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by Deb m
Wed Sep 18, 2019 8:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colon polyps
Replies: 7
Views: 309

Re: Colon polyps

I think they should test you for lynch .
by Deb m
Wed Sep 18, 2019 8:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Had to have high hopes for a living...
Replies: 6
Views: 395

Re: Had to have high hopes for a living...

Attitude is half the battle. Also being treated by major cancer centers with experienced doctors is a Hugh plus. Sounds like you have both those things in place. I always felt better when things started happening because to me it was the big start of kicking the hell out of the cancer. I completely ...
by Deb m
Fri Aug 30, 2019 1:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Adjuvant chemo or not / Decision time for adjuvant chemo
Replies: 31
Views: 1508

Re: Adjuvant chemo or not

My husband 's cancer was also down by his appendix. It was actually in his cecum, but they also removed his appendix because it grew into the orifice of his appendix. He was a stage llt4a. Because of the t4 status, they highly recommended chemo. My first thought when I read your e-mail was, have you...
by Deb m
Fri Aug 30, 2019 9:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: second guessing everything right now . . .
Replies: 10
Views: 747

Re: second guessing everything right now . . .

We had our genetic testing all done at MDA and I remember it taking about 4-5 weeks.
by Deb m
Tue Aug 20, 2019 8:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1 Year Scan
Replies: 7
Views: 605

Re: 1 Year Scan

Hoping for a clean scan. I perfectly understand your anxiety!
by Deb m
Fri Aug 16, 2019 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sigmoid + Distant Lymph Nodes
Replies: 11
Views: 710

Re: Sigmoid + Distant Lymph Nodes

Start folfox as soon as you can, add the other regiment later. If it's in your lymphatic system, you don't want to wait and see. That's my opinion.
by Deb m
Wed Aug 14, 2019 1:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed
Replies: 10
Views: 964

Re: Newly diagnosed

Hello Vana, My DH"s cancer was also in his cecum. His grew out towards his appendix. He started having pain like you would with an appendicitis, otherwise we would of not know for a long time down the road. He had surgery and did 12 rounds of folfox. It wasn't easy but we made it thru. We live ...
by Deb m
Tue Aug 06, 2019 12:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIIb, T4 tissue invasion. 12 yrs ago.
Replies: 3
Views: 559

Re: Stage IIIb, T4 tissue invasion. 12 yrs ago.

It is indeed encouraging to hear these stories. My husband was also a t4 and he is almost 9 years out from DX. He had surgery, followed by 6 months of folfox and has been NED ever since. It is a very rough road and looking back I really don't know how I held it together and made it through. I guess ...
by Deb m
Thu Aug 01, 2019 8:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and it’s anxiety
Replies: 9
Views: 837

Re: CEA and it’s anxiety

My husbands cea continued to go up and down even after chemo, though it never went up as high as it did when he was undergoing chemo. I have spoken to people who it has though. I know this is driving you crazy, but try to remain calm. Keep us posted and I will be hoping and praying for a false high....
by Deb m
Wed Jul 31, 2019 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and it’s anxiety
Replies: 9
Views: 837

Re: CEA and it’s anxiety

My husband was one of those who had as they termed it " A fluctuating CEA". It almost drove me into the nut house. I remember on one occasion, it went from 2.8 to 5.7 in a three month period of time. They ordered a pet scan, and all was normal. He was in the middle of chemo then, so they s...
by Deb m
Wed Jun 19, 2019 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 year scan
Replies: 17
Views: 1940

Re: 2 year scan

Congrats! Go celebrate. The two year mark is a big hurdle.
by Deb m
Wed Jun 19, 2019 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX
Replies: 7
Views: 821

Re: FOLFOX

My husband did 12 rounds of it. His worst days were day 4 and 5 of each cycle. He had numbness on his feet and finger tips and sensitivity to cold. He had almost every warned side effect, but it was all very manageable and it all resolved within several months after his last cycle. With the exceptio...
by Deb m
Mon Jun 17, 2019 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 12
Views: 1844

Re: Stage IV (with liver cyst) - 6 yrs NED

My husband, on his ct scans, there was always mention of liver cysts along with one in his left kidney and one in his pancreas. Our oncologist at MDA said not to worry. After over 5 years of scanning, they never changed and nothing came of them. He always told us that cysts take on a very different ...
by Deb m
Wed Jun 12, 2019 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 21
Views: 1982

Re: Mop up chemo - Port vs non-port for Oxi?

I didn't even think they would do it without a port. The surgery for putting on in is very simple. A port is the way to go in my opinion!

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