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by Sleen
Mon Oct 01, 2018 8:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

Wow! So happy for you, DAS!!!

Celine
by Sleen
Sun Sep 16, 2018 8:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

Checking in to report that follow-up FOURTEEN was all good. I am still NED. :) :) :)
Next follow-up in six months.

Celine
by Sleen
Wed Aug 08, 2018 1:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NIH trial update .. my T cells are growing!!
Replies: 20
Views: 4139

Re: NIH trail update .. my T cells are growing!!

I'm so glad to read this!!! Good luck to you! I look forward to your updates :)

Celine
by Sleen
Thu Jun 14, 2018 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

AMAZING!
So happy for you :) :) :)

Celine
by Sleen
Wed Jun 06, 2018 10:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Washington Post art. today on NIH trial with "SLEEN"
Replies: 4
Views: 406

Re: Washington Post art. today on NIH trial with "SLEEN"

Thank you for your kind words, sailbd! I was very happily surprised to see the story.
I hope that many more people's stories like it will be written.

Celine
by Sleen
Wed May 02, 2018 8:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

Good luck!

Celine
by Sleen
Fri Mar 16, 2018 4:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

wooHOO! So glad to see this update :) :) :)
I signed the same consent. Exciting stuff!

Congratulations!!!

Celine
by Sleen
Tue Mar 06, 2018 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

For consult patients are not normally inpatient. Harvest surgery and apheresis will require a 2-to-4 day hospital stay. If all goes well, the treatment visit will require 3 to 4 weeks inpatient. Sometimes patients stay elsewhere at the beginning of this stretch, but once nutropenia sets in, they're ...
by Sleen
Thu Feb 08, 2018 12:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

NHMike wrote:...it's nice to know that this is a possibility if I get a recurrence.


I agree! There is a lot more hope today than ever before! I think you're smart to keep reading and learning in case you might need the info some day. I'm hoping you won't need it though :)

Celine
by Sleen
Thu Feb 08, 2018 12:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

... I am eagerly looking for a promising treatment for my mom. ...How was your experience? What was the response rate? Was it remission response for all patients that showed a response? Any inside on the gene mutations that could potentially benefit from this treatment? My mom is non msi-high stage...
by Sleen
Sat Feb 03, 2018 12:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

I asked the attending, but he only said that it's "really hard to pin down."
I knew that already :)

Celine
by Sleen
Sat Feb 03, 2018 7:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

Thanks, Lee!

c.
by Sleen
Wed Jan 31, 2018 3:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

I'm back to report on Follow-up #13. Lucky 13 :) My scans show no signs of cancer! Bloodwork is good. Still NED. They asked me to consent to a new study where they will do research on my T-cells. They'd like to figure out how to "turn back the clock" and revert them to a previous state, wh...
by Sleen
Thu Jan 11, 2018 1:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

wooHOO! Glad to hear from you :)
Praying for good news from the lab!
Hope your wife's surgery recovery is quick and complication-free.

Celine
by Sleen
Tue Dec 19, 2017 10:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 603
Views: 163600

Re: TIL Immunotherapy at NCI

A little about T-cells. I'm not a doctor, but I asked a lot of questions during and after the clinical trial. Killer T-Cells (CD8+ cells) are a type of tumor-infiltrating lymphocyte. Each T-cell is designed to recognize one (and ONLY one) antigen (bad guy). The part of the T-cell doing the "rec...

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