Search found 417 matches

Go to advanced search

by Deb m
Tue Aug 07, 2018 8:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port removed
Replies: 7
Views: 211

Re: Port removed

My husband has been NED for almost 7 years now and I still freak out over every little illness, ache, pain he has. I don't think it will ever go away. Your correct in that this is "something totally different". My sister is a 30 year survivor of Hodgkin's lymphoma, had a bone marrow transp...
by Deb m
Tue Aug 07, 2018 8:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 13
Views: 520

Re: Newly diagnosed rectum cancer

Welcome to the board. Not a real fun club to be a member of, but you are correct in that it supplies you with tuns of very useful information and encouragement. I found that one of the hardest parts of the whole journey is when your first diagnosed. Once you get the whole picture and start treating ...
by Deb m
Wed Aug 01, 2018 2:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: First post on colon talk, just a few questions
Replies: 16
Views: 712

Re: First post on colon talk, just a few questions

Hello, My husbands mass was also in his cecum. First of all, you do have time to wait for the surgery. Colon cancer is as a whole, a slow growing cancer. Usually a Pet scan will be done to confirm spread or no spread beyond the main mass. This should be done before surgery so they know exactly what ...
by Deb m
Tue Jul 31, 2018 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Good news
Replies: 6
Views: 556

Re: Good news

I'm happy for you that you don't have to do any treatments. Do make sure you have a good surveillance schedule set up though, it's very important even in stage II!
deb m
by Deb m
Wed Jul 25, 2018 1:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results 15 months post surgery. NDED vs NED?
Replies: 19
Views: 746

Re: Scan Results 15 months post surgery. NDED vs NED?

Different radiologist use different wording. We have had the term "No definite" evidence of disease and they have also just said "no evidence of disease. It would just depend on which radiologist read it. I was also told by our oncologist at MDA that some radiologist will mention ever...
by Deb m
Tue Jul 24, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Goodbye
Replies: 24
Views: 1959

Re: Goodbye

So sorry for your loss. I watched my husband go thru his ordeal with colon cancer, but he survived. Now I am watching my father waste away literally from lung cancer. It's very difficult. Really, words can not express my sorrow for your loss. I pray that in time, you will look back and be able to ch...
by Deb m
Mon Jul 23, 2018 8:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice on wife's diagnosis
Replies: 5
Views: 455

Re: Advice on wife's diagnosis

She also pretty young for this kind of cancer ,so I hope they are going to do genetic testing. Does anybody in her family have or had this kind of cancer?
by Deb m
Thu Jul 19, 2018 8:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LymphoVascular Invasion in Rectal Cancer
Replies: 2
Views: 247

Re: LymphoVascular Invasion in Rectal Cancer

My husband was a stage II as well with positive LVI. We did 12 rounds of folfox which was highly recommended by our oncologist at MDA cancer center in Houston Texas. He told us that it is a "High risk" feature. Have you thought of getting a second opinion from a major cancer center. It mig...
by Deb m
Mon Jul 16, 2018 8:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mother has 2cm tumor
Replies: 4
Views: 288

Re: Mother has 2cm tumor

The ct scan did not show the mass my husband had in his colon. It was found during the colonoscopy. A ct, however, will pick up a spread to other parts of the body though.
by Deb m
Mon Jul 16, 2018 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage II2b - T4 - need help
Replies: 4
Views: 269

Re: Stage II2b - T4 - need help

My husband was also a stage IIbt4. Stage II b is a very high risk stage for spread. He did six month of folfox. He was 50years old at the time though. In my opinion, he needs to do some kind of chemo, I would even start the folfox, which is what is standard for this stage, and he can always quit and...
by Deb m
Fri Jul 13, 2018 8:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Howdy
Replies: 8
Views: 430

Re: Howdy

We had all our stuff done at MDA also. Let us know what they say.

deb m
by Deb m
Tue Jul 10, 2018 8:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA false positives?
Replies: 12
Views: 656

Re: CEA false positives?

My husband was also a stage 22, but he did the chemo. He had a baseline CEA that was many time above the normal range. Over five years of checking it every 3 to 6 months, he ranges from 2.8 to 5.7. It's nerve racking to say the least! Our oncologist told us, that at least for him, the important thin...
by Deb m
Tue Jul 10, 2018 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: what happens after chemo?
Replies: 17
Views: 731

Re: what happens after chemo?

I think 6 months is to long of a wait. I think you should be having a scan and blood work with CEA level. We were a stage II and we were checked every three months for all this for the first year and a half, then it went to every six months for two years then just once a year for the last two years ...
by Deb m
Mon Jul 09, 2018 2:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Are we doing everything we can?
Replies: 29
Views: 1166

Re: Are we doing everything we can?

MMR testing can be done with a blood test, but it's best , if possible to do it on the tumor tissue. That's what our oncologist told us.
by Deb m
Mon Jul 09, 2018 2:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 years NED after stage IV
Replies: 22
Views: 1281

Re: 6 years NED after stage IV

Wow! That's great. So happy for you.

deb m

Go to advanced search