl
Wed May 06, 2015 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomies: fact or fiction? (changed from colostomies)
Replies: 39
Views: 2856

Re: Ostomies: fact or fiction? (changed from colostomies)

I'm sure that's not the only baggage she comes with! DOH. :shock:


Sooo not nice Kennytwisted
by nobuttgirl
Mon Apr 27, 2015 7:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blog
Replies: 5
Views: 630

Blog

Latest blog post is up. Written by Belle's dear friend Maria.
by nobuttgirl
Mon Apr 13, 2015 9:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Belle's last blog
Replies: 13
Views: 1173

Belle's last blog

FYI I posted Belle last blog last night.
by nobuttgirl
Tue Apr 07, 2015 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for a HIPEC surgeon
Replies: 9
Views: 1597

Re: Looking for a HIPEC surgeon

I had 2 HIPEC surgeries in Pittsburgh, PA by Dr. Herb Zeh. He is a partner of Dr. David Bartlett that Vilca11 mentioned. I love him. He saved my life. He took my case when other HIPEC surgeons wouldn't.
by nobuttgirl
Sun Apr 05, 2015 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Belle's last blog entries
Replies: 3
Views: 928

Belle's last blog entries

FYI, I posted the first of Belle's last blogs. I'll post the other one next Sunday. Happy Easter!

http://colonclub.com/very-terrible-horr ... y-bad-day/

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