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by PainInTheAss
Wed Jun 26, 2019 5:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage IV parents with young child(ren)
Replies: 11
Views: 1967

Re: Stage IV parents with young child(ren)

Hi, this is my first post here, but I have been reading for a while. I've been stage IV all along, but we were chasing cure. In March we moved to confirmed incurable. I have a four-year-old son and the sadness and despair about leaving him motherless is nearly all-consuming. I haven't been able to ...
by PainInTheAss
Wed Jun 26, 2019 4:29 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For Stage III's: NED for how long now?
Replies: 774
Views: 284608

Re: For Stage III's: NED for how long now?

My birthday was yesterday. Six years ago I met with my oncologist for the first time on my birthday. I’ve been NED for 5 years, and it will be six in October. I stopped posting, too, but it’s not from survivors guilt. It’s just that life gets busier and busier and busier the more you get back into i...
by PainInTheAss
Sun Sep 24, 2017 8:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I cannot turn it off, scared about bone stuff
Replies: 6
Views: 1507

Re: I cannot turn it off, scared about bone stuff

Tell yourself it is nothing and enjoy your Sunday! If you are right, you avoided worrying and ruining your day. If you are wrong, worrying all day won't make any difference. Save all your worrying until that very long drive to your appointment on Monday. I hope it's nothing. My onc told me not to wo...
by PainInTheAss
Sun Sep 24, 2017 7:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New
Replies: 8
Views: 1326

Re: New

In this boat too. Just had my resection. It's a large tumor but it seemed to be localized. Now worrying about the lymphs. This is a great support group- a lot of helpful people with tons of success stories. We have to keep positive! That is the key....Stay Positive!!! I told you that you would feel...
by PainInTheAss
Sun Sep 24, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ex is in Hospice
Replies: 9
Views: 1732

Re: Ex is in Hospice

Thank you all for your kind words. I agree on the not fair refrain, for sure. When I was diagnosed as a IIIc, I thought that if anything happened to me, they would still have their dad. Men in his family live to 100. So, when he was diagnosed as a terminal stage IV, I just felt like there was no saf...
by PainInTheAss
Sat Sep 23, 2017 7:42 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ex is in Hospice
Replies: 9
Views: 1732

Ex is in Hospice

My ex husband has stage IV medullary thyroid cancer. They moved him into hospice last night. So surreal to read about it here so many times and then see it first hand with the father of my children. I went to go see him with my son. We were both shocked to hear that they said his organs were shuttin...
by PainInTheAss
Sat Sep 23, 2017 7:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: new here and would love some advice
Replies: 6
Views: 1309

Re: new here and would love some advice

The key here is "if the surgery shows." This is going to be much more precise than an ultrasound. They will actually check the wall for trace cancer cells as well as nearby lymph nodes. If all is clear, there is pretty much no chance of spread. Especially if the tumor/polyp itself only had...
by PainInTheAss
Sat Sep 23, 2017 7:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Port Removal -- ASAP or wait for first scan?
Replies: 19
Views: 4165

Re: Port Removal -- ASAP or wait for first scan?

I want to keep my port for as long as I can. I am a difficult blood draw and the IV contrast for the CT scans is even more difficult due to the larger needle. For me it's well worth the hassle of the port flushes. My oncologist gave me the same speech about scans and radiation but I'd rather be pro...
by PainInTheAss
Tue Jul 04, 2017 6:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Thing are getting worse..Questions???
Replies: 7
Views: 2578

Re: Thing are getting worse..Questions???

My ex was told last summer that he had three to six months to live by three different doctors. He told our kids, and they were devastated. But the doctors were wrong. His chemo started working unexpectedly and he has been stable (I guess chemo for his kind of cancer is usually ineffective). This is ...
by PainInTheAss
Tue Jul 04, 2017 6:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Time to decide whether to do chemo or just observe
Replies: 11
Views: 6971

Re: Time to decide whether to do chemo or just observe

If it were me, I would do Xeloda, but that's mainly because I had almost no side effects so it was almost like not doing chemo. If there is even one more met still too small to be seen on a scan, I think it would be worth doing Xeloda. If chemo doesn't do much to circulating tumor cells, why does po...
by PainInTheAss
Tue Jul 04, 2017 5:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: advice to help my DH heal (?)
Replies: 15
Views: 4650

Re: advice to help my DH heal (?)

Yes, yes on the protein. I couldn't stand the taste of the protein shakes, so I just ate a lot of foods high in protein. Greek yogurt is very high in protein. Same with Stouffer's Mac and Cheese. I also kept peanut butter by the bedside and dipped chocolate in it. I could only eat a couple of bites ...
by PainInTheAss
Tue Jun 27, 2017 8:50 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 38 yr old wants colonoscopy, doctor declined
Replies: 29
Views: 7395

Re: 38 yr old wants colonoscopy, doctor declined

Yahoo!!! Good news! After meeting with one more doctor today, my colonoscopy was finally approved!! Again, the second dr. was a little concerned on why I wanted it so bad because of my age and my mom's diagnosis but after arguing and trying to prove my point he made a call to the GI and they said i...
by PainInTheAss
Tue Jun 27, 2017 8:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Oxaliplatin side effects
Replies: 12
Views: 4288

Re: Oxaliplatin side effects

I started my first of 8 rounds of Xelox chemo treatments on the 13th and the Oxaliplatin IV was a bit of a nightmare. Within a few minutes of the line being flushed after the IV was finished, my lips went numb, I couldn't swallow and felt like I was choking, my vision went blurry, I got an instant ...
by PainInTheAss
Tue Jun 27, 2017 8:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Any luck with Neoadjuvant chemo/radiation therapy Stage 3 Rectal Cancer?
Replies: 20
Views: 6715

Re: Any luck with Neoadjuvant chemo/radiation therapy Stage 3 Rectal Cancer?

Wow, thank you so much for all the confidence and replys! I actually had to google what PCR meant? lol. Pathololgical Complete Response is what we are praying for ! Thank you , Stacy I was too before surgery. I thought it was a golden ticket from the dismal stats for a stage IIIc since it boosts pr...
by PainInTheAss
Tue Jun 27, 2017 7:54 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Things Not to Say and the Responses I want to Make (Rant)
Replies: 128
Views: 30058

Re: Things Not to Say and the Responses I want to Make (Rant)

Ok, I am terrible. I admit it. But here's my rationalization: I am so tired of those few, but all to real individuals who have never had cancer, have never been a caregiver, and yet somehow know everything there is to know about cancer. Most people are kind and supportive, but to those others, I ju...

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