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by PainInTheAss
Sun Jul 11, 2021 3:49 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Swinging Chicken
Replies: 14
Views: 4374

Re: Swinging Chicken

Oh same here. Bev seemed "famous" to me when I first posted on here. I was so honored when she wrote at length to answer my questions about radiation. I had a horrible surgery recovery and was on a wound vac for three months. I couldn't move, I was in so much pain. I would spend all day re...
by PainInTheAss
Sun Jul 11, 2021 3:28 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Waxing Whistful - 8 years since diagnosis
Replies: 2
Views: 1059

Waxing Whistful - 8 years since diagnosis

Hello all, I personally found it incredibly inspiring to hear of a IIIc who was five-years cured and back to living life when I first was diagnosed. The image of having a bandage over my irrigated stoma in a bathing suit laughing on a sunny beach was #Goals for me (although I'm super lazy about irri...
by PainInTheAss
Sun Jul 11, 2021 3:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Advice
Replies: 3
Views: 1868

Re: Advice

Any advice on the side effects from the chemo and radiation after treatment. Like swollen feet and leg And any diets besides high fiber Any ideas on celebrating CRC anniversary it's my 1st on Sunday. Thanks Today marks the 8th anniversary of my ileostomy reversal. Yes, there are things that rectal ...
by PainInTheAss
Sun Jul 11, 2021 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: A series of unfortunate events
Replies: 18
Views: 6816

Re: A series of unfortunate events

Team, This is my first post, but I have been a long term reader and I really appreciate all the knowledge transfer and supportiveness I have gained from reading everyone's posts... I had my first colonoscopy ever at age 55 (which was the first unfortunate event) and I wish I had a time machine to h...
by PainInTheAss
Sun Jul 11, 2021 2:45 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 89
Views: 51552

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

I was also staged at 3c and I interpreted what I read online to mean that only 25% of 3c patients were even alive in 5 years. Either way, I like 60% much better. This always perplexed me. US Seer data and whatnot show Stage IIIc survival around 28% but Canada, for example, shows a survival rate of ...
by PainInTheAss
Thu Dec 31, 2020 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience Jane McLelland and starving cancer?
Replies: 8
Views: 3382

Re: Does anyone have experience Jane McLelland and starving cancer?

I know that PeteLostAtSea was on a keto diet for quite a long time with supplements, etc. but still had cancer spread and died. This is what you typically find with real-world examples of people who apply things in books like this. The people who are successful are never someone you know or don't ha...
by PainInTheAss
Thu Dec 31, 2020 2:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomy site pain and output
Replies: 7
Views: 2322

Re: Ostomy site pain and output

I had this happen my first time going out to dinner. I was doubled over with pain the next day, and almost the whole day. My daughter's friend came over and was very concerned that it was cancer. No, I just ate too much. From what I understand, the colon shrinks some after this kind of surgery, so t...
by PainInTheAss
Thu Dec 31, 2020 2:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 89
Views: 51552

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

Each stage has it's own general recurrence percentages. You won't get a good gauge of that on this site because people usually come here who are just getting started or have had a recurrence. Generally, 80 to 90% of people who are stage I, II, and III go through standard treatment and are cured. The...
by PainInTheAss
Thu Dec 31, 2020 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 37
Views: 12072

Re: It's come back - :(

Hi All, It's been a long time since I have posted. Life has been cruising along for the past 6 years, running around after a energetic 6 year old, working and just enjoying life. And now it's all come to a crashing halt again because after almost 8 years, my cancer has come back. What we thought wo...
by PainInTheAss
Thu Dec 31, 2020 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 5044

Re: Oxaliplatin Dosage - Call Off

Hello! I haven't been on here in quite a while. I'm not sure what made this site pop in my head just now. I was terrified of Oxi because of the risk of permanent severe neuropathy. My oncologist only did 6 rounds (I think), and my research showed that some trials included data from patients who only...
by PainInTheAss
Wed Jun 26, 2019 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 3247

Re: Stage IV parents with young child(ren)

Hi, this is my first post here, but I have been reading for a while. I've been stage IV all along, but we were chasing cure. In March we moved to confirmed incurable. I have a four-year-old son and the sadness and despair about leaving him motherless is nearly all-consuming. I haven't been able to ...
by PainInTheAss
Wed Jun 26, 2019 4:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 837
Views: 405383

Re: For Stage III's: NED for how long now?

My birthday was yesterday. Six years ago I met with my oncologist for the first time on my birthday. I’ve been NED for 5 years, and it will be six in October. I stopped posting, too, but it’s not from survivors guilt. It’s just that life gets busier and busier and busier the more you get back into i...
by PainInTheAss
Sun Sep 24, 2017 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I cannot turn it off, scared about bone stuff
Replies: 6
Views: 2070

Re: I cannot turn it off, scared about bone stuff

Tell yourself it is nothing and enjoy your Sunday! If you are right, you avoided worrying and ruining your day. If you are wrong, worrying all day won't make any difference. Save all your worrying until that very long drive to your appointment on Monday. I hope it's nothing. My onc told me not to wo...
by PainInTheAss
Sun Sep 24, 2017 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New
Replies: 8
Views: 1780

Re: New

In this boat too. Just had my resection. It's a large tumor but it seemed to be localized. Now worrying about the lymphs. This is a great support group- a lot of helpful people with tons of success stories. We have to keep positive! That is the key....Stay Positive!!! I told you that you would feel...
by PainInTheAss
Sun Sep 24, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ex is in Hospice
Replies: 9
Views: 2419

Re: Ex is in Hospice

Thank you all for your kind words. I agree on the not fair refrain, for sure. When I was diagnosed as a IIIc, I thought that if anything happened to me, they would still have their dad. Men in his family live to 100. So, when he was diagnosed as a terminal stage IV, I just felt like there was no saf...

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