Checking in to say Follow-Up 16 happened at the beginning of March.
Still NED! I requested annual visits going forward, and they said "OK." woot!

I hope you all are staying safe and sheltered.

Celine

I was MSS too, Claudine!
Don't brush it off.
When "they" say immunotherapy doesn't work for MSS, they are talking about infused agents like Keytruda, and Yervoy, etc.

Celine

Hello DAS, Sorry to read about that tumor--hopefully you will have surgery and then NO WORRIES. You might remember that I also had a non-responding tumor. It was concerning to watch it get bigger every time they scanned, but they did ultimately remove it, and I think that's what they'll do for you, ...

Wow! So happy for you, DAS!!!

Celine

Checking in to report that follow-up FOURTEEN was all good. I am still NED.
Next follow-up in six months.

Celine

I'm so glad to read this!!! Good luck to you! I look forward to your updates

Celine

AMAZING!
So happy for you

Celine

Thank you for your kind words, sailbd! I was very happily surprised to see the story.
I hope that many more people's stories like it will be written.

Celine

Good luck!

Celine

wooHOO! So glad to see this update
I signed the same consent. Exciting stuff!

Congratulations!!!

Celine

For consult patients are not normally inpatient. Harvest surgery and apheresis will require a 2-to-4 day hospital stay. If all goes well, the treatment visit will require 3 to 4 weeks inpatient. Sometimes patients stay elsewhere at the beginning of this stretch, but once nutropenia sets in, they're ...

NHMike wrote:...it's nice to know that this is a possibility if I get a recurrence.

I agree! There is a lot more hope today than ever before! I think you're smart to keep reading and learning in case you might need the info some day. I'm hoping you won't need it though

Celine

... I am eagerly looking for a promising treatment for my mom. ...How was your experience? What was the response rate? Was it remission response for all patients that showed a response? Any inside on the gene mutations that could potentially benefit from this treatment? My mom is non msi-high stage...

I asked the attending, but he only said that it's "really hard to pin down."
I knew that already

Celine

Thanks, Lee!

c.