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by Christine
Mon Mar 02, 2009 1:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Desensitization to Oxalipltinum
Replies: 4
Views: 950

Re: Desensitization to Oxalipltinum

My oncologist just discussed desensitization to oxaliplatin with me last week. I had an allergic reaction to Oxi three years ago and now we're going to return to it. For my first dose, I will just be in the clinic, but if I have a reaction then I will have my next dose in the hospital ICU over the c...
by Christine
Sat Oct 25, 2008 9:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anyone here had a boen marrow biopsy, whats it like?
Replies: 7
Views: 1892

Re: Anyone here had a boen marrow biopsy, whats it like?

I had a bone marrow biopsy done because of continued low platelet counts. I was given a local anesthetic and intramuscular shots of dilaudid and ativan. It wasn't pleasant, but it wasn't as horrible as I thought it would be. It doesn't take very long - it just feels strange. I'm not sure how to desc...
by Christine
Thu Jun 26, 2008 3:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: FOLFOX
Replies: 17
Views: 6592

Re: FOLFOX

Oxaliplatin, one of the FOLFOX drugs, causes cold sensitivity. You can try drinking cold drinks or touching something cold, but it will be a very unpleasant sensation. For me, it was almost like a burning sensation. The cold can also cause muscle spasms which, when in your throat, can make you feel ...
by Christine
Tue Jun 17, 2008 12:37 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My funny Vicodin story...
Replies: 14
Views: 2620

Re: My funny Vicodin story...

Oh, I just remembered something else... When I was on the morphine drip after my colon surgery, my roommate and his girlfriend came to visit and brought Trivial Pursuit with them. So we started to play. What I remember is that I did really well and wound up winning the game. What actually happened i...
by Christine
Mon Jun 16, 2008 9:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ascites
Replies: 2
Views: 1192

Re: Ascites

I was diagnosed with ascites last November. It was very uncomfortable and I was incredibly nervous after I did some online research about ascites and colon cancer. Then I went in to have the fluid drained. They weren't able to drain very much, but they did get enough so they could test it. They foun...
by Christine
Mon Jun 16, 2008 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My funny Vicodin story...
Replies: 14
Views: 2620

Re: My funny Vicodin story...

I was on a morphine drip after my liver resection, but my remaining liver wasn't processing the morphine so it was just building up in my body. Although I have no memory of this, my parents have told me that I had them laughing hysterically for almost an hour. I was telling stories and singing Weird...
by Christine
Wed Jun 11, 2008 1:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for Lung Mets
Replies: 12
Views: 2589

Re: RFA for Lung Mets

I didn't have the RFA done yesterday. Instead, they did cryoablation on the met because of the location (at the base of my right lung). It went well. I had to be awake for the whole thing which I was not expecting although I'm actually glad I didn't know ahead of time. I would have worried a lot mor...
by Christine
Sun Jun 08, 2008 2:24 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for Lung Mets
Replies: 12
Views: 2589

Re: RFA for Lung Mets

The RFA is scheduled for Tuesday morning. I'm a little nervous, but I'm extremely busy today and tomorrow so that should help keep my mind off it.
by Christine
Tue May 27, 2008 5:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for Lung Mets
Replies: 12
Views: 2589

Re: RFA for Lung Mets

Thanks for the replies. I have already decided to go with RFA. This lung met was first seen in December 2006 and measured at 2mm. Last month it measured 6mm so it is very slow growing. I also currently have no other evidence of active disease. What I am really looking for it personal experiences wit...
by Christine
Tue May 27, 2008 1:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA for Lung Mets
Replies: 12
Views: 2589

RFA for Lung Mets

I have a small nodule in my right lung (6mm) and rather than invasive surgery or chemotherapy, we have decided to use RFA. I'm looking for personal experiences with RFA to the lungs (not to the liver). Can anyone let me know what the procedure was like and how long it took to recover? Thanks! Christ...
by Christine
Fri May 09, 2008 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need some advice on my blod clot problem...
Replies: 7
Views: 1676

I had two clots up near my neck and they caused an enormous amount of pain (and swelling - I couldn't turn my head), but once I started on blood thinners (lovenox for two weeks; coumadin daily ever since) it didn't take long for the pain to go away. I did take pain killers as necessary. It did take ...
by Christine
Tue Apr 29, 2008 3:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Beer / Wine...
Replies: 8
Views: 1752

My oncologist told me that a liver specialist (I had mets) would tell me no alcohol, but he said no habitual or binge drinking. If I want to have a cocktail or glass of wine occasionally, I should, but no more than two. My liver is clear now, but the numbers are still off so he has me on the same pl...
by Christine
Tue Apr 29, 2008 3:04 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Gaining weight around the middle????
Replies: 11
Views: 2711

This is just a random possibility, but on the scans you had two weeks ago, was there any sign of fluid in the abdomen? I gained weight suddenly around my midsection and then they found it was caused by fluid. Your fingers swelling and the abdominal discomfort made me think of this. My fingers didn't...
by Christine
Tue Apr 29, 2008 2:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Bowel symptoms from hell.think i have cancer
Replies: 7
Views: 1620

Not all colon cancer patients are anemic - especially if the cancer is caught at an early stage. Unexplained anemia suggests colon cancer, but testing for anemia is not a way to diagnose colon cancer. The itching and mucus could also be hemorrhoids, but it's a good idea to see your doctor and push f...
by Christine
Mon Apr 28, 2008 10:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Trying to get off pain med, but...
Replies: 8
Views: 2307

One of the hardest things for me to learn after my diagnosis is that taking painkillers for real physical pain will not lead to an addiction. Because of your abcess and the fact that it is not closed up yet, your pain is completely understandable. And two Vicodin a day is almost nothing. Regarding t...

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