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by NZJay
Sat Nov 04, 2017 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How long after colon resection did you feel back to normal?
Replies: 11
Views: 340

Re: How long after colon resection did you feel back to normal?

Nearly 4 years out and I have not returned to how I was before cancer/surgery. But my 'new normal' is quite tolerable.
by NZJay
Sat Nov 04, 2017 3:36 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IIIb rectal cancer 32yo/f. Will I pass tumor with chemo/rad?
Replies: 7
Views: 263

Re: Stage IIIb rectal cancer 32yo/f. Will I pass tumor with chemo/rad?

As you are 3b I assume lymph node involvement.
Because of this - from my understanding, even if you had a complete response, surgery and post-op chemo would be recommended.
I'm sure your oncologist / surgical team can answer properly though.
by NZJay
Sat Nov 04, 2017 3:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA and silly request but..........
Replies: 9
Views: 444

Re: CEA and silly request but..........

CEA tests are scary obviously but I'm 99.999999% sure you'll be fine. I've never seen or read about a recurrence 5+ years after NED (or maybe 1 in about 20-30 million has had a recurrence) and I've skimmed through all 700+ pages of topics on this message board. LOL Also pretty much all doctors labe...
by NZJay
Sat Nov 04, 2017 3:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What is "normal" CEA?
Replies: 17
Views: 2525

Re: What is "normal" CEA?

My CEA has always been 'elevated' as per my signature. My medical team has never been overly concerned by it.
by NZJay
Mon Oct 30, 2017 11:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 682
Views: 143428

Re: For Stage III's: NED for how long now?

after my scope last week, I'm NED 3 years and 11 months. Final scan to come :arrow:
by NZJay
Sun Oct 29, 2017 4:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4(ish) year colonoscopy results
Replies: 10
Views: 529

Re: 4(ish) year colonoscopy result

Good to read you are ok. Stressful time when the scans etc. are due. As you know, I'm about the same time frame as you. I'm 4 years on 13 Nov and the colonoscopy was planned for October, but may not be until January. No CT scans were planned. Good luck with everything and give your dog a pat from D...
by NZJay
Fri Oct 27, 2017 4:32 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 4(ish) year colonoscopy results
Replies: 10
Views: 529

4(ish) year colonoscopy results

Hi All, Just a quick update. 2 years ago I had a post-chemo scope which showed a bunch of (7 or so) new polyps, so I had another scope scheduled for last week. Results; only 1 tiny polyp which they said they're 99% sure isn't pre-cancerous! This means no scopes for 5 years :mrgreen: :mrgreen: . Thro...
by NZJay
Tue Aug 29, 2017 7:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: OK, Kids. Come out of the closet. What do you guys do?
Replies: 104
Views: 10342

Re: OK, Kids. Come out of the closet. What do you guys do?

Unsure if I've posted in here before, but I'm a manager for a team of design engineers. Essentially a professional bully.
by NZJay
Sat Aug 19, 2017 1:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA increasing trend
Replies: 27
Views: 6481

Re: CEA increasing trend

Another higher than normal CEA guy here - always stayed NED regardless of slight rises
by NZJay
Wed Aug 09, 2017 2:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA update
Replies: 6
Views: 933

Re: CEA update

Thanks Lee :)
It seems like a minor thing, but that creeping CEA has really eaten away at my brain, so it's a great feeling to see it drop at last.

It made me laugh - at this appointment the registrar didn't even talk about cancer. They seemed more interested in the hernia mesh and pain issues.
by NZJay
Tue Aug 08, 2017 4:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Question about cea
Replies: 1
Views: 380

Re: Question about cea

Normal range CEA alone is not proof of absence of active cancer. Abnormal range CEA alone is not proof of presence of active cancer. So essentially, CEA trend monitoring just helps your team with your treatment / observation plan. IE whether chemo is probably reducing your tumours, whether you may n...
by NZJay
Tue Aug 08, 2017 2:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA update
Replies: 6
Views: 933

CEA update

Just posting as I've had a few people PM me about my CEA, which has remained fairly high and gradually trended up despite being NED on scans. Started 8.4 at diagnosis; 4.0 after chemo finished; got as high as 5.3 last year. I am really happy as my most recent CEA test showed a drop for the first tim...
by NZJay
Mon Jul 24, 2017 2:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BrownBagger ....... I don't know what to say
Replies: 117
Views: 19469

Re: BrownBagger ....... I don't know what to say

Gutted to hear this news. I'm so sorry - to all those who knew Eric better than I did. He had a great presence about him.
by NZJay
Tue Jul 11, 2017 4:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The Grim Reaper took another swipe at me !!
Replies: 1909
Views: 153280

Re: The Grim Reaper took another swipe at me !!

Goodbye, dude. Loved your humour and got so many chuckles from your posts.
My deepest condolences to you, Diane
by NZJay
Sat Jul 08, 2017 9:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 682
Views: 143428

Re: For Stage III's: NED for how long now?

3 years and 7 months NED from T4B Stage 3B/C (depends who I ask)

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