He was on Gapapentin for a year and a half was taking up to 6 a day. He said it didn't help enough and was so tired and loopy all the time.

What can I do to help my hubby he has permanent neuropathy after finishing his course of Oxiplatin. The doctor told him to report any issues with the oxi hubby being stubborn and wanting to be Ned he lied to the doctor. Now 2 years later he has serious issues with his feet they are always cold and i...

Hubby did 12 rounds of oxi because he would not tell the oncologist how bad his feet were getting. He might be NED right now but is in pain every day of his life the neuropathy has severely limit his life.

I am a caregiver for my hubby. The best advise I got was to start a binder to put test results, insurance, payments, medications, discharge, chemo and all the doctors. I carried it around for the first year like it was a new baby. I had one doctor that refer at times to my binder lol. Hubby has been...

Haven't been here for awhile. Have some great news hubby is still Ned 2 years. Never thought we would reach this point I am so so happy. Hubby asked the oncologist to remove the port he said to wait one more year with having 2 primaries at on time to have patience. I would like to thank all who help...

Hubby had his reversal alittle over 2 years ago. The following work for us keep a food journal you will find some foods will leave you running for a bathroom. Buy some Imodium and baby wipes to keep you bum from getting raw. Watch the salad, nuts and anything with seeds or skins in the beginning. Th...

Hubby is still having issues with his bowels since his reversal. I thought it would be great if we started a thread of recipes . Hubby is getting tired of the same old recipes. He has trouble with salads, corn on the cob, fried foods, onions and peppers and he saids Anything that tastes good. We are...

She has blown thru all the money from selling her house and doesn't have enough funds to continue living in Ca. We are in overdrive turning the basement into a in law apt. Hopefully some space between us will help. The sibling are just glad to be rid of her but not enough to help with the apt. I am ...

She is moving in OMG. She called hubby and said she can not afford to live in Ca. anymore and too old to live alone and decided to stay with us aren't we the lucky ones. In 2 weeks we are moving her in. I am so depress and feel so sorry for my hubby. She could not come when he was sick because she d...

Our doctor told us the kids should have their first colonoscopy at 30 . Son had some issues so he had his at 27 with a precancerous poly . So for him every 3 years now our daughter next year at 30.

X-rays

We get his port flushed every 6 weeks for the last 1 1/2 years? I was just wondering how long onco saids at least 2 more years.

Just got home from onco hubby is still NED. Woo Hoo !!!!! I didn't know if I should post because I feel so bad for those who are fighting so relentless. God bless all.

While I am no doctor I agree with your doctor. My husband did all 12 and a year later he has neuropathy of feet . He is in pain every day. My husband wanted all 12 to help his chances but now he wishes he had stop sooner. I will keep you in my thoughts. The oncologist uses many different things to d...

I have found a good ostomy nurse is worth their weight in gold. My hubby was great knew more than the doctors. Check with your hospital usually they have an ostomy dept.