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by Nicolouna
Thu Apr 12, 2018 2:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My wife - Stage IV survivor, 9 years NED.
Replies: 12
Views: 2913

Re: My wife - Stage IV survivor, 9 years NED.

Thanks for sharing and giving me hope ❤️❤️❤️❤️
by Nicolouna
Thu Apr 12, 2018 2:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3b with ovarian met recurrence and healthy now
Replies: 14
Views: 3359

Re: Stage 3b with ovarian met recurrence and healthy now

I had mets to my left ovary and duodenum/pancreas 4 years after my initial diagnosis of colon cancer. Both have been resected. My surgeon believes these are 2 new separate cancers whereas my onco believes they are both mets. Very confusing and an atypical presentation as they say. All my tissues are...
by Nicolouna
Thu Apr 12, 2018 1:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for Stage II Updates for Colon Cancer Peeps
Replies: 25
Views: 5378

Re: Looking for Stage II Updates for Colon Cancer Peeps

I was diagnosed with a stage 2b or 2c colon cancer in August 2013, with poor prognostic factors (poorly differentiated, lots of invasion, T4 tumor). I opted for taking the chemo. 12 rounds of FOLFOX. Then I lived my life to the fullest - eloped, bought a condo, gave birth to a beautiful baby girl. A...
by Nicolouna
Thu Apr 12, 2018 1:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Is it an ovarian cyst or a potential ovarian met?
Replies: 13
Views: 2180

Re: Is it an ovarian cyst or a potential ovarian met?

Please get a second opinion. MRIs and CTs are not as accurate as vaginal ultrasounds to image the ovaries. I had a CT scan last year that showed cysts in both ovaries. It was followed up with an ultrasound that showed just one large cyst on my left ovary but they thought it looked like hyperstimulat...
by Nicolouna
Sat Sep 20, 2014 10:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Portacath
Replies: 14
Views: 1107

Re: Portacath

Portacath was inserted in interventional radiology under local sedation as an outpatient. Received chemo right after and went home that same day.
by Nicolouna
Mon Jul 28, 2014 5:20 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Filgrastim and skin-ache...
Replies: 5
Views: 751

Re: Filgrastim and skin-ache...

I had "skin pain" while I was on neupogen pretty much all over my body. It was especially felt when I was pressing on my skin, as if I was bruised everywhere (minus the bruises). Once I stopped taking neupogen, the skin pin stopped! Could have been muscular now that I think about it,..
by Nicolouna
Mon Jun 09, 2014 7:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The skin on my fingers is peeling - Folfox?
Replies: 22
Views: 4688

Re: The skin on my fingers is peeling - Folfox?

My fingers and feet were peeling a lot when I was on folfox. I was told it was because of the 5FU. This started as of cycle 3-4. It began as redness on my hands and feet, which was somewhat painful for 1-2 days, followed by peeling. I moisturized constantly but it seemed to help only with the pain, ...
by Nicolouna
Wed May 07, 2014 9:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Pregnancy after Chemo?
Replies: 5
Views: 967

Re: Pregnancy after Chemo?

My fiancée and I froze embryos prior to chemo. We managed to save 12. I see it as a backup plan. I don't think I've gone through menopause because of the chemo but since colorectal cancer is so rare under age 50, there isn't much data concerning fertility after folfox....
by Nicolouna
Thu May 01, 2014 7:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Here: stage 2a treatment options?
Replies: 22
Views: 3334

Re: New Here: stage 2a treatment options?

Hi Sunny, I was diagnosed this past august with a T4N0M0 tumor at 27 years old, making me stage IIb or IIc. I had lots of "poor prognostic features" so the oncologist recommended folfox. I figured I might as well do it, and have peace of mind in knowing I did what I could to prevent a rela...
by Nicolouna
Tue Apr 01, 2014 7:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stretching pain post right hemicolectomy
Replies: 5
Views: 998

Re: Stretching pain post right hemicolectomy

Thanks for you responses. I've booked a follow up appointment with my surgeon. He says he may order a scan just in case, I guess we'll see. Hopefully it's nothing!
by Nicolouna
Tue Apr 01, 2014 2:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stretching pain post right hemicolectomy
Replies: 5
Views: 998

Stretching pain post right hemicolectomy

Hi everyone, I had a laparoscopic right hemicolectomy at the end of August 2013. I recovered quickly and resumed my regular activities almost right away. My scar has also healed really wel. Since my surgery, however, I've been feeling some sort of "stretching" pain. When I take really big ...
by Nicolouna
Thu Mar 13, 2014 10:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: BEER AND CHEMO
Replies: 136
Views: 11239

Re: BEER AND CHEMO

The nutritionist in the oncology department has mentioned that having 1 drink per day is fine. I have enjoyed 2 drinks per day occasionally but I hardly drink.. maybe once every 2 weeks.
by Nicolouna
Tue Mar 11, 2014 11:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage II and no chemo?
Replies: 17
Views: 2294

Re: Stage II and no chemo?

I had a T4 tumor removed with high risk factors (lymphovascular invasion, poorly differentiated cells) so they recommended Folfox. I had an episode of liver toxicity after cycle 4. My doses have since been adjusted but I haven't had any major side-effects from the chemo. Just some mild nausea, hardl...
by Nicolouna
Fri Mar 07, 2014 2:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hello everyone!!
Replies: 12
Views: 1578

Re: Hello everyone!!

Hi Steve,
Wow diagnosed at 18... and I thought I was too young for colon cancer! Would love to hear your story. Hope everything is well on your end!
by Nicolouna
Fri Mar 07, 2014 1:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrex
Replies: 5
Views: 730

Re: Celebrex

I am on celebrex one day pre-chemo and on chemo days to prevent allergic reactions (I reacted to oxaliplatin on cycle #8). The celebrex is given to me with singulair. Both these medications are not usually prescribed for allergic reactions but I guess in my case, they are necessary.

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