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by Sleen
Thu Feb 13, 2020 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

I was MSS too, Claudine!
Don't brush it off.
When "they" say immunotherapy doesn't work for MSS, they are talking about infused agents like Keytruda, and Yervoy, etc.

Celine
by Sleen
Mon Sep 23, 2019 11:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

Hello DAS, Sorry to read about that tumor--hopefully you will have surgery and then NO WORRIES. You might remember that I also had a non-responding tumor. It was concerning to watch it get bigger every time they scanned, but they did ultimately remove it, and I think that's what they'll do for you, ...
by Sleen
Mon Oct 01, 2018 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

Wow! So happy for you, DAS!!!

Celine
by Sleen
Sun Sep 16, 2018 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

Checking in to report that follow-up FOURTEEN was all good. I am still NED. :) :) :)
Next follow-up in six months.

Celine
by Sleen
Wed Aug 08, 2018 1:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 5688

Re: NIH trail update .. my T cells are growing!!

I'm so glad to read this!!! Good luck to you! I look forward to your updates :)

Celine
by Sleen
Thu Jun 14, 2018 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

AMAZING!
So happy for you :) :) :)

Celine
by Sleen
Wed Jun 06, 2018 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Washington Post art. today on NIH trial with "SLEEN"
Replies: 4
Views: 806

Re: Washington Post art. today on NIH trial with "SLEEN"

Thank you for your kind words, sailbd! I was very happily surprised to see the story.
I hope that many more people's stories like it will be written.

Celine
by Sleen
Wed May 02, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

Good luck!

Celine
by Sleen
Fri Mar 16, 2018 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

wooHOO! So glad to see this update :) :) :)
I signed the same consent. Exciting stuff!

Congratulations!!!

Celine
by Sleen
Tue Mar 06, 2018 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

For consult patients are not normally inpatient. Harvest surgery and apheresis will require a 2-to-4 day hospital stay. If all goes well, the treatment visit will require 3 to 4 weeks inpatient. Sometimes patients stay elsewhere at the beginning of this stretch, but once nutropenia sets in, they're ...
by Sleen
Thu Feb 08, 2018 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

NHMike wrote:...it's nice to know that this is a possibility if I get a recurrence.


I agree! There is a lot more hope today than ever before! I think you're smart to keep reading and learning in case you might need the info some day. I'm hoping you won't need it though :)

Celine
by Sleen
Thu Feb 08, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

... I am eagerly looking for a promising treatment for my mom. ...How was your experience? What was the response rate? Was it remission response for all patients that showed a response? Any inside on the gene mutations that could potentially benefit from this treatment? My mom is non msi-high stage...
by Sleen
Sat Feb 03, 2018 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

I asked the attending, but he only said that it's "really hard to pin down."
I knew that already :)

Celine
by Sleen
Sat Feb 03, 2018 7:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

Thanks, Lee!

c.
by Sleen
Wed Jan 31, 2018 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 618
Views: 204430

Re: TIL Immunotherapy at NCI

I'm back to report on Follow-up #13. Lucky 13 :) My scans show no signs of cancer! Bloodwork is good. Still NED. They asked me to consent to a new study where they will do research on my T-cells. They'd like to figure out how to "turn back the clock" and revert them to a previous state, wh...

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