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by O Stoma Mia
Fri Apr 20, 2018 11:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Celebrating another year
Replies: 3
Views: 148

Re: Celebrating another year

Congratulations, and thank you for checking in. I think it's important whenever long-term survivors log in here and report their status. It's a reminder that many of us are still around. to tell about it
by O Stoma Mia
Mon Apr 16, 2018 2:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New Member here needs support !
Replies: 9
Views: 376

Re: New Member here needs support !

I am new member, confused, feasted, feeling sad. I had a colonscopy on Friday. Dr. came in and said he had bad news, i have cancer. I am scheduled to have lab work and catscan on tomorrow. I have 4cm mass 7cm, don't know what is what, my mind in a fog. Welcome to the Forum and I'm sorry you have to...
by O Stoma Mia
Sun Apr 15, 2018 11:50 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 64
Views: 2892

Re: Mop up chemo experiences

... I see the oncologist on either Monday or Tuesday after infusion... When you see the oncologist this week, maybe you could ask for a detailed review of your Round Two bloodwork to see if there are any tests that are borderline or trending out-of-range. This is because a common cause of cancellin...
by O Stoma Mia
Sun Apr 15, 2018 10:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tattoo during scope?
Replies: 10
Views: 331

Re: Tattoo during scope?

Here is an article on pre-operative endoscopic tattooing: "Conclusions: All colonic lesions that appear to be malignant should be tattooed during endoscopy to improve surgical localization. Tattoo endoscopy is a safe and effective method for preoperative tumor localization..." Reference: P...
by O Stoma Mia
Sun Apr 15, 2018 2:42 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Tattoo during scope?
Replies: 10
Views: 331

Re: Tattoo during scope?

...My big question right now is TOMORROW. They scheduled me for a scope (think it's a sigmoidoscopy) early tomorrow under general anesthesia during which they will tattoo my tumor....If anyone can tell me the purpose of the tattoo and if the tattoo (and the scope) is normal protocol at this stage, ...
by O Stoma Mia
Sun Apr 15, 2018 1:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 64
Views: 2892

Re: Mop up chemo experiences

...The nurse who did my chemo teaching gave me a pamphlet and Folic acid was contraindicated. I will check to see what else is mentioned. 1cup water, salt and baking soda gargle for mouth sores twice a day. You mentioned earlier that you had a pamphlet from the chemo nurse that gave some tips to co...
by O Stoma Mia
Sat Apr 14, 2018 11:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New with Questions
Replies: 5
Views: 455

Re: New with Questions

... Here are my current questions: 1. Has anyone that has been diagnosed with CRC had bloody mucus as a symptom before diagnosis? 2. What can an abdominal ultrasound diagnose? Will they even see anything in my gi track, or will they only be able to look at other organs? For your second question, th...
by O Stoma Mia
Sat Apr 14, 2018 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 64
Views: 2892

Re: Mop up chemo experiences

... I forgot to eat today, so busy and a little overwhelmed... Remember ... the instructions for taking Xeloda are to take the pills 30 minutes after the morning meal and 30 minutes after the evening meal. Did you also forget to take the pills? :roll: I think Xeloda needs food in the stomach in ord...
by O Stoma Mia
Sat Apr 14, 2018 1:58 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stivarga? Opinion? Knowledge? Recommendations?
Replies: 4
Views: 303

Re: Stivarga? Opinion? Knowledge? Recommendations?

...Anyone have experience with Stivarga as a palliative/maintenance med. long term? Side effects? Effectiveness? I have no experience with Stivarga, but there have been several members here who have had it, and there are some threads here on the topic, e.g., ...There's a good Regorafenib/Stivarga t...
by O Stoma Mia
Fri Apr 13, 2018 3:30 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: RIGVIR???????
Replies: 1
Views: 231

Re: RIGVIR???????

RIGVIR is a so-called "onocolytic virus", described here: https://hope4cancer.com/our-therapies/rigvir-oncolytic-virotherapy/ It may not be approved or available in your country because its efficacy may not have been tested sufficiently by clinical trials to insure regulatory approval. Why...
by O Stoma Mia
Fri Apr 13, 2018 2:57 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR or sigmoid resection?
Replies: 3
Views: 220

Re: LAR or sigmoid resection?

I think that if you ask your surgeon where he intends to make the lower cut, then you will have a better idea of the extent of LAR Syndrome that might occur. For a lower cut in the upper rectum, I think that the main problem would be possible damage to some of the muscles and nerves involved in bowe...
by O Stoma Mia
Fri Apr 13, 2018 2:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 64
Views: 2892

Re: Mop up chemo experiences

Here are a couple of threads on throat tightness and breathing problems while on oxaliplatin: So is this normal after only one infusion of Oxi? https://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=50202&p=383259#p383259 Throat tightness on FOLFOX https://coloncancersupport.colonclub....
by O Stoma Mia
Thu Apr 12, 2018 10:43 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 64
Views: 2892

Day 22 - Start of Cycle 2

XELOX (CAPEOX) Treatment Schedule Cycle 1 Infusion: March 22, 2018- Day 01 Cycle 2 Infusion: April 12, 2018 - Day 22◄◄◄ Cycle 3 Infusion: May 3, 2018 - Day 43 Cycle 4 Infusion: May 24, 2018 - Day 64 Cycle 5 Infusion: June 14, 2018 - Day 85 Last Xeloda pill: June 28, 2018 - Day 98 End of TX cycle: J...
by O Stoma Mia
Thu Apr 12, 2018 3:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: LAR or sigmoid resection?
Replies: 3
Views: 220

Re: LAR or sigmoid resection?

...The surgeon thinks it is cancer and suggested a Lower anterior resection. After looking in several websites, I noticed that 20 cm from anal verge is the sigmoid colon, not the rectum. Then why a LAR was suggested and not a sigmoid resection?... https://www.researchgate.net/profile/Harris_Bernste...
by O Stoma Mia
Thu Apr 12, 2018 1:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sure how to feel right now
Replies: 13
Views: 974

Stress reduction programs

...For those that are done with chemo. What do u do to stay NED ? .... There are three pillars of cancer prevention:(1) Regular exercise, (2) Healthy, well-balanced meals, and (3) Stress reduction program. You would need to develop a program to follow in each of these three areas. For you, developm...

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