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by Deb m
Wed Aug 16, 2017 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety for Caregiver
Replies: 9
Views: 218

Re: Anxiety for Caregiver

Your not alone there. My husband is almost 7 years out now and has been NED and the anxiety has gotten a little better, but still every time he gets a backache, stomach pain or anything I just freak out still. The anxiety the first few years was uncontrollable. There were days I didn't really think ...
by Deb m
Fri Aug 11, 2017 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help understanding statistics and studies
Replies: 4
Views: 314

Re: Help understanding statistics and studies

I think the clock starts ticking right after surgery, that is assuming they got it all with surgery, if not then the clock doesn't start to tick till they get you in remission.
by Deb m
Thu Aug 10, 2017 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA update
Replies: 6
Views: 454

Re: CEA update

Jay,

My husbands cea jumped around a lot also, some times above the 3.0 normal range. He has never smoked and is otherwise a pretty healthy guy. I must be a T4 thing? I'm glad that they will do a 4th scan just to be sure. Your well on your way to NEDville forever!

Debbie
by Deb m
Thu Aug 10, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 520

Re: My mom diagnosed with colorectal cancer

In my opinion, her general doctor would NOT have enough information to say that her cancer has not spread. I think the oncologist is correct in doing further scans ect. to check for spread. Once again, I would highly recommend a second opinion. What you're going thru right now is the worst part. Onc...
by Deb m
Tue Aug 08, 2017 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 520

Re: My mom diagnosed with colorectal cancer

I have not heard anything about the Mayo in Az. That's not to say it's not good, I just can't give you advice on a place I know nothing about. I have a friend who went to the Mayo in MN for breast cancer surgery and treatment and was very impressed. Many of our members here got to Sloan Kettering in...
by Deb m
Mon Aug 07, 2017 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 520

Re: My mom diagnosed with colorectal cancer

Welcome to the board, Hopefully tomorrow after your appointment you'll have a better idea of what your dealing with. I highly recommend second opinions no matter what the stage, I think they always prove to be beneficial in some way. The second opinion should come from a major cancer center if possi...
by Deb m
Thu Aug 03, 2017 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV for 4.5 years.....NED again!!
Replies: 12
Views: 646

Re: Stage IV for 4.5 years.....NED again!!

Very happy for you. Hope NED lasts forever!
by Deb m
Thu Jul 27, 2017 7:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coming to the end of the journey....
Replies: 12
Views: 838

Re: Coming to the end of the journey....

I'm very sorry it has come to this. I pray that you and your wife/family receive the comfort needed during this most difficult time. She and yourself will be in my rosary.

deb
by Deb m
Thu Jul 27, 2017 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Yr cancerversary and Diabetes update
Replies: 9
Views: 449

Re: 10 Yr cancerversary and Diabetes update

Very happy for you. Yes you are cured! That's great that you eat healthy and lost weight. I'm trying to get my husband to do the same. He was real good the first two years after diagnosis, but is now falling back into his sugar and eating late at night habits and has gained about 20 pounds. Oh well,...
by Deb m
Fri Jul 21, 2017 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone having mucinous carcinoma of colon?
Replies: 5
Views: 1003

Re: Anyone having mucinous carcinoma of colon?

My husbands cea doubled at one point right in the middle of his 12 hits of folfox. A pet scan was done immediately. The scan came back completely clear and when he finished chemo, his numbers slowly returned to normal. He's been clear since. Hang in there. I know it's extremely nerve racking to say ...
by Deb m
Fri Jul 21, 2017 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So many questions
Replies: 17
Views: 2359

Re: So many questions

Just chiming in about MDA. My husband sought all his treatments and surveillance there and we were extremely pleased. Nothing negative to say about them, it was a great experience overall! If you want any details, feel free to contact me with an e-mail. We live in Kansas and it was a 14 hour drive f...
by Deb m
Mon Jul 17, 2017 8:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Will my BM's ever return to normal?
Replies: 11
Views: 987

Re: Will my BM's ever return to normal?

My husband had 15 inches of his right colon along with his cecum and appendix removed in 2011. His BM's are for the most part normal as along as he takes 2 Imodiums every day.

deb m
by Deb m
Fri Jun 16, 2017 7:46 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 10
Views: 1950

Re: CEA increasing trend

My husbands also jumped around a lot. It was very nerve racking to say the least! Our oncologist told us that the numbers will usually double withing a couple of months if it is cancer. Your increases in numbers are very slight so I wouldn't worry to much at this point. Continue to watch I guess, deb
by Deb m
Wed Jun 14, 2017 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 1 folow up CT scan
Replies: 8
Views: 758

Re: Stage 1 folow up CT scan

My husband was a high risk stage two, so it was from chin to thigh ct scan every three months. I think even for stage I it's chin to thigh, just not as frequent though.

deb m
by Deb m
Mon Jun 12, 2017 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: first Folfox - delayed reaction?
Replies: 4
Views: 405

Re: first Folfox - delayed reaction?

With each of my husbands folfox treatments, he was fine till about the 3,4th day after, then he would have a bit of all the symptoms. He was always fine on the day of treatment and a couple days after.

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