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by Voxx66
Mon Aug 17, 2015 11:06 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Voxx...thinking of you
Replies: 10
Views: 1771

Re: Voxx...thinking of you

The actual update on my condition is contained in a thread deceptively called update.
by Voxx66
Mon Aug 17, 2015 11:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: update featuring herceptin and lapatinib
Replies: 10
Views: 2164

update featuring herceptin and lapatinib

Last update I had just had my ascites drained and the liquid biopsy drawn. The ascites only 3 weeks later are as bad or worse than before. I intend on having it drained this week again. The liquid biopsy revealed 9 alterations 2 of which are supposedly good targets. The mutations are ERBB2 and FGFR2...
by Voxx66
Mon Aug 17, 2015 10:55 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Voxx...thinking of you
Replies: 10
Views: 1771

Re: Voxx...thinking of you

I will try to get at least some of it posted today. Thanks.
by Voxx66
Fri Jul 31, 2015 2:59 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: paracentesis
Replies: 9
Views: 1494

paracentesis

I have a number of updates but will break them down into separate topics as I am too lazy to type it all out at once ha. Anyway - had a paracentesis yesterday. 5.5L of fluid drained. Can now eat, drink, and breath normally though I think they didn't actually get all the fluid out. The actual procedu...
by Voxx66
Thu Jul 23, 2015 6:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Would you get chemo for stage IIA?
Replies: 45
Views: 3936

Re: Would you get chemo for stage IIA?

I was IIa and chose not to do chemo. The cancer recurred. However - given the same information I had available then, I would still make the same decision. There are possible consequences no matter what you choose. Keep gathering info so you can make an informed decision.
by Voxx66
Fri Jul 17, 2015 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 900 pt CEA jump after 1 cycle of trial TAS-102
Replies: 3
Views: 1295

Re: 900 pt CEA jump after 1 cycle of trial TAS-102

Chemo does strange things to CEA. I would confirm growth with scans before writing tas-102 off.
by Voxx66
Thu Jul 16, 2015 1:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RFA, coming in hot
Replies: 64
Views: 5757

Re: RFA, coming in hot

Good you are having it done. Hope it stays zapped.
by Voxx66
Mon Jul 13, 2015 1:11 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rose Bengal as a chemotheaputic.
Replies: 19
Views: 5794

Re: Rose Bengal as a chemotheaputic.

Thanks for posting this. Some great info here.
by Voxx66
Mon Jul 06, 2015 2:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Important letter - attn: all scared and lost
Replies: 23
Views: 2994

Re: Important letter - attn: all scared and lost

I'm not going to say much here but I find his advice sophomoric and not particularly useful. And yes, that tone creeps in here in some of these posts of new age superiority that turns me off to say the least.
by Voxx66
Fri Jul 03, 2015 6:12 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: some general whining
Replies: 26
Views: 3460

Re: some general whining

Thanks for the various kind words and good advice. (I also would have accepted - STOP WHINING!) I'm feeling a bit better physically today. Unfortunately one of my friends either died or is about to die. He has been declared essentially brain dead and the respirator is coming off today. I guess you c...
by Voxx66
Thu Jul 02, 2015 12:40 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: some general whining
Replies: 26
Views: 3460

some general whining

Sorry if I have not been my somewhat cheerful self this last week or so but life is weighing on me. I feel a little better physically but the diuretic I have been prescribed is so mild that it isn't going to cut it. (spironolactone) Damn I just want to have enough energy to get basic things done. My...
by Voxx66
Sat Jun 27, 2015 2:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My Blood Biopsy Story (From Voxx66's News from Dr appt post)
Replies: 11
Views: 4537

Re: My Blood Biopsy Story (From Voxx66's News from Dr appt post)

Thanks very much for the great info. I'll post what they find once my results are in. Also - I think the reason the companies are waiving the fee in my case is that Siteman is a big cancer center and they are trying to show the ways these tests can be useful.
by Voxx66
Sat Jun 27, 2015 2:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My support
Replies: 9
Views: 1586

Re: My support

Maybe I support it - Maybe I don't. This is the sort of issue I am staying clear of on this forum. (My FB friends know my thoughts as that is an appropriate venue ha)
by Voxx66
Thu Jun 25, 2015 9:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Blood Clot & Port
Replies: 20
Views: 2705

Re: Blood Clot & Port

Some people clot in response to the tube stuck into the Vein even if they never clotted before. I think that is what happened to me. My body didn't like that much.
by Voxx66
Thu Jun 25, 2015 7:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What doctors say while you're under anesthesia
Replies: 16
Views: 1986

Re: What doctors say while you're under anesthesia

I think there is a slight possibility this patient really was extremely difficult. Not excusing the behavior but I can understand it somewhat.

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