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by stu
Thu Jun 21, 2018 4:39 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Home from the hospital
Replies: 2
Views: 231

Re: Home from the hospital

Oh fantastic news . Glad to hear that your fluid is starting to go down . I am so pleased you are surrounded by good people . My mum was always so pleased to get home . You have endured so much so well . Now onwards to longevity. Mum’s liver is in great shape . Her team have had a chat and they want...
by stu
Thu Jun 21, 2018 4:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New user. 4 months after HIPEC, spots on liver and peritoneum, please please help me
Replies: 4
Views: 329

Re: New user. 4 months after HIPEC, spots on liver and peritoneum, please please help me

Hi , Your are all having a very rough time and as a family we know how dismantling a quick recurrence can be . Sometimes it’s more than one step to NED . He has mounted a response before and may well do again . This happened to my mum and she responded again and had further surgery . I have no knowl...
by stu
Wed Jun 20, 2018 3:18 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Please Send Good Vibes for Friday
Replies: 3
Views: 162

Re: Please Send Good Vibes for Friday

Well do . I hope everything goes smoothly for him and you get great reassuring news.
You are only human and sometimes it’s just plain hard. But it’s amazing how you pop out on the other side .
Take special care,
Stu
by stu
Tue Jun 19, 2018 3:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A cautionary tale
Replies: 13
Views: 708

Re: A cautionary tale

Hi rp1954, I have to say your own input is quite incredible with your wife and I frequently find myself in quite admiration . I am not sure what your own background was or was it a massive learning curve when you entered a “ needs must situation” . However at the same time I would never be able or c...
by stu
Tue Jun 19, 2018 4:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: pet scan result...what the .....?
Replies: 18
Views: 689

Re: pet scan result...what the .....?

Hi , All they can say for sure is that you have uptake in your breast area . That could be caused by many things . Nine years into a stage4 diagnosis the hardest scans to interpret are PET scans . It’s one I leave well alone . Around year five my mum had to go for further testing due to something th...
by stu
Tue Jun 19, 2018 1:36 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Back to the Hospital
Replies: 5
Views: 355

Re: Back to the Hospital

Hi , I sincerely hope she is feeling some relief. That sounds a lot to endure . If it can be stented I would imagine it should clear up quite quickly but I would think she would want a little down time to recover from that . It must have given her quite a fright and painful . How are you holding up ...
by stu
Sat Jun 16, 2018 1:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: hospice
Replies: 13
Views: 866

Re: hospice

Sending our love at such a difficult time .
Stu
by stu
Tue Jun 12, 2018 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recommendations for stage 4/liver mets
Replies: 6
Views: 404

Re: Recommendations for stage 4/liver mets

Hi , Great advise to get another opinion . That’s exactly what happened to my mum. She had a second recurrence with five small mets . The biggest was around I cm. Our positive spin was that the tumour load was considerably smaller than before . However the oncologist was not keen to refer her to a s...
by stu
Thu Jun 07, 2018 1:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin in UK's NHS vs. USA Healthcare
Replies: 34
Views: 910

Re: Avastin in UK's NHS vs. USA Healthcare

Hi rp1954 , I think you are correct there . It is a very prescriptive approach , probably because of litigation and protocol and there is not room for independent approaches within the system that could save money . WarriorSpouse, it is also correct that in a stage 4 setting what could be lifesaving...
by stu
Tue Jun 05, 2018 12:14 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin in UK's NHS vs. USA Healthcare
Replies: 34
Views: 910

Re: Avastin in UK's NHS vs. USA Healthcare

Brilliant . We shall push forward for sure
Take care,
Stu
by stu
Tue Jun 05, 2018 2:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin in UK's NHS vs. USA Healthcare
Replies: 34
Views: 910

Re: Avastin in UK's NHS vs. USA Healthcare

Ha , we can not compete with that Mike . Rooms are actually nice here as we have a few new hospitals but I secretly think the food is part of the early discharge programme . It’s so bad patients are doing everything in their power to get home !!! WarriorSpouse , you are so correct in that we learn s...
by stu
Tue Jun 05, 2018 2:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: quarter size mass found in my 13 year old son, need advise.
Replies: 12
Views: 686

Re: quarter size mass found in my 13 year old son, need advise.

Hi , I can totally understand why you are concerned and anxious . All I can say is in the nine years I have been here on behalf of my mum I have never seen this . It would be extremely rare, beyond rare. Hopefully they will get those results back to you quickly and give you peace of mind . Take care...
by stu
Mon Jun 04, 2018 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Avastin in UK's NHS vs. USA Healthcare
Replies: 34
Views: 910

Re: Avastin in UK's NHS vs. USA Healthcare

People don’t seem to realise we also have private medicine . Many people have insurance through work or privately arranged . The NHS recently removed Avastin but kept two other biological agents . Scotland has kept three. If a person wishes to add Avastin to their chemo they can fund it but pay for ...
by stu
Sun Jun 03, 2018 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: PVE response
Replies: 6
Views: 257

Re: PVE response

Hi , I think you will be better placed in terms of recovery than my mum as she was down to 27% left to function with . I think the liver conserved it’s functions and her main problem was three stones worth of fluid . The liver just did not produce enough protein to push the fluids through . With hel...

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