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by Ratepo
Mon Apr 17, 2017 7:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After 65 years of which 4,5 years with cancer my dad has passed away
Replies: 10
Views: 2367

After 65 years of which 4,5 years with cancer my dad has passed away

It is with great sadness that I announce that my dear father has passed away Sunday the 9th of April. I don't post this just to have your grief, but it's when people look for my posts in the future they will see that my dad's 'story' has ended as I won't visit this forum anymore. He had a great life...
by Ratepo
Fri Mar 31, 2017 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help: painful abscess unable to operate
Replies: 4
Views: 1253

Re: Help: painful abscess unable to operate

Thanks for your advice, sounds 'good'. Can you describe the closed drain system perhaps a bit more? What is the exact difference
And they place it while being monitored with ct-scan to place it correctly?

They stated that contents of the cecum could flow in the belly when they place a drain.
by Ratepo
Fri Mar 31, 2017 1:15 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Help: painful abscess unable to operate
Replies: 4
Views: 1253

Help: painful abscess unable to operate

We experience a difficult time at the moment. My father developed a very painful abscess near his buttock. He went to the hospital for it as he couldn't sit anymore and had constant pain. We were afraid it was his pelvic mets causing it, but scans showed it was a abscess which probably was triggered...
by Ratepo
Mon Mar 20, 2017 5:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How to fight fatigue caused by Xeloda?
Replies: 2
Views: 1689

How to fight fatigue caused by Xeloda?

Hi all, I've read 2 tips while being on Xeloda: keep hydrated and keep moving (sports, walking etc.) whenever possible. Does anybody have other useful things to consider? A magic pill which gives an immediate energy boost would be nice, but that will be a bit too much to ask. My father is on chemo f...
by Ratepo
Wed Mar 15, 2017 2:02 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stable scan
Replies: 4
Views: 1125

Re: Stable scan

Very glad to hear! A huge relief I can imagine after the previous growth. Did they mention anything about the recurrent local cancer?
by Ratepo
Mon Mar 06, 2017 10:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sacrectomy? Or not?
Replies: 11
Views: 4625

Re: Sacrectomy? Or not?

I'm sorry to hear your experience. Be very, very, proactive is the one main thing I would advice. We did go for a 2nd opinion and considering what I read I would go for that in your case as well. Further QOL is at stake here as the pelvic area is full of nerves and organs. A sacretomy might impact w...
by Ratepo
Sat Feb 11, 2017 4:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After rectal cancer, liver mets and local recurrence now 1 lung met - advice very welcome
Replies: 3
Views: 1185

Re: After rectal cancer, liver mets and local recurrence now 1 lung met - advice very welcome

It's MSS and he's also kras mutant, so actually shouldn't be the nicer tumour cells devastating his body....though his survival proves that doesn't say all!
Yes, from the Netherlands indeed.
by Ratepo
Fri Feb 10, 2017 12:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: After rectal cancer, liver mets and local recurrence now 1 lung met - advice very welcome
Replies: 3
Views: 1185

After rectal cancer, liver mets and local recurrence now 1 lung met - advice very welcome

Well my father had liver mets, recurrence at rectum but now also has the one he didn't had yet: lung met. Situation in short: September '16 ct-scan showed 5mm lung thing, however too small to state if it's a met. 5 months later new scan, cea rise (from 18 to 34, his cea is very sensitive) and it's n...
by Ratepo
Wed Nov 30, 2016 8:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: total pelvic exenteration
Replies: 40
Views: 12052

Re: total pelvic exenteration

I rarely post here anymore though I used to be a frequent visitor. However a reply here from someone whose father had more or less had this operation. I do realize this operation can be more extensive for women. However my father has no prostate, bladder, rectum anymore and also lives with a colosto...
by Ratepo
Sun Jun 26, 2016 1:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does skin cancer raise cea?
Replies: 3
Views: 870

Does skin cancer raise cea?

Perhaps somebody here knows it...my dad has got his blood tested for cea. However he also had skin cancer which is removed just now after his blood was tested. We'll get the cea results next week. Is it possible that the skin cancer effects the cea level?
by Ratepo
Tue May 24, 2016 12:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low blood pressure and dizzy spells, what could it be?
Replies: 7
Views: 1363

Re: Low blood pressure and dizzy spells, what could it be?

Thank you very much for your input. I also suggested it could be that he doesn´t drink enough and it´s assuring the same is said here. Especially as it´s getting warmer last weeks. There is another explanation for it as my father has besides a colostomy since January 2013 als a urostomy as ´gift´ fr...
by Ratepo
Tue May 24, 2016 2:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Low blood pressure and dizzy spells, what could it be?
Replies: 7
Views: 1363

Low blood pressure and dizzy spells, what could it be?

My father has incurable colon cancer as last October some tiny pelvic tumours couldn't be removed. He is however handling it very well physically, playing golf, walking, cycling etc. He doesn't have chemo or other treatment now, it's more a wait & see approach which we are happy with and the onc...
by Ratepo
Thu Jan 28, 2016 2:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Incurable mets in lower pelvis - what to ask onc?
Replies: 4
Views: 1450

Re: Incurable mets in lower pelvis - what to ask onc?

Thanks for your answers! Well weisssoccermom the pelvic exenteration is actually what my father had, that's why it's pretty amazing that 2 months after surgery he was skiing as if nothing had happened :-) Perhaps when the mets starts to grow they can remove most of the cancer again so he doesn't hav...
by Ratepo
Wed Jan 27, 2016 8:00 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Incurable mets in lower pelvis - what to ask onc?
Replies: 4
Views: 1450

Incurable mets in lower pelvis - what to ask onc?

My dad was operated last October where the docs found out that the one recurrent local tumour didn't turn out to be one, but multiple tiny scattered around the lower pelvis. They removed the most they could, but couldn't get everything. Since then he's definitely incurable and the surgeon told us af...

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