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by LabLover
Sat Dec 06, 2014 11:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back Pain
Replies: 9
Views: 1740

Re: Back Pain

I don't know if it's common but I had back pain after surgery. I slept with a heating pad for 3 weeks or so after surgery. The pain eventually faded and I don't have any lingering back pain.
by LabLover
Tue Sep 09, 2014 4:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Hospital Stay Duration
Replies: 21
Views: 2275

Re: Hospital Stay Duration

Surgery Tuesday. Discharged Friday. 3 nights
Ileostomy reversal 1 night.
by LabLover
Tue Sep 09, 2014 10:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal Log: Experience,Problems, Q & A's
Replies: 436
Views: 92800

Re: Reversal Log: Experience,Problems, Q & A's

Just wanted to provide another good outcome reversal story. I had my temp ileostomy almost 8 months. My reversal was May 27th. Never had an accident, never needed a diaper and didn't need immodium regularly. Pretty much eat what I want and resumed my daily activities with no issues. Do I have some u...
by LabLover
Wed Aug 27, 2014 11:51 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Lynch Syndrome 2013, just diagnosed colon cancer
Replies: 15
Views: 3039

Re: Lynch Syndrome 2013, just diagnosed colon cancer

I was diagnosed with lynch last year shortly after my stage 3 rectal cancer diagnosis. It was a complete shock I have no known relatives with "lynch" cancers on either side. So initially I had no idea of it was paternally or maternally passed to me. My father got tested and was positive. H...
by LabLover
Wed Aug 06, 2014 7:38 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What If People Around You Think You're Going to DIe?
Replies: 24
Views: 3726

Re: What If People Around You Think You're Going to DIe?

I hope I can convey my feelings in a the spirit with with they're intended- just as another perspective and not trying to negate your feelings. Your FIL believed he was having what he believed to be a confidential and heartfelt conversation with his son. I think it's a damned if you do damned if you...
by LabLover
Fri May 09, 2014 7:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New here, just diagnosed at age 38
Replies: 16
Views: 3520

Re: New here, just diagnosed at age 38

I was diagnosed with stage 3 rectal cancer last May at the age of 37 (with no family history). My kids were 8 and 10 at the time. I too was terrified of leaving my children motherless. However, once the shock wears off you do what you have to do to try to beat this terrible disease. Is the tumor in ...
by LabLover
Sat Mar 01, 2014 9:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: The 30 Something Rectal Cancer Patient
Replies: 20
Views: 4181

Re: The 30 Something Rectal Cancer Patient

I was diagnosed with stage 3 rectal cancer in May at 37 yo. I have 2 school aged kids (11yo and 9yo). I completed chemo/radiation, surgery and now finishing up chemo. I'm hoping to have my reversal
by LabLover
Sun Feb 16, 2014 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Radiation & Xeloda
Replies: 8
Views: 1398

Re: Radiation & Xeloda

I had xeloda and radiation. 5 days on/2 days off for 5.5 weeks. So essentially Monday-Friday chemo and radiation. Nothing on weekends. Then start over again. I had no issues with the xeloda and honestly the radiation didn't start to get uncomfortable until 4 weeks in or so. Even then it was manageab...
by LabLover
Sun Feb 16, 2014 8:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Your 2 cents on stopping oxali
Replies: 18
Views: 1938

Re: Your 2 cents on stopping oxali

I only completed 4 rounds of oxi out of the recommended 6. It was my oncologist decision to stop oxi based on my reaction. I questioned if it would affect my long term prognosis and they didn't. So now I'm on xeloda only which is completely manageable (i have had no side effects from it) and I'm bac...
by LabLover
Thu Feb 06, 2014 12:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dropping oxi after 4 treatments...any insights?
Replies: 16
Views: 2083

Re: Dropping oxi after 4 treatments...any insights?

Hi, I was just diagnosed dec. 23 2013 , had surgery to remove tumor from colon and 1 out of 17 lymph nodes is affected. I start Folfox in two days. What is the breathing problem side effect? What did you do for it? I think that might be the one side effect that I might freak out about. About 20 min...
by LabLover
Sat Feb 01, 2014 7:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 6 rounds of FOLFOX??
Replies: 11
Views: 1314

Re: 6 rounds of FOLFOX??

I was scheduled for six rounds of xelox. I only completed 4 before the oxi reaction become unmanageable. So now I'm only xeloda only for the last 2 cycles. I was assumed stage 3 rectal cancer. Completed chemo/ radiation prior to surgery. Surgery no sign of cancer in tumor or any lymph nodes (26 test...
by LabLover
Sun Jan 26, 2014 7:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dropping oxi after 4 treatments...any insights?
Replies: 16
Views: 2083

Re: Dropping oxi after 4 treatments...any insights?

It's a done deal. Just heard from my oncologist. Dropping oxi. Continuing 2 more rounds of xeloda only. Thanks for all the feedback. I'm actually quite relieved to be done with oxi.
by LabLover
Fri Jan 24, 2014 10:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dropping oxi after 4 treatments...any insights?
Replies: 16
Views: 2083

Dropping oxi after 4 treatments...any insights?

I just completed my fourth round of oxi (I'm scheduled for a total of 6). I've had a reaction after treatments 2,3,and 4. About 20 minutes after disconnect I get extreme shortness of breath. I sound like a seal kind of like when kids have croup. It's always happen while still at cancer center which ...
by LabLover
Wed Jan 15, 2014 6:25 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reversal/Takedown COUNTDOWN! updated!
Replies: 36
Views: 3362

Re: Reversal/Takedown COUNTDOWN!!!

Good luck! Keep us updated on your progress. I'm hoping to have my reversal in 2 months, can't wait. Maybe I'm bad, but I still sleep on my stomach with the ileostomy.
by LabLover
Mon Jan 06, 2014 1:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Getting ready for LAR and ileostomy surgery
Replies: 11
Views: 1283

Re: Getting ready for LAR and ileostomy surgery

I had my rectal surgery 10/8(Tuesday) and was home Friday. I also had hysterectomy and ovaries removed. All in all, 10.5 hours of surgery. So all day Tuesday I was in the or and I recovered in hospital Wednesday and Thursday and was on way home by Friday afternoon. It wasn't easy but I had an epidur...

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