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by daisydaisy
Mon Oct 02, 2017 6:01 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stella (vilca11) went home (more than a month ago)
Replies: 21
Views: 3841

Stella (vilca11) went home (more than a month ago)

Dear all, I decided to post this, because I haven’t seen a message here about vilca11, and I don’t know if anyone is aware of her passing. It’s been more than a month already. We were “virtual” friends and exchanged e-mails, less frequently recently. Her husband Marek replied to my last e-mail. Vilc...
by daisydaisy
Wed May 24, 2017 10:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need advice for my grandmother
Replies: 3
Views: 744

Re: Need advice for my grandmother

Hello, Annavelik! Where exactly in Russia is she? She should try and get a second opinion at least.
by daisydaisy
Mon Mar 20, 2017 5:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New and freaked out for my mom (double cancer)
Replies: 20
Views: 5001

Re: New and freaked out for my mom (double cancer)

Hi, Roberto. Your mom's story is similar to my mom's - colon cancer in 2013 and breast cancer in 2015. I understand your feelings. Hopefully, your mom's cancer is cautght early. If she is 69, she might have hormonal therapy only (if her cancer is hormone positive). I hope she goes through treatment ...
by daisydaisy
Wed Mar 01, 2017 3:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here! Stage 2 treatment advice
Replies: 14
Views: 2413

Re: New here! Stage 2 treatment advice

Hi, I've noticed that the tumor was MSI - from what I know, 5-FU or Xeloda (and 5-FU is a part of Folfox regimen) is useless for MSI tumors. Good thing is that msi-tumors are considered as having better prognosis. Please confirm with your oncologist or get a second opinion, because your mother might...
by daisydaisy
Tue Feb 21, 2017 1:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Smile
Replies: 10
Views: 1793

Re: New Smile

Wow! I had to log in and post - these are beautiful teeth!
by daisydaisy
Sat Feb 04, 2017 4:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Just Diagnosed
Replies: 53
Views: 8134

Re: Just Diagnosed

Hello, Rikimaroo! Hope your treatment is going well. I accidentally came across your post and wanted to tell you that your surgeon Steven Wexner is one of the best colorectal surgeons in the world. I am in Russia, and I heard a lot about him in local medical community. You are lucky to have access t...
by daisydaisy
Mon Nov 30, 2015 12:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pinch me, please...new primary
Replies: 4
Views: 1382

Pinch me, please...new primary

Dear all, I am mostly a lurker here since 2013, when mom was diagnosed with colon cancer stage 2. It was a very difficult time for us, as she was diagnosed being highly symptomatic, had lost about 15 kg and had daily fever, low iron level, etc. Surgery was diffucult, too. Now 2 years after she devel...
by daisydaisy
Tue Nov 03, 2015 4:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda FDA Breakthrough Therapy Designation for MSI-High CRC
Replies: 4
Views: 1043

Re: Keytruda FDA Breakthrough Therapy Designation for MSI-High CRC

You posted about it in May - wow! By the way, I made a search here about keytruda, and one member, MikeW mentioned that he worked for Merck.
It is amazing to observe how promising drugs are being developed. And thank you, as usual, for providing us with this info!
by daisydaisy
Fri Oct 23, 2015 2:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I'm new on board
Replies: 34
Views: 3269

Re: New on board

Welcome, Fritz!

Please ask your onc again about MSI, there is research showing that chemo using 5FU (folfox) might not be effective for MSI-tumours. Plus I read in many sources that MSI tumours have a better prognosis overall.

Good luck!
by daisydaisy
Mon Oct 12, 2015 6:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Birthday check-up, CEA, T stage comments, aspirin
Replies: 28
Views: 2309

Re: Birthday check-up, CEA, T stage comments, aspirin

Happy Birthday, NZJay! Wishing you lots of health!
by daisydaisy
Fri Sep 25, 2015 5:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Appendix cancer and pseudomyxoma peritonei
Replies: 3
Views: 972

Re: Appendix cancer and pseudomyxoma peritonei

Thanks a lot, rwightman! I found his contact information and forwarded it to her.
by daisydaisy
Thu Sep 24, 2015 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Appendix cancer and pseudomyxoma peritonei
Replies: 3
Views: 972

Appendix cancer and pseudomyxoma peritonei

Dear all, I am looking for any info about a very rare disease - Pseudomyxoma peritonei caused by appendix cancer. My friend, who is only 34, the brightest and most beautiful girl I know, was diagnosed with this disease 3 years ago. She had surgery and HIPEC, but now her tumour is not behaving again ...
by daisydaisy
Thu Aug 27, 2015 5:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help to understand MSI status
Replies: 2
Views: 734

Re: Please help to understand MSI status

Thanks, I have already joined the group :wink:
by daisydaisy
Wed Aug 26, 2015 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please help to understand MSI status
Replies: 2
Views: 734

Please help to understand MSI status

Dear all, my most valuable source of information! (I was able to impress a top doc with my knowledge about CC - and the credit goes to everyone here!) I have the results of MSI testing in front of me (it is a difficult test to find here in Russia, so I was able to do it for my mom's tumour only 1.5 ...
by daisydaisy
Wed Jul 29, 2015 5:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scope on Thursday
Replies: 22
Views: 1971

Re: Scope on Thursday

Congrats!!! I had my first colonoscopy so far without sedation - weird experience. Glad to know yours went well!

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