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by gator.girl
Mon Dec 21, 2015 11:15 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CRC FELLOWS WITH LIVER METS - GO 2 SLOAN PLEASE
Replies: 60
Views: 8375

Re: CRC FELLOWS WITH LIVER METS - GO 2 SLOAN PLEASE

Wow this is exciting news! I read about the pump when I first was diagnosed and my doctors all brushed it off as "old technology" and they all prefer what interventional radiology has to offer but I have always kept it in the back of my mind as some people do have really good results with ...
by gator.girl
Sat Nov 28, 2015 8:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rest in Peace Carmen
Replies: 41
Views: 6120

Re: Rest in Peace Carmen

I am so sad over this incredible loss. Carmen was an incredible woman. Can't stop the tears from rolling...
by gator.girl
Mon Aug 31, 2015 3:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New PD-1 Inhibitor Combo Studies for CRC (All or MSS Specific)
Replies: 6
Views: 3096

Re: New PD-1 Inhibitor Combo Studies for CRC (All or MSS Specific)

Thanks DK! This is exciting for MSS! So stressful though to have to play this strategically.... Yikes - when do you know to jump in?

Rachel
by gator.girl
Mon Jun 22, 2015 7:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Camp Kesem
Replies: 7
Views: 1189

Re: Camp Kesem

I have Stage 4 and am a psychologist... I volunteered last year (and will again in August) as Kesem's mental health counselor while my 2 boys (then 8 & 10) attended the camp and it was an incredible experience... For them and me! Here's a blog post I wrote about it.... https://drrlefebvre.wordpr...
by gator.girl
Mon Jun 22, 2015 7:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT - Dr. Lin ONGOING Thread
Replies: 94
Views: 21508

Re: ADAPT - Dr. Lin ONGOING Thread

Has anyone seen *new* data from the ADAPT protocol? Was anything presented at ASCO?
by gator.girl
Mon Jun 22, 2015 6:30 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 612
Views: 190437

Re: TIL Immunotherapy at NCI

Very exciting news and thanks so much for keeping us updated! We are all routing for you!!!
by gator.girl
Fri May 22, 2015 5:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Approval of cyramza for crc
Replies: 10
Views: 1536

Approval of cyramza for crc

Just wondering, there's this hype around cyramza's approval for CRC in addition to Folfiri but it says "Cyramza showed promising results in the phase 3 RAISE trial that led to its approval, extending overall survival by 1.6 months and progression-free survival by 2.2 months compared with FOLFIR...
by gator.girl
Fri May 22, 2015 5:00 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TAS 102
Replies: 9
Views: 1333

Re: TAS 102

It is available at 29 sites - in 21states...
https://clinicaltrials.gov/ct2/show/NCT02286492
by gator.girl
Fri May 22, 2015 4:28 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 DAY FURLOUGH
Replies: 22
Views: 2106

Re: 7 DAY FURLOUGH

Yeah party at your house!!!!!

Ok I have never heard of bolus - what is that??

My WBC went down every infusion - had neulasta shot after the 6th treatment...
Hoping my supplements will keep me from other boosters - I upped my mushrooms so hopefully that will help!
by gator.girl
Sun May 17, 2015 10:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ADAPT - Dr. Lin ONGOING Thread
Replies: 94
Views: 21508

Re: ADAPT - Dr. Lin ONGOING Thread

Thanks for the update Carmen! I agree with Julie - I think the docs don't even know and there is a lot of trial and error - I am intrigued by Dr. Lin - I wonder why it was so important for him to have you (Carmen) go see him in person? He responded to my inquiries by email but in the end his respons...
by gator.girl
Mon May 11, 2015 9:08 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: TIL Immunotherapy at NCI
Replies: 612
Views: 190437

Re: TIL Immunotherapy at NCI

Totally agree with Kenny! I so hope you two are the poster child(ren) for immunotherapy in CRC - we soooooo need it!
by gator.girl
Mon May 11, 2015 9:02 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: stage 4 and want aggressive treatment
Replies: 13
Views: 2167

Re: stage 4 and want aggressive treatment

As soon as I found out about the HAI pump I immediately talked to my oncologist about it. His take was that it was "old technology" he felt that interventional radiologists had better options for the liver including radioembolization and chemoembolization. I had the first done to my liver ...
by gator.girl
Mon May 11, 2015 8:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chia seed discovery and experimental cure
Replies: 7
Views: 1082

Re: Chia seed discovery and experimental cure

I wish we could "like" the posts! Haha Kennytwisted!
by gator.girl
Mon May 11, 2015 8:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tips for getting through Folfiri/Avastin???
Replies: 14
Views: 2213

Re: Tips for getting through Folfiri/Avastin???

Just had my 7th infusion of folfiri - we are holding off avastin for now but avastin didn't seem to do much for me... I agree atropine has been a must and it dries me up so much so I get the opposite of running to the can which I actually prefer... Having to chose between the 2 that is!... I also ta...
by gator.girl
Thu May 07, 2015 7:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent Interview w/Cancer Researcher-MJ cure
Replies: 25
Views: 1728

Re: Recent Interview w/Cancer Researcher-MJ cure

I found this link about juicing… thought it was interesting….
http://www.medicaljane.com/2013/01/19/c ... of-health/


I know us Stage 4 fighters should have every right to try anything and everything that could help :(

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