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by O Stoma Mia
Thu Oct 04, 2018 2:19 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For stage 2's Ned for how long?
Replies: 38
Views: 5687

Last post

As of today, six years in remission (T4bN0M0). Tomorrow I will be starting my 7th year -- and it seems to me that this would be a good time for me to think about going on sabbatical ... :D :D :D I would like to spend some time now organizing my travel photos and creating proper photo albums. I want ...
by O Stoma Mia
Wed Oct 03, 2018 3:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy October 5th, Age 30. Freaked out.
Replies: 11
Views: 1596

Re: Colonoscopy October 5th, Age 30. Freaked out.

Good luck on your colonoscopy this Friday. Keep us posted on the outcome.
by O Stoma Mia
Wed Oct 03, 2018 3:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New diagnosis and scared
Replies: 30
Views: 2776

Re: New diagnosis and scared

...If it helps at all, my tumor was grade 2, moderately differentiated, didn't perforate, but was sunk into the tissue and the MMR didn't show any genetic mutations resistant to standard drugs, I don't have any experience with lymph node involvement, but I would say that it would really help if you...
by O Stoma Mia
Wed Oct 03, 2018 12:13 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 37
Views: 11706

Re: Newly diagnosed rectum cancer

Received call from Dr. Kalady. Official pathological staging of T1N0M0. He will take this to the board, discuss with my oncologist and we'll come together for a plan for follow up. Any thoughts on what u guys might consider going forward? I don't have any experience with neo-adjuvant chemo/radiatio...
by O Stoma Mia
Tue Oct 02, 2018 9:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2017
Replies: 167
Views: 73286

Re: Lifestyle choices condition colon and rectal cancer risk more than genetic

Lifestyle choices condition colon and rectal cancer risk more than genetics https://medicalxpress.com/news/2017-03-lifestyle-choices-condition-colon-rectal.html ...10,106 participants ... were interviewed to analyze known risk factors (diet, physical exercise, body mass index, alcohol and family hi...
by O Stoma Mia
Tue Oct 02, 2018 1:24 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2018
Replies: 56
Views: 41740

Immunotherapy could be the "fourth pillar" of cancer treatments

Immunotherapy could be the "fourth pillar" of cancer treatments https://www.axios.com/nobel-prize-winner-allison-cancer-immunotherapy-53f8dbd2-6a43-4928-90e3-0256be6e66f6.html “By stimulating the ability of our immune system to attack tumor cells, this year’s Nobel Prize laureates have es...
by O Stoma Mia
Mon Oct 01, 2018 1:44 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Ileostomy?
Replies: 11
Views: 1126

Re: Ileostomy?

... My question (and I have a call into doc but this board is so knowledgeable I wanted to get your info!) is that his resection is at that recto sigmoid area but he is getting a temp ileostomy (rightside, and this is small intestine)? This seems like two incisions instead of one and so I'm seeking...
by O Stoma Mia
Sun Sep 30, 2018 10:55 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Newly diagnosed rectum cancer
Replies: 37
Views: 11706

Re: Newly diagnosed rectum cancer

... Awaiting pathology results to find out staging and next course of action,and will update then... Thank you for the update on your surgery. While you are waiting for your pathology results to be released and for the results of the post-op review from your multidisciplinary tumor board to appear,...
by O Stoma Mia
Sun Sep 30, 2018 10:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: ***News Stories Thread*** ONGOING 2018
Replies: 56
Views: 41740

Re: How Is Rectal Cancer Care Being Improved by New National Standards?

How Is Rectal Cancer Care Being Improved by New National Standards? https://my.clevelandclinic.org/podcasts/butts-and-guts/how-is-rectal-cancer-care-being-improved-by-new-national-standards ...And in many countries in Europe, all of the Scandinavian countries, plus the UK, Belgium, Germany, Ireland...
by O Stoma Mia
Sun Sep 30, 2018 4:08 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New to the forum ...
Replies: 19
Views: 5609

Re: Stage IIA - New to the forum ... UPDATED

...Does anyone have suggestions for me as I prepare for my appointment with Dr. Saltz? Are there any Stage IIA folks on this forum who received low-dose metronomic chemotherapy after surgical resection? What treatment, if any, did you receive or are you receiving? Thanks for posting an update well ...
by O Stoma Mia
Sun Sep 30, 2018 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: I need a pep talk
Replies: 14
Views: 1012

HAI pump clinical trial

martd wrote:...Start looking into clinical trials and immunotherapy. Has your oncologist mentioned this yet? ...

You could look into Canadian clinical trials with the HAI pump:

http://www.canadiancancertrials.ca/trial/Default.aspx?TrialId=ON1233&lang=en
by O Stoma Mia
Sat Sep 29, 2018 3:33 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 29
Views: 8705

Re: MSI or MSS

Hi Stu - Good luck on drafting your letter! Actually, what I would suggest is for you to treat the Avastin and Keytruda requests separately, in two different letters/requests. This is because the two issues are very different and would require two different kinds of logical reasoning. Avastin has be...
by O Stoma Mia
Fri Sep 28, 2018 6:12 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 29
Views: 8705

Re: MSI or MSS

Hi stu, You mentioned earlier that you had access to a cancer charity's campaign section. Is there someone there that could help you write your letter and check that the letter is accurate and convincing? Does the charity have access to any doctors or medical scientists who could give technical advi...
by O Stoma Mia
Fri Sep 28, 2018 1:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 29
Views: 8705

Re: MSI or MSS

As already noted by others above, the mandate of UK's NICE Committee (National Institute for Health and Care Excellence) is two-fold, (1) efficacy and (2) cost-effectiveness: "... [The NICE] appraisals are based primarily on evaluations of efficacy and cost-effectiveness in various circumstance...
by O Stoma Mia
Fri Sep 28, 2018 1:03 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: IMMUNOTHERAPY
Replies: 25
Views: 7580

Re: IMMUNOTHERAPY

rp1954:
Thank you for explaining the differences between PSK and PSP, and the different methods of extraction. The explanation was very useful.

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