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by PainInTheAss
Sun Sep 24, 2017 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I cannot turn it off, scared about bone stuff
Replies: 6
Views: 1048

Re: I cannot turn it off, scared about bone stuff

Tell yourself it is nothing and enjoy your Sunday! If you are right, you avoided worrying and ruining your day. If you are wrong, worrying all day won't make any difference. Save all your worrying until that very long drive to your appointment on Monday. I hope it's nothing. My onc told me not to wo...
by PainInTheAss
Sun Sep 24, 2017 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New
Replies: 8
Views: 871

Re: New

In this boat too. Just had my resection. It's a large tumor but it seemed to be localized. Now worrying about the lymphs. This is a great support group- a lot of helpful people with tons of success stories. We have to keep positive! That is the key....Stay Positive!!! I told you that you would feel...
by PainInTheAss
Sun Sep 24, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ex is in Hospice
Replies: 9
Views: 1288

Re: Ex is in Hospice

Thank you all for your kind words. I agree on the not fair refrain, for sure. When I was diagnosed as a IIIc, I thought that if anything happened to me, they would still have their dad. Men in his family live to 100. So, when he was diagnosed as a terminal stage IV, I just felt like there was no saf...
by PainInTheAss
Sat Sep 23, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ex is in Hospice
Replies: 9
Views: 1288

Ex is in Hospice

My ex husband has stage IV medullary thyroid cancer. They moved him into hospice last night. So surreal to read about it here so many times and then see it first hand with the father of my children. I went to go see him with my son. We were both shocked to hear that they said his organs were shuttin...
by PainInTheAss
Sat Sep 23, 2017 7:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new here and would love some advice
Replies: 6
Views: 904

Re: new here and would love some advice

The key here is "if the surgery shows." This is going to be much more precise than an ultrasound. They will actually check the wall for trace cancer cells as well as nearby lymph nodes. If all is clear, there is pretty much no chance of spread. Especially if the tumor/polyp itself only had...
by PainInTheAss
Sat Sep 23, 2017 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal -- ASAP or wait for first scan?
Replies: 19
Views: 3149

Re: Port Removal -- ASAP or wait for first scan?

I want to keep my port for as long as I can. I am a difficult blood draw and the IV contrast for the CT scans is even more difficult due to the larger needle. For me it's well worth the hassle of the port flushes. My oncologist gave me the same speech about scans and radiation but I'd rather be pro...
by PainInTheAss
Tue Jul 04, 2017 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thing are getting worse..Questions???
Replies: 7
Views: 2182

Re: Thing are getting worse..Questions???

My ex was told last summer that he had three to six months to live by three different doctors. He told our kids, and they were devastated. But the doctors were wrong. His chemo started working unexpectedly and he has been stable (I guess chemo for his kind of cancer is usually ineffective). This is ...
by PainInTheAss
Tue Jul 04, 2017 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 5028

Re: Time to decide whether to do chemo or just observe

If it were me, I would do Xeloda, but that's mainly because I had almost no side effects so it was almost like not doing chemo. If there is even one more met still too small to be seen on a scan, I think it would be worth doing Xeloda. If chemo doesn't do much to circulating tumor cells, why does po...
by PainInTheAss
Tue Jul 04, 2017 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: advice to help my DH heal (?)
Replies: 15
Views: 3791

Re: advice to help my DH heal (?)

Yes, yes on the protein. I couldn't stand the taste of the protein shakes, so I just ate a lot of foods high in protein. Greek yogurt is very high in protein. Same with Stouffer's Mac and Cheese. I also kept peanut butter by the bedside and dipped chocolate in it. I could only eat a couple of bites ...
by PainInTheAss
Tue Jun 27, 2017 8:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 yr old wants colonoscopy, doctor declined
Replies: 29
Views: 6075

Re: 38 yr old wants colonoscopy, doctor declined

Yahoo!!! Good news! After meeting with one more doctor today, my colonoscopy was finally approved!! Again, the second dr. was a little concerned on why I wanted it so bad because of my age and my mom's diagnosis but after arguing and trying to prove my point he made a call to the GI and they said i...
by PainInTheAss
Tue Jun 27, 2017 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin side effects
Replies: 12
Views: 3406

Re: Oxaliplatin side effects

I started my first of 8 rounds of Xelox chemo treatments on the 13th and the Oxaliplatin IV was a bit of a nightmare. Within a few minutes of the line being flushed after the IV was finished, my lips went numb, I couldn't swallow and felt like I was choking, my vision went blurry, I got an instant ...
by PainInTheAss
Tue Jun 27, 2017 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any luck with Neoadjuvant chemo/radiation therapy Stage 3 Rectal Cancer?
Replies: 20
Views: 5454

Re: Any luck with Neoadjuvant chemo/radiation therapy Stage 3 Rectal Cancer?

Wow, thank you so much for all the confidence and replys! I actually had to google what PCR meant? lol. Pathololgical Complete Response is what we are praying for ! Thank you , Stacy I was too before surgery. I thought it was a golden ticket from the dismal stats for a stage IIIc since it boosts pr...
by PainInTheAss
Tue Jun 27, 2017 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 115
Views: 21560

Re: Things Not to Say and the Responses I want to Make (Rant)

Ok, I am terrible. I admit it. But here's my rationalization: I am so tired of those few, but all to real individuals who have never had cancer, have never been a caregiver, and yet somehow know everything there is to know about cancer. Most people are kind and supportive, but to those others, I ju...
by PainInTheAss
Tue Jun 27, 2017 7:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 115
Views: 21560

Re: Things Not to Say and the Responses I want to Make (Rant)

BevG, Who said anything about walking up the mountain? Your hostile comments don't exactly comport with the terms of use of this site and with its purpose: The Colon Club Message Board was designed for those who have been diagnosed with colorectal cancer, their friends, family and caregivers to com...
by PainInTheAss
Wed Jun 21, 2017 5:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: anastomotic leak and chemo delay
Replies: 4
Views: 1096

Re: anastomotic leak and chemo delay

I had an APR and my wound took almost two years to heal. I was told that this can happen in about ten percent of patients, and it's because of the radiation. My chemo was postponed for about 4 months to allow the wound to heal (most of the healing happened in this time and the rest was very, very sl...

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