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by Deb m
Tue Sep 19, 2017 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Health insurance coverage
Replies: 6
Views: 285

Re: Health insurance coverage

We also had united health coverage, they too paid for second opinions. We had great coverage at the time when we needed it the most. United health care was very good to us through out the whole 5 years of treatment and the surveillance.

deb m
by Deb m
Wed Sep 13, 2017 9:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 24yo female, 5-6 precancerous polyps
Replies: 8
Views: 1153

Re: 24yo female, 5-6 precancerous polyps

That's very young to be getting your first colonoscopy, and good that you did. Were you having some issues/symptoms that prompted you to get your first scope at 24. I would push for genetic testing. It's unusual for somebody so young to have a polyp, let alone six of them that are pre-cancerous. I t...
by Deb m
Tue Sep 12, 2017 1:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo and CEA question/help.
Replies: 8
Views: 1117

Re: Chemo and CEA question/help.

My husbands cea rose while he was on chemo, then went back down to normal a few week after completing chemo. He also had tailbone pain and pain in his legs and joints when he had the neup. shots to boost his wbc counts. Many people experience bone pain in different parts of their body with these sho...
by Deb m
Mon Aug 28, 2017 1:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After oxi is done
Replies: 7
Views: 693

Re: After oxi is done

My husband made it thru 10 rounds of Oxi. He had numbness on his fingers and the bottom of his feet. His fingers completely recovered after about 3-4 months. His feet recovered after about 6-8 months, but not completely, maybe 80%, but what little bit that's left in his feet does not bother him much...
by Deb m
Wed Aug 16, 2017 7:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety for Caregiver
Replies: 11
Views: 787

Re: Anxiety for Caregiver

Your not alone there. My husband is almost 7 years out now and has been NED and the anxiety has gotten a little better, but still every time he gets a backache, stomach pain or anything I just freak out still. The anxiety the first few years was uncontrollable. There were days I didn't really think ...
by Deb m
Fri Aug 11, 2017 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help understanding statistics and studies
Replies: 4
Views: 553

Re: Help understanding statistics and studies

I think the clock starts ticking right after surgery, that is assuming they got it all with surgery, if not then the clock doesn't start to tick till they get you in remission.
by Deb m
Thu Aug 10, 2017 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA update
Replies: 6
Views: 751

Re: CEA update

Jay,

My husbands cea jumped around a lot also, some times above the 3.0 normal range. He has never smoked and is otherwise a pretty healthy guy. I must be a T4 thing? I'm glad that they will do a 4th scan just to be sure. Your well on your way to NEDville forever!

Debbie
by Deb m
Thu Aug 10, 2017 7:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 1294

Re: My mom diagnosed with colorectal cancer

In my opinion, her general doctor would NOT have enough information to say that her cancer has not spread. I think the oncologist is correct in doing further scans ect. to check for spread. Once again, I would highly recommend a second opinion. What you're going thru right now is the worst part. Onc...
by Deb m
Tue Aug 08, 2017 8:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 1294

Re: My mom diagnosed with colorectal cancer

I have not heard anything about the Mayo in Az. That's not to say it's not good, I just can't give you advice on a place I know nothing about. I have a friend who went to the Mayo in MN for breast cancer surgery and treatment and was very impressed. Many of our members here got to Sloan Kettering in...
by Deb m
Mon Aug 07, 2017 10:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom diagnosed with colorectal cancer
Replies: 17
Views: 1294

Re: My mom diagnosed with colorectal cancer

Welcome to the board, Hopefully tomorrow after your appointment you'll have a better idea of what your dealing with. I highly recommend second opinions no matter what the stage, I think they always prove to be beneficial in some way. The second opinion should come from a major cancer center if possi...
by Deb m
Thu Aug 03, 2017 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV for 4.5 years.....NED again!!
Replies: 12
Views: 1072

Re: Stage IV for 4.5 years.....NED again!!

Very happy for you. Hope NED lasts forever!
by Deb m
Thu Jul 27, 2017 7:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Coming to the end of the journey....
Replies: 12
Views: 1464

Re: Coming to the end of the journey....

I'm very sorry it has come to this. I pray that you and your wife/family receive the comfort needed during this most difficult time. She and yourself will be in my rosary.

deb
by Deb m
Thu Jul 27, 2017 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 10 Yr cancerversary and Diabetes update
Replies: 9
Views: 742

Re: 10 Yr cancerversary and Diabetes update

Very happy for you. Yes you are cured! That's great that you eat healthy and lost weight. I'm trying to get my husband to do the same. He was real good the first two years after diagnosis, but is now falling back into his sugar and eating late at night habits and has gained about 20 pounds. Oh well,...
by Deb m
Fri Jul 21, 2017 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone having mucinous carcinoma of colon?
Replies: 5
Views: 1679

Re: Anyone having mucinous carcinoma of colon?

My husbands cea doubled at one point right in the middle of his 12 hits of folfox. A pet scan was done immediately. The scan came back completely clear and when he finished chemo, his numbers slowly returned to normal. He's been clear since. Hang in there. I know it's extremely nerve racking to say ...
by Deb m
Fri Jul 21, 2017 8:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: So many questions
Replies: 17
Views: 4066

Re: So many questions

Just chiming in about MDA. My husband sought all his treatments and surveillance there and we were extremely pleased. Nothing negative to say about them, it was a great experience overall! If you want any details, feel free to contact me with an e-mail. We live in Kansas and it was a 14 hour drive f...

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