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by PainInTheAss
Thu Dec 31, 2020 3:06 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Does anyone have experience Jane McLelland and starving cancer?
Replies: 8
Views: 1855

Re: Does anyone have experience Jane McLelland and starving cancer?

I know that PeteLostAtSea was on a keto diet for quite a long time with supplements, etc. but still had cancer spread and died. This is what you typically find with real-world examples of people who apply things in books like this. The people who are successful are never someone you know or don't ha...
by PainInTheAss
Thu Dec 31, 2020 2:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ostomy site pain and output
Replies: 7
Views: 1316

Re: Ostomy site pain and output

I had this happen my first time going out to dinner. I was doubled over with pain the next day, and almost the whole day. My daughter's friend came over and was very concerned that it was cancer. No, I just ate too much. From what I understand, the colon shrinks some after this kind of surgery, so t...
by PainInTheAss
Thu Dec 31, 2020 2:05 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 3, likelihood of recurrence after resection & chemotherapy
Replies: 62
Views: 11585

Re: Stage 3, likelihood of recurrence after resection & chemotherapy

Each stage has it's own general recurrence percentages. You won't get a good gauge of that on this site because people usually come here who are just getting started or have had a recurrence. Generally, 80 to 90% of people who are stage I, II, and III go through standard treatment and are cured. The...
by PainInTheAss
Thu Dec 31, 2020 1:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: It's come back - :(
Replies: 21
Views: 3053

Re: It's come back - :(

Hi All, It's been a long time since I have posted. Life has been cruising along for the past 6 years, running around after a energetic 6 year old, working and just enjoying life. And now it's all come to a crashing halt again because after almost 8 years, my cancer has come back. What we thought wo...
by PainInTheAss
Thu Dec 31, 2020 1:23 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin Dosage - Call Off
Replies: 24
Views: 2047

Re: Oxaliplatin Dosage - Call Off

Hello! I haven't been on here in quite a while. I'm not sure what made this site pop in my head just now. I was terrified of Oxi because of the risk of permanent severe neuropathy. My oncologist only did 6 rounds (I think), and my research showed that some trials included data from patients who only...
by PainInTheAss
Wed Jun 26, 2019 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 2662

Re: Stage IV parents with young child(ren)

Hi, this is my first post here, but I have been reading for a while. I've been stage IV all along, but we were chasing cure. In March we moved to confirmed incurable. I have a four-year-old son and the sadness and despair about leaving him motherless is nearly all-consuming. I haven't been able to ...
by PainInTheAss
Wed Jun 26, 2019 4:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 802
Views: 336275

Re: For Stage III's: NED for how long now?

My birthday was yesterday. Six years ago I met with my oncologist for the first time on my birthday. I’ve been NED for 5 years, and it will be six in October. I stopped posting, too, but it’s not from survivors guilt. It’s just that life gets busier and busier and busier the more you get back into i...
by PainInTheAss
Sun Sep 24, 2017 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I cannot turn it off, scared about bone stuff
Replies: 6
Views: 1788

Re: I cannot turn it off, scared about bone stuff

Tell yourself it is nothing and enjoy your Sunday! If you are right, you avoided worrying and ruining your day. If you are wrong, worrying all day won't make any difference. Save all your worrying until that very long drive to your appointment on Monday. I hope it's nothing. My onc told me not to wo...
by PainInTheAss
Sun Sep 24, 2017 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New
Replies: 8
Views: 1594

Re: New

In this boat too. Just had my resection. It's a large tumor but it seemed to be localized. Now worrying about the lymphs. This is a great support group- a lot of helpful people with tons of success stories. We have to keep positive! That is the key....Stay Positive!!! I told you that you would feel...
by PainInTheAss
Sun Sep 24, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ex is in Hospice
Replies: 9
Views: 2052

Re: Ex is in Hospice

Thank you all for your kind words. I agree on the not fair refrain, for sure. When I was diagnosed as a IIIc, I thought that if anything happened to me, they would still have their dad. Men in his family live to 100. So, when he was diagnosed as a terminal stage IV, I just felt like there was no saf...
by PainInTheAss
Sat Sep 23, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ex is in Hospice
Replies: 9
Views: 2052

Ex is in Hospice

My ex husband has stage IV medullary thyroid cancer. They moved him into hospice last night. So surreal to read about it here so many times and then see it first hand with the father of my children. I went to go see him with my son. We were both shocked to hear that they said his organs were shuttin...
by PainInTheAss
Sat Sep 23, 2017 7:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new here and would love some advice
Replies: 6
Views: 1530

Re: new here and would love some advice

The key here is "if the surgery shows." This is going to be much more precise than an ultrasound. They will actually check the wall for trace cancer cells as well as nearby lymph nodes. If all is clear, there is pretty much no chance of spread. Especially if the tumor/polyp itself only had...
by PainInTheAss
Sat Sep 23, 2017 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal -- ASAP or wait for first scan?
Replies: 19
Views: 4702

Re: Port Removal -- ASAP or wait for first scan?

I want to keep my port for as long as I can. I am a difficult blood draw and the IV contrast for the CT scans is even more difficult due to the larger needle. For me it's well worth the hassle of the port flushes. My oncologist gave me the same speech about scans and radiation but I'd rather be pro...
by PainInTheAss
Tue Jul 04, 2017 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thing are getting worse..Questions???
Replies: 7
Views: 2804

Re: Thing are getting worse..Questions???

My ex was told last summer that he had three to six months to live by three different doctors. He told our kids, and they were devastated. But the doctors were wrong. His chemo started working unexpectedly and he has been stable (I guess chemo for his kind of cancer is usually ineffective). This is ...
by PainInTheAss
Tue Jul 04, 2017 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 7410

Re: Time to decide whether to do chemo or just observe

If it were me, I would do Xeloda, but that's mainly because I had almost no side effects so it was almost like not doing chemo. If there is even one more met still too small to be seen on a scan, I think it would be worth doing Xeloda. If chemo doesn't do much to circulating tumor cells, why does po...

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