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by Deb m
Wed Jun 19, 2019 9:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 2 year scan
Replies: 8
Views: 211

Re: 2 year scan

Congrats! Go celebrate. The two year mark is a big hurdle.
by Deb m
Wed Jun 19, 2019 9:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX
Replies: 7
Views: 177

Re: FOLFOX

My husband did 12 rounds of it. His worst days were day 4 and 5 of each cycle. He had numbness on his feet and finger tips and sensitivity to cold. He had almost every warned side effect, but it was all very manageable and it all resolved within several months after his last cycle. With the exceptio...
by Deb m
Mon Jun 17, 2019 10:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV (with liver cyst) - 6 yrs NED
Replies: 6
Views: 345

Re: Stage IV (with liver cyst) - 6 yrs NED

My husband, on his ct scans, there was always mention of liver cysts along with one in his left kidney and one in his pancreas. Our oncologist at MDA said not to worry. After over 5 years of scanning, they never changed and nothing came of them. He always told us that cysts take on a very different ...
by Deb m
Wed Jun 12, 2019 11:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo - Port vs non-port for Oxi?
Replies: 18
Views: 677

Re: Mop up chemo - Port vs non-port for Oxi?

I didn't even think they would do it without a port. The surgery for putting on in is very simple. A port is the way to go in my opinion!
by Deb m
Mon Jun 10, 2019 9:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thought of more questions re: postoperative CEA
Replies: 2
Views: 196

Re: Thought of more questions re: postoperative CEA

my husbands jumped around a lot as well. usually ranged from 2.4 to 3.3. On one occasion it jumped to 5.7, but nothing ever came of it. It's stressful to say the least.
by Deb m
Tue Jun 04, 2019 8:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Insurance Cos increasingly resistant to scans
Replies: 6
Views: 465

Re: Insurance Cos increasingly resistant to scans

Dam insurance companies. You can't live without them, but you can barely live with them!

deb
by Deb m
Tue Jun 04, 2019 8:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: This SUCKS, and we haven’t even begun to fight
Replies: 25
Views: 1941

Re: This SUCKS, and we haven’t even begun to fight

Hey, we all get it! This board is not only for advice, but is also for venting. You vent here as much as you need to.

I'm a praying person and I pray a rosary every single day. You and all the members of this board are included in my intentions.

Deb
by Deb m
Fri May 31, 2019 8:18 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Laid off before Dx
Replies: 21
Views: 1142

Re: Laid off before Dx

We went thru the same thing. My husband was a pilot and federal aviation regulations do not allow a pilot to operate aircraft while undergoing chemo. He lost his medical and was played off till he finished treatment and could prove he was cancer free to the best of the doctors knowledge. We kept his...
by Deb m
Fri May 24, 2019 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 22
Views: 1672

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

If he is MSI, then I don't see why they wouldn't try immunotheraphy. MSI/MSS is something that is determined from getting genetic testing done. Has he had any?
by Deb m
Mon May 20, 2019 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 22
Views: 1672

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

Is there a chance that they, the lesions they are seeing are not cancer?

deb m
by Deb m
Mon May 20, 2019 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back after almost 10 years NED - Ascites, Peri & Liver Mets!
Replies: 22
Views: 1672

Re: Back after almost 10 years NED - Ascites, Peri & Liver Mets!

I'm so sorry to hear that. Way back when your husband was Dx with stage II colon cancer, did he have any follow up chemo.? Colon cancer is a very slow growing cancer and it could of been there all along , but for some reason they didn't see it? just wondering. How long do you do surveillance? I hear...
by Deb m
Fri May 17, 2019 11:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Large polyp removed
Replies: 5
Views: 327

Re: Large polyp removed

My mother is 81 years old, so they elected the wait and watch approach. Since the one lymph node they saw it in was removed, they say there is a good chance that she may be cancer free. Her scan two weeks ago was clear and her CEA is normal. Even if there is some lingering cancer somewhere, colon ca...
by Deb m
Fri May 17, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Large polyp removed
Replies: 5
Views: 327

Re: Large polyp removed

My mother went thru something similar to that. Two years ago, they found a polyp and removed it. It was found to be non cancerous. I think it was around 2 cm in size. They also marked the area with clips so they could keep an eye on it in future scopes. A year later, a new growth/polyp formed in the...
by Deb m
Wed May 15, 2019 9:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Possible lymph node metastasis
Replies: 15
Views: 1320

Re: Possible lymph node metastasis

On my husbands first pet scan after diagnosis, two lymph nodes lit up on the scan. When they removed them during the surgery, that were negative. Our oncologist at MDA said they were probably inflamed or infected from just having cancer. I'm hoping the same for you and that they are not censorious. ...

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