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by stu
Thu May 16, 2019 3:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 941

Re: Chemo break

Have a fantastic break . That photo looks fantastic Pryo70 . We have big waves but rather chilly at times here in Scotland . Ha . Thankfully we are hardy . Straight after my mum’s liver resection she kayaked for the first time in the sea . We did give her a wet suit , took a few attempts to get it i...
by stu
Thu May 16, 2019 3:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Terrified new member from UK...joined today.
Replies: 11
Views: 540

Re: Terrified new member from UK...joined today.

Hi , I like the NZ variety myself . :D One thing to remember in the UK we do have a different relationship with health care providers and taking it one step at a time is a great plan . We have very highly trained surgeons who largely follow the NICE guidelines for protocol . You can google them and ...
by stu
Wed May 15, 2019 1:44 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Keytruda....Working for MSS....Mutation Burden is the Key
Replies: 128
Views: 27409

Re: Keytruda....Working for MSS....Mutation Burden is the Key

Hi , They use a similar combination with stage 4 lung tumours and one chemotherapy is platinum based . You might like to check out some of their forums . My friend has had an amazing response. She had Keytruda along with two chemo agents and one was a platinum based one . She had four cycles with ev...
by stu
Tue May 14, 2019 4:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 941

Re: Chemo break

Hi Nicole ,
Enjoy the break ! Have some rest and squeeze in some treats .
Stu
by stu
Tue May 14, 2019 4:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: CEA dropped!
Replies: 5
Views: 269

Re: CEA dropped!

Yippee!!! That’s a brilliant drop. Sounds like it’s in full surrender mode .
So pleased for you ,
Court
by stu
Tue May 14, 2019 3:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Looking for Options for un-resectable lung Mets
Replies: 4
Views: 257

Re: Looking for Options for un-resectable lung Mets

Hi , If you use the search function ( small magnifying glass on the top right ) and type in “Any surgeons doing laser surgery “. All the contact information is there . Sophy has included the contact phone number for Dr Drewes in Germany and you can read the feedback from the people who have had the ...
by stu
Tue May 14, 2019 1:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV 8 year cancerversary today AND clean scan
Replies: 10
Views: 521

Re: Stage IV 8 year cancerversary today AND clean scan

Excellent news . Hope you all have a wonderful time .
Stu
by stu
Sat May 11, 2019 3:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Chemo break
Replies: 23
Views: 941

Re: Chemo break

Hi , My mum had a six month break between her first and second cycle of chemotherapy. The tumours responded just as before . It did her the world of good . She did have growth when off chemo but they shrank again . A different health care system and I suspect you won’t want so long a break but it le...
by stu
Fri May 10, 2019 9:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recurrence - The Longest Month
Replies: 10
Views: 735

Re: Recurrence - The Longest Month

Hi ,

Hope your infusion is going as smoothly as possible . I am sad for you but also know just how powerful chemo can be so hope it has started already dealing with the spread .
Wishing you every success with your treatment .
Take care ,
Stu
by stu
Thu May 09, 2019 6:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 1977

Re: Immunotherapy in Switzerland

Hi , I just want to say I have no issue with what anyone wants to take I just fail to understand how anyone can accurately state the effects one agent has over another !!! How do you know what component caused the tumour regression !! My own mother is ten years into a stage 4 diagnosis with only eve...
by stu
Thu May 09, 2019 1:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Im nervous
Replies: 8
Views: 974

Re: Im nervous

Hi Trying ,

How are you getting on ? I have been thinking about you .

Take care,

Stu
by stu
Wed May 08, 2019 5:35 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Immunotherapy in Switzerland
Replies: 40
Views: 1977

Re: Immunotherapy in Switzerland

So rp1954 has kept his wife alive for 8 years using "magical thinking"?... A person would have to be a "quack" to think magic would work. This is what concerns me in this debate. Carers are being held up as the lead clinician in their relatives care . From what I know all have a...
by stu
Tue Apr 30, 2019 1:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MRI yesterday, scope tomorrow
Replies: 10
Views: 819

Re: MRI yesterday, scope tomorrow

You have every reason to stay positive with a good team and a well thought out treatment plan coming together . It is also a team wanting the best for him in securing another opinion . I think it’s very wise to take the time to investigate the best approach then proceed with confidence that the corr...
by stu
Mon Apr 29, 2019 3:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Should we move the scan up?
Replies: 9
Views: 720

Re: Should we move the scan up?

Hi , Having experienced the benefits of early detection I think it’s reasonable with a continuing upward trend to seek a scan . Saying that a one month delay is nothing over here so I would not get too anxious . That’s the way our healthcare works . On a reassuring note my mum’s is currently sitting...
by stu
Wed Apr 24, 2019 2:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV, what happens after surgery?
Replies: 21
Views: 1065

Re: Stage IV, what happens after surgery?

Hi , My mum has never had post op chemo . Her oncologist believed at the time that he would only use it where there was visible disease . The good news is she has only ever had 12 cycles for a stage 4 diagnosis and is here 10 years later . It has meant better quality of life for longer periods of ti...

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