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by Deb m
Fri Oct 13, 2017 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Elevated CEA with long standing sinus infection /cold
Replies: 11
Views: 418

Re: Elevated CEA with long standing sinus infection /cold

It's the trend that would be a concern. Have them re-check it in a few weeks. If it increases even more, than I would push for a scan, but if it's stable or lower, than I would try not to worry. I know, easier said than done.

deb m
by Deb m
Tue Oct 10, 2017 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver spot seen on CT...Should I be concerned??
Replies: 18
Views: 699

Re: Liver spot seen on CT...Should I be concerned??

Hello, My husband also has a fatty liver and had cysts show on his ct scans. He also, throughout his five years of surveillance ct's had cysts show up on his pancreas and kidneys in addition to his liver. I do think that some people are prone to them and our oncologist told us that the older you get...
by Deb m
Thu Oct 05, 2017 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED 5 years today - Stage 2C Rectal
Replies: 17
Views: 456

Re: NED 5 years today - Stage 2C Rectal

So happy for you. Go celebrate and do something special. My husband reached that 5 year mark about a year and a half age. We feel so blessed to have do so. I pray and wish that outcome for every member on this board. They are all heroes to me!

Deb m
by Deb m
Mon Sep 25, 2017 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!!!!
Replies: 32
Views: 1349

Re: Still NED!!!!

Very happy for you and so glad you didn't have to wait till October to get the good news!

deb m
by Deb m
Mon Sep 25, 2017 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years 8 months later...
Replies: 6
Views: 462

Re: 5 years 8 months later...

My husband also got a clean bill of health from MDA a little over a year ago. He's just under 7 years out of surgery and has been NED since. I know what you mean, your so grateful and relieved but yet scared to death that they cut you loose.

So happy for you,

deb m
by Deb m
Tue Sep 19, 2017 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health insurance coverage
Replies: 6
Views: 411

Re: Health insurance coverage

We also had united health coverage, they too paid for second opinions. We had great coverage at the time when we needed it the most. United health care was very good to us through out the whole 5 years of treatment and the surveillance.

deb m
by Deb m
Wed Sep 13, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 24yo female, 5-6 precancerous polyps
Replies: 8
Views: 1583

Re: 24yo female, 5-6 precancerous polyps

That's very young to be getting your first colonoscopy, and good that you did. Were you having some issues/symptoms that prompted you to get your first scope at 24. I would push for genetic testing. It's unusual for somebody so young to have a polyp, let alone six of them that are pre-cancerous. I t...
by Deb m
Tue Sep 12, 2017 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo and CEA question/help.
Replies: 8
Views: 1486

Re: Chemo and CEA question/help.

My husbands cea rose while he was on chemo, then went back down to normal a few week after completing chemo. He also had tailbone pain and pain in his legs and joints when he had the neup. shots to boost his wbc counts. Many people experience bone pain in different parts of their body with these sho...
by Deb m
Mon Aug 28, 2017 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After oxi is done
Replies: 7
Views: 786

Re: After oxi is done

My husband made it thru 10 rounds of Oxi. He had numbness on his fingers and the bottom of his feet. His fingers completely recovered after about 3-4 months. His feet recovered after about 6-8 months, but not completely, maybe 80%, but what little bit that's left in his feet does not bother him much...
by Deb m
Wed Aug 16, 2017 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety for Caregiver
Replies: 11
Views: 862

Re: Anxiety for Caregiver

Your not alone there. My husband is almost 7 years out now and has been NED and the anxiety has gotten a little better, but still every time he gets a backache, stomach pain or anything I just freak out still. The anxiety the first few years was uncontrollable. There were days I didn't really think ...
by Deb m
Fri Aug 11, 2017 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help understanding statistics and studies
Replies: 4
Views: 662

Re: Help understanding statistics and studies

I think the clock starts ticking right after surgery, that is assuming they got it all with surgery, if not then the clock doesn't start to tick till they get you in remission.
by Deb m
Thu Aug 10, 2017 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA update
Replies: 6
Views: 868

Re: CEA update

Jay,

My husbands cea jumped around a lot also, some times above the 3.0 normal range. He has never smoked and is otherwise a pretty healthy guy. I must be a T4 thing? I'm glad that they will do a 4th scan just to be sure. Your well on your way to NEDville forever!

Debbie
by Deb m
Thu Aug 10, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 1440

Re: My mom diagnosed with colorectal cancer

In my opinion, her general doctor would NOT have enough information to say that her cancer has not spread. I think the oncologist is correct in doing further scans ect. to check for spread. Once again, I would highly recommend a second opinion. What you're going thru right now is the worst part. Onc...
by Deb m
Tue Aug 08, 2017 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 1440

Re: My mom diagnosed with colorectal cancer

I have not heard anything about the Mayo in Az. That's not to say it's not good, I just can't give you advice on a place I know nothing about. I have a friend who went to the Mayo in MN for breast cancer surgery and treatment and was very impressed. Many of our members here got to Sloan Kettering in...
by Deb m
Mon Aug 07, 2017 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 1440

Re: My mom diagnosed with colorectal cancer

Welcome to the board, Hopefully tomorrow after your appointment you'll have a better idea of what your dealing with. I highly recommend second opinions no matter what the stage, I think they always prove to be beneficial in some way. The second opinion should come from a major cancer center if possi...

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