Hi there! I had a solitary met to my left ovary in 2013 which was removed. The oncologists were unsure of correct tx due to unusual presentation, so I did 3 cycles of FOLFOX. I recurred after 2.5 years in peritoneum and solitary lymph node. I had HIPEC in Dec 2015, 11 rounds of FOLFOX and have been ...

I see Dr. Kasi at KU Med. All of my treatments and surgeries have been handled by KU. I have received many second opinions (Dana Farber, MD Anderson, etc) and KU was the only team to offer HIPEC and lymph node resection for my recurrence. I had HIPEC almost two years ago and I am doing great, curren...

Maryb- I totally understand the "death-like" feeling you describe from oxaliplatin (*shudder*)...I had absolutely every symptom you described after my first round. The calf cramping was unbearable for me. My oncologist dropped my dosage to 80 percent of the full dose and i was able to comp...

Amazing! thanks for posting

I would appreciate input on being TS positive (100% positive) and continuing 5fu therapy. From what I understand, being TS positive is associated with 5FU resistance. I received my biomarker test results today and of course, I am positive. My report states, "TS is a critical target for 5-FU. In...

Weisssoccermom- totally late to the party...but my first pathology report said "well to moderately- well differentiated adenocarcinoma." My second and fourth opinions just said "moderately differentiated" while my third path report stated "well differentiated." Goes to ...

argh! Tumor markers are beyond frustrating! How can a mere number wield such devastation on my life?! This board has been a life-saver for me...what a haven of SMART, thoughtful souls. I cannot tell you how much you all have helped this lurker over the past year. In a nutshell: 4/2013 a 14cm left ov...

I have this side effect from Oxaliplatin. My DR at MD Anderson insisted the tinnitus was NOT from the oxaliplatin, and assured me I likely already had it, (even though I was only 37!) However, I've read it can be a side effect...I'm not sure what else could have possibly caused it to suddenly arise ...

I am in the exact same boat as you...metastatic adenocarcinoma, unknown primary. I was only 37 years old at diagnosis, and it has been a shock to say the least...no family cancer history, very benign health history, active, healthy mother of 4! I read your blog and your experience is so similar to m...