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by Deb m
Tue Nov 21, 2017 1:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here- full colectomy recommended by surgeon- any advice?
Replies: 5
Views: 129

Re: New here- full colectomy recommended by surgeon- any advice?

My husbands main tumor was also in his cecum. He had his cecum, ascending colon and appendix removed along with 24 lymph nodes. He also had a polyp in his transverse colon which was NOT positive for cancer and was removed during the colonoscopy. I agree with getting a second opinion from a MAJOR can...
by Deb m
Mon Nov 20, 2017 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out I have cancer
Replies: 15
Views: 622

Re: Just found out I have cancer

The anxiety your feeling now is very normal. Once you get the whole picture and find out exactly where things stand and what needs to be done you will feel a bit more in control. I started feeling better when I knew things were being done to kill the cancer . The worst is knowing it's there, and not...
by Deb m
Thu Nov 09, 2017 11:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: T1 rectal cancer and LVI
Replies: 10
Views: 449

Re: T1 rectal cancer and LVI

My husband was a stage ll with positive LVI in the small blood vessel. Our oncologist considered this to be a high risk feature and 6 months of folfox was advised. He was also a t4, but even if he wasn't a t4, they would of advised chemo because of him being positive for LVI. He told us that LVI is ...
by Deb m
Wed Nov 08, 2017 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just found out yesterday I have colon cancer.
Replies: 12
Views: 766

Re: Just found out yesterday I have colon cancer.

We also went to MD Anderson. It took us two weeks to get in.
by Deb m
Fri Oct 27, 2017 9:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Confusing pathology results
Replies: 11
Views: 634

Re: Confusing pathology results

My husband also had a tumor in his cecum and had most of his ascending colon removed. He was MSS stable and his cells were moderately differentiated. His, however was a t4 so chemo was highly advised for him. We would of done the chemo even if he were a t3. The reason why the prognosis for rt sided ...
by Deb m
Fri Oct 13, 2017 12:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Elevated CEA with long standing sinus infection /cold
Replies: 11
Views: 535

Re: Elevated CEA with long standing sinus infection /cold

It's the trend that would be a concern. Have them re-check it in a few weeks. If it increases even more, than I would push for a scan, but if it's stable or lower, than I would try not to worry. I know, easier said than done.

deb m
by Deb m
Tue Oct 10, 2017 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Liver spot seen on CT...Should I be concerned??
Replies: 30
Views: 1678

Re: Liver spot seen on CT...Should I be concerned??

Hello, My husband also has a fatty liver and had cysts show on his ct scans. He also, throughout his five years of surveillance ct's had cysts show up on his pancreas and kidneys in addition to his liver. I do think that some people are prone to them and our oncologist told us that the older you get...
by Deb m
Thu Oct 05, 2017 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NED 5 years today - Stage 2C Rectal
Replies: 17
Views: 609

Re: NED 5 years today - Stage 2C Rectal

So happy for you. Go celebrate and do something special. My husband reached that 5 year mark about a year and a half age. We feel so blessed to have do so. I pray and wish that outcome for every member on this board. They are all heroes to me!

Deb m
by Deb m
Mon Sep 25, 2017 2:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Still NED!!!!
Replies: 32
Views: 1676

Re: Still NED!!!!

Very happy for you and so glad you didn't have to wait till October to get the good news!

deb m
by Deb m
Mon Sep 25, 2017 2:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 5 years 8 months later...
Replies: 6
Views: 569

Re: 5 years 8 months later...

My husband also got a clean bill of health from MDA a little over a year ago. He's just under 7 years out of surgery and has been NED since. I know what you mean, your so grateful and relieved but yet scared to death that they cut you loose.

So happy for you,

deb m
by Deb m
Tue Sep 19, 2017 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health insurance coverage
Replies: 6
Views: 514

Re: Health insurance coverage

We also had united health coverage, they too paid for second opinions. We had great coverage at the time when we needed it the most. United health care was very good to us through out the whole 5 years of treatment and the surveillance.

deb m
by Deb m
Wed Sep 13, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 24yo female, 5-6 precancerous polyps
Replies: 8
Views: 1685

Re: 24yo female, 5-6 precancerous polyps

That's very young to be getting your first colonoscopy, and good that you did. Were you having some issues/symptoms that prompted you to get your first scope at 24. I would push for genetic testing. It's unusual for somebody so young to have a polyp, let alone six of them that are pre-cancerous. I t...
by Deb m
Tue Sep 12, 2017 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo and CEA question/help.
Replies: 8
Views: 1604

Re: Chemo and CEA question/help.

My husbands cea rose while he was on chemo, then went back down to normal a few week after completing chemo. He also had tailbone pain and pain in his legs and joints when he had the neup. shots to boost his wbc counts. Many people experience bone pain in different parts of their body with these sho...
by Deb m
Mon Aug 28, 2017 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After oxi is done
Replies: 7
Views: 865

Re: After oxi is done

My husband made it thru 10 rounds of Oxi. He had numbness on his fingers and the bottom of his feet. His fingers completely recovered after about 3-4 months. His feet recovered after about 6-8 months, but not completely, maybe 80%, but what little bit that's left in his feet does not bother him much...
by Deb m
Wed Aug 16, 2017 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety for Caregiver
Replies: 11
Views: 935

Re: Anxiety for Caregiver

Your not alone there. My husband is almost 7 years out now and has been NED and the anxiety has gotten a little better, but still every time he gets a backache, stomach pain or anything I just freak out still. The anxiety the first few years was uncontrollable. There were days I didn't really think ...

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