THANK YOU everyone for the the kind words!! Although I do not have the bandwidth to read or respond to posts as much as I did last year as I focus my online advocacy on FB and my personal blog, --- as my first CRC message board, you, remain very close to my heart & mind!! I wish everyone here th...
For those of you curious how my "home made" immunotherapy experimental treatment (Atezo/FOLFIRI/Avastin) has been going the past month, here is the first report (as a personal blog post)! https://adventuresinlivingterminallyoptimistic.com/?p=7238 So this is what GOING OFF-ROADING – EXPERI...
DK, Your daughters are darling...as is the new addition to the family, Blink. Agree 100% the love & lessons animals bring to the home. Congratulations to you in concocting your very own " witches brew " , enlisting onc as co-conspirator :P BS I LOVE the pic Bitchslapped! Thanks for it...
Hi Tom. I follow your blog when I can. I remember reading that you underwent SIRT with Y90? Is that accurate? I ask because I am about to undergo SIRT next week as well. How was it? I am also on Pembrolizumab (temporarily stopped for now but will continue after SIRT). Any thoughts on the possible a...
Why combine chemotherapy and immunotherapy? Aren’t most chemotherapies immunosuppressive? It depends on the chemotherapy. Some are synergistic with immunotherapies (oxaliplatin is a prime example - it is highly synergistic). The immune system is complex with some immune system cells being immune ac...
I’m confused. This looks like blog post, not meant for scientific publication. Are you actually in a trial or just experimenting on yourself? Anyway, I can testify to the intense pain at primary tumor site experienced when I first started Pembrolizumab. Lasted six weeks. Six weeks of hell. Hi vecko...
For those of you curious how my "home made" immunotherapy experimental treatment (Atezo/FOLFIRI/Avastin) has been going the past month, here is the first report (as a personal blog post)! https://adventuresinlivingterminallyoptimistic.com/?p=7238 Excerpt: So where do things stand now? I ge...
Hi Everyone, I wrote up a blog about ASCO 2017. Post it was a bit delayed due to some medical adventures on my end........ "THE BEST MSS COLORECTAL CANCER TALK AND CLINICAL TRIAL AT ASCO 2017" https://adventuresinlivingterminallyoptimistic.com/2017/07/02/the-best-mss-colorectal-cancer-talk...
A short blog post on what I think is the biggest MSS-CRC immunotherapy news coming out of ASCO-2017 this year: The RO6958688 + Tecentriq (ANTI-PDL1) clinical trial. https://adventuresinlivingterminallyoptimistic.com/2017/05/18/pre-asco-2017-mss-crc-immunotherapy-breaking-news-ro6958688-anti-pdl1/ Ch...
In addition to sending you MEGA CHEERS ! .... I have linked this new information into our Clinical Trials Sticky A DK37 CURATED MSS-CRC CLINICAL TRIAL FINDER! >> UPDATED Best wishes buddy CRguy Thank you for the sticky CR! Awesome!! I honestly think this trial finder has the potential to help many ...
Very well written blog! Good luck with SIRT. It can and will do wonders!! Hoping San Diego has best to offer in terms of treatment. Have u thought of giving MSKCC a try? Hi andy21, I have been to MSKCC for a second opinion consult. I decided to stay at UCSD because they have plenty of experience an...
BIG NEWS ANNOUNCEMENT! I'm excited to announce a new curated Stage IV MSS-CRC clinical trial finder tool that I have developed with the help of Maia from here in Colon Talk, Fight Colorectal Cancer and Flatiron Health! As always, I advocate patients using multiple tools to try to find clinical trial...
Hi Everyone, Although I know I have been quiet on Colon Talk recently between serious medical issues & thus needing to focus my advocacy a bit due to logistical constraints... I know there are many people here - my first patient advocacy home!! - that may be curious to read the latest twists &am...
flyboy22 wrote:Any updates on this trial? Did they ever begin it? Are they still recruiting?
The latest (rumor, unofficial) update I heard was about a month ago - saying that the trial was still planned for 2017 but would not start until a bit later in the year.