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by CheeseHead
Fri Nov 14, 2014 9:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Out of the Colon Club and into the Cholangiocarcinoma forum
Replies: 4
Views: 1718

Re: Out of the Colon Club and into the Cholangiocarcinoma fo

Gerry,

Just wanted to wish you all the best - hope you'll find a responsive and helpful group there as well... as well as shrinkage!

Regards,
Cheese
by CheeseHead
Mon Nov 10, 2014 4:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our dear Marc (lohidoc)
Replies: 65
Views: 10156

Re: Our dear Marc (lohidoc)

Marc, you were one of my heroes - even though we only met through forum & email, I got to know your honesty, willingness to investigate, bravery and compassion/willingness to help. I wish I met you while stile alive.... This must be a great loss to family and friends - my heartfelt condolences a...
by CheeseHead
Mon Nov 10, 2014 4:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cheesehead & oxi meet again
Replies: 18
Views: 2304

Re: Cheesehead & oxi meet again

All: thank you @Laurettas: yes, it seems I've come to terms with things a bit more, which is good. @Michael: thanks for your concern and posted experiences - as I said, I got neuropathy before despite Ca/Mg. The current hospital is one of two specialized cancer centers in our country, involved in re...
by CheeseHead
Fri Nov 07, 2014 5:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cheesehead & oxi meet again
Replies: 18
Views: 2304

Re: Cheesehead & oxi meet again

Thanks all!... I'll try and keep pushing those stats ;) @Belle, yes, I've had at least 2 clinical trials, one with Regorafenib, the other one I can't recall. However, out of options on any possible new ones. @kennyt-wisted: our hospital actually stopped calcium+magnesium unless neuropathy presented ...
by CheeseHead
Thu Nov 06, 2014 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cheesehead & oxi meet again
Replies: 18
Views: 2304

Cheesehead & oxi meet again

Hi all, Long time absent again - surfacing to let you know how it goes here in the House of Cheese. Unfortunately, my previous chemo, irinotecan, started failing (detected on CT while admitted for blockage... argh) and the onc told me I was out of options. That news certainly was devastating even th...
by CheeseHead
Thu Nov 06, 2014 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Clinical Trial - Round #2 - Updated
Replies: 5
Views: 774

Re: Clinical Trial - Round #2 - Updated

Argh, sorry to hear that NWGirl... glad you got home feeling better.
by CheeseHead
Fri Sep 12, 2014 11:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan Results? Kinda Sorta... (hey HIPECkers, please read)
Replies: 12
Views: 3023

Re: Scan Results? Kinda Sorta... (hey HIPECkers, please rea

Hi Phuong,

Just dropped in and saw your post. Hope you'll find something that works for you and zaps the sucker back to where it belongs.

Meanwhile, cheers!

All the best,
Cheese
by CheeseHead
Tue Jul 29, 2014 10:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OK, Kids. Come out of the closet. What do you guys do?
Replies: 104
Views: 17280

Re: OK, Kids. Come out of the closet. What do you guys do?

Hmmm, used to be an IT Auditor for a big financial company, including doing some penetration testing which was great fun. Before that: self-employed software developer and university.

Nerd all the time - just ask my wife ;)

Hoping the BBQ will happen out there!
by CheeseHead
Tue Jul 15, 2014 8:25 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T gotta question ???? Rant-vent
Replies: 28
Views: 3441

Re: O/T gotta question ???? Rant-vent

CRGuy, I missed the original post, but whatever happened, hope you dealt with it as well as you could and can leave the ugly stuff behind you. Keep hanging in there. ( bbq are not just as frequent in Scotland :D ) Shame on you! ;) (Though to be honest, across the little pond us CheeseHeads (as a peo...
by CheeseHead
Sun Jul 13, 2014 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here - starting inrinotecan
Replies: 14
Views: 1796

Re: New here - starting inrinotecan

Haven't had diarrhea during/directly after TX thanks to atropine injections with transfusion. My stomach is currently getting upset all the time but no diarrhea; usually had cramps, perhaps mild diarrhea after about 7 days. IIRC, doc said to take loperamide/imodium for that.. I'm unusual in that I w...
by CheeseHead
Sun Jul 13, 2014 6:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cheesehead doing ok
Replies: 7
Views: 1649

Re: Cheesehead doing ok

Thanks a lot guys!

@Bev: yes, reading the news about Ashlee was a very sad surprise...
@esk2poo: thanks - that signature looks good and brief and with the proper line at the bottom ;)

Hoping with you guys for interesting new trials that... hurry up ;)

All the best,
Cheese
by CheeseHead
Sat Jul 12, 2014 5:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Our beloved Ashlee has passed
Replies: 104
Views: 14166

Re: Our beloved Ashlee has passed

Oh,,,, :cry:

Haven't been on the board for ages... I feared this.

Judy, I'll miss you.
by CheeseHead
Sat Jul 12, 2014 5:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cheesehead doing ok
Replies: 7
Views: 1649

Cheesehead doing ok

Hi all, Background: previously fairly active on Colon Club but haven't logged on for a long time. Lohidoc kindly mentioned I haven't posted for a long time, so here another update. I'm doing ok - beginning of 2013 I had growing disease after regorafenib & failing liver functions. Fortunately was...
by CheeseHead
Tue Jan 07, 2014 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Brief check in
Replies: 12
Views: 1805

Brief check in

On Irinotecan now, last available chemo. Physically doing all right-ish... Mentally... just not too happy.

Not too talkative as you may have noticed ;)

Cheers,
Cheese

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