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by DK37
Fri Oct 27, 2017 6:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Update on DK (Dr. Tom Marsilje)...
Replies: 15
Views: 1429

Re: Update on DK (Dr. Tom Marsilje)...

THANK YOU everyone for the the kind words!! Although I do not have the bandwidth to read or respond to posts as much as I did last year as I focus my online advocacy on FB and my personal blog, --- as my first CRC message board, you, remain very close to my heart & mind!! I wish everyone here th...
by DK37
Mon Oct 02, 2017 7:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 2552

Re: DK37 Experimental Immunotherapy Treatment Update

For those of you curious how my "home made" immunotherapy experimental treatment (Atezo/FOLFIRI/Avastin) has been going the past month, here is the first report (as a personal blog post)! https://adventuresinlivingterminallyoptimistic.com/?p=7238 So this is what GOING OFF-ROADING – EXPERI...
by DK37
Mon Oct 02, 2017 7:45 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 2552

Re: DK37 Experimental Immunotherapy Treatment Update

DK, Your daughters are darling...as is the new addition to the family, Blink. Agree 100% the love & lessons animals bring to the home. Congratulations to you in concocting your very own " witches brew " , enlisting onc as co-conspirator :P BS I LOVE the pic Bitchslapped! Thanks for it...
by DK37
Mon Oct 02, 2017 7:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 2552

Re: DK37 Experimental Immunotherapy Treatment Update

Hi Tom. I follow your blog when I can. I remember reading that you underwent SIRT with Y90? Is that accurate? I ask because I am about to undergo SIRT next week as well. How was it? I am also on Pembrolizumab (temporarily stopped for now but will continue after SIRT). Any thoughts on the possible a...
by DK37
Tue Sep 12, 2017 12:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 2552

Re: DK37 Experimental Immunotherapy Treatment Update

veckon wrote: But I didn’t, and things remarkably improved. But it took a long time, and my recovery is still ongoing.


I am sorry to hear about the weeks of hell but very glad to hear that things are improving!

Please take care and best of luck-
-DK
by DK37
Mon Sep 11, 2017 7:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 2552

Re: DK37 Experimental Immunotherapy Treatment Update

Why combine chemotherapy and immunotherapy? Aren’t most chemotherapies immunosuppressive? It depends on the chemotherapy. Some are synergistic with immunotherapies (oxaliplatin is a prime example - it is highly synergistic). The immune system is complex with some immune system cells being immune ac...
by DK37
Mon Sep 11, 2017 7:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 2552

Re: DK37 Experimental Immunotherapy Treatment Update

I’m confused. This looks like blog post, not meant for scientific publication. Are you actually in a trial or just experimenting on yourself? Anyway, I can testify to the intense pain at primary tumor site experienced when I first started Pembrolizumab. Lasted six weeks. Six weeks of hell. Hi vecko...
by DK37
Sun Sep 10, 2017 11:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Experimental Immunotherapy Treatment Update
Replies: 18
Views: 2552

DK37 Experimental Immunotherapy Treatment Update

For those of you curious how my "home made" immunotherapy experimental treatment (Atezo/FOLFIRI/Avastin) has been going the past month, here is the first report (as a personal blog post)! https://adventuresinlivingterminallyoptimistic.com/?p=7238 Excerpt: So where do things stand now? I ge...
by DK37
Thu Jul 06, 2017 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37 Blog: ASCO 2017 Best MSS CRC Presentation/Clinical Trial
Replies: 8
Views: 1361

DK37 Blog: ASCO 2017 Best MSS CRC Presentation/Clinical Trial

Hi Everyone, I wrote up a blog about ASCO 2017. Post it was a bit delayed due to some medical adventures on my end........ "THE BEST MSS COLORECTAL CANCER TALK AND CLINICAL TRIAL AT ASCO 2017" https://adventuresinlivingterminallyoptimistic.com/2017/07/02/the-best-mss-colorectal-cancer-talk...
by DK37
Thu May 18, 2017 11:32 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSS-CRC Immunotherapy Clinical Trial at ASCO-2017: RO6958688 + Tecentriq (ANTI-PDL1)
Replies: 5
Views: 1396

MSS-CRC Immunotherapy Clinical Trial at ASCO-2017: RO6958688 + Tecentriq (ANTI-PDL1)

A short blog post on what I think is the biggest MSS-CRC immunotherapy news coming out of ASCO-2017 this year: The RO6958688 + Tecentriq (ANTI-PDL1) clinical trial. https://adventuresinlivingterminallyoptimistic.com/2017/05/18/pre-asco-2017-mss-crc-immunotherapy-breaking-news-ro6958688-anti-pdl1/ Ch...
by DK37
Wed May 17, 2017 3:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!
Replies: 5
Views: 998

Re: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

In addition to sending you MEGA CHEERS ! .... I have linked this new information into our Clinical Trials Sticky A DK37 CURATED MSS-CRC CLINICAL TRIAL FINDER! >> UPDATED Best wishes buddy CRguy Thank you for the sticky CR! Awesome!! I honestly think this trial finder has the potential to help many ...
by DK37
Wed May 17, 2017 8:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37: An Ironic Cancer Life
Replies: 8
Views: 1696

Re: DK37: An Ironic Cancer Life

Very well written blog! Good luck with SIRT. It can and will do wonders!! Hoping San Diego has best to offer in terms of treatment. Have u thought of giving MSKCC a try? Hi andy21, I have been to MSKCC for a second opinion consult. I decided to stay at UCSD because they have plenty of experience an...
by DK37
Wed May 17, 2017 8:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!
Replies: 5
Views: 998

NEW DK37 AND MAIA MSS-CRC CLINICAL TRIAL FINDER!

BIG NEWS ANNOUNCEMENT! I'm excited to announce a new curated Stage IV MSS-CRC clinical trial finder tool that I have developed with the help of Maia from here in Colon Talk, Fight Colorectal Cancer and Flatiron Health! As always, I advocate patients using multiple tools to try to find clinical trial...
by DK37
Mon May 08, 2017 8:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DK37: An Ironic Cancer Life
Replies: 8
Views: 1696

DK37: An Ironic Cancer Life

Hi Everyone, Although I know I have been quiet on Colon Talk recently between serious medical issues & thus needing to focus my advocacy a bit due to logistical constraints... I know there are many people here - my first patient advocacy home!! - that may be curious to read the latest twists &am...
by DK37
Sat Apr 01, 2017 6:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Big Trial Announcement: MSS-CRC/KRAS-Mut TCR Cellular Immunotherapy Trial from Kite Pharma
Replies: 7
Views: 1908

Re: Big Trial Announcement: MSS-CRC/KRAS-Mut TCR Cellular Immunotherapy Trial from Kite Pharma

flyboy22 wrote:Any updates on this trial? Did they ever begin it? Are they still recruiting?


The latest (rumor, unofficial) update I heard was about a month ago - saying that the trial was still planned for 2017 but would not start until a bit later in the year.

Cheers,
-DK

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