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by O Stoma Mia
Sat May 26, 2018 3:48 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 109
Views: 10467

Re: Mop up chemo experiences

... So I have not heard back from oncologist despite a promise of a call last night or this morning, I called again and left another message. I guess I will proceed with taking the xeloda? Not sure but it seems that it's a standard course... Just a couple of questions: Your Round#4 infusion was can...
by O Stoma Mia
Sat May 26, 2018 12:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What the hell happened to my colon? I need answers
Replies: 9
Views: 540

Re: What the hell happened to my colon? I need answers

.. Any help would be greatly appreciated... MD Anderson Colorectal Cancer Screening Agorithm http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=59399&p=471062#p471062 , NCCN algorithm for handling pedunculated polyps Section: COL-1, page 12 https://www.tri-kobe.org/nccn/guideline/c...
by O Stoma Mia
Fri May 25, 2018 1:38 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Husband diagnosed with rectosigmoid cancer...overwhelmed!
Replies: 7
Views: 227

Re: Husband diagnosed with rectosigmoid cancer...overwhelmed!

Does anyone know if staging can be done with just biopsies and pictures from a sigmoidoscopy? Does a CT or MRI also need to be done? I ask bc my husband was diagnosed yesterday and the surgeon appointment will be Tuesday, yet there’s been no CT/MRI. Normally, staging prior to surgery cannot be done...
by O Stoma Mia
Thu May 24, 2018 11:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Scan scheduled
Replies: 24
Views: 1172

Re: Scan scheduled

...May 2018: CT scan showed liver spot, MRI scheduled ... ...I finally got a call from the medical imaging place and scheduled the MRI for June 4... Magnetic resonance imaging (MRI) - Northwell Health https://www.northwell.edu/find-care/services-we-offer/imaging/treatments/magnetic-resonance-imagin...
by O Stoma Mia
Thu May 24, 2018 4:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What the hell happened to my colon? I need answers
Replies: 9
Views: 540

Re: What the hell happened to my colon? I need answers

To answer your questions more thoroughly, there are two additional pieces of information that would be needed: 1. How large was the polyp that was 90% removed? 2. What type of polyp was it? Pedunculated? Sessile? This information should have been provided in the colonoscopy report. There are establi...
by O Stoma Mia
Thu May 24, 2018 3:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Not sure how to feel right now
Replies: 26
Views: 2759

Re: Not sure how to feel right now

...Besides exercising 5 days a week what else can I do to stay NED There are three things you need to do:(1) Regular exercise, (2) Healthy, well-balanced meals, and (3) Stress reduction program. You need to develop programs to follow in all three of these areas. All three of them are important. You...
by O Stoma Mia
Wed May 23, 2018 11:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 109
Views: 10467

Re: Mop up chemo experiences

...he instead cancelled my appt for a week. This doesn't work as we are going to be gone.... I'm sorry to hear about this new development. If a one-week postponement is not possible, then when will you actually be able to resume your schedule, and how long will you have to be off Xeloda? Two weeks ...
by O Stoma Mia
Wed May 23, 2018 9:52 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 904
Views: 77347

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

It is good that you are continuining your exercise program, since the pelvic floor group of muscles needs to be rehabilitated before reversal since they have not been used for normal bowel movements for many months now. Be sure that your exercise routine includes the Kegel type of exercises designed...
by O Stoma Mia
Wed May 23, 2018 3:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 109
Views: 10467

Re: Mop up chemo experiences

... For anyone who has future travel plans I would also recommend applying for TSA precheck. The cost is reasonable and valid for 5 years, my credit card reimbursed the cost to me. It made security a breeze, no scanner... no additional questions or screening... just the metal detector walk through ...
by O Stoma Mia
Tue May 22, 2018 1:03 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 109
Views: 10467

Re: Air travel tips

If you are going to be traveling by air on the 29th, here are a few tips: ⋅ Pre-boarding checklist 1. Log in to SeatGuru.com with your flight number and departure date to download the seat plan for your specific flight. This will show you where the nearest toilets are with respect to your ...
by O Stoma Mia
Tue May 22, 2018 11:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Worried Daughter
Replies: 9
Views: 253

Re: Worried Daughter

...So my question... what can we expect? She goes for a consult today and colonoscopy will be scheduled. I'm sorry to hear about your mother's situation. What you can expect is that the next two to four weeks will be filled with various tests and pathology reports for determining (1) the exact natu...
by O Stoma Mia
Mon May 21, 2018 12:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My daughter is facing colon removal for non-cancerous reasons
Replies: 8
Views: 337

Re: My daughter is facing colon removal for non-cancerous reasons

...Anyone out there have anything like this. We are searching for ideas, before a colon removal. It seems like there must be something causing all of this. We just want to find it.... Could it be due to long-term over-use of laxitives? Maybe excessive use of laxitives over the years has caused the ...
by O Stoma Mia
Mon May 21, 2018 12:14 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 109
Views: 10467

Re: Mop up chemo experiences

... I am going NYC on the 29th, would like to have some quality time with our kids. If you are going to be traveling by air to NYC, I think it would be a good idea to get a letter from your doctor stating that you have a medical condition that may require special attention during your trip. You can...
by O Stoma Mia
Sun May 20, 2018 11:31 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: New worried member...
Replies: 7
Views: 342

Re: New worried member...

Cannot agree more with the others. There are too many of us who have been dismissed by doctors because we are "too young for cancer" or some other excuse. If cost is an issue, look into local programs that may help with a colonoscopy, talk to their finance, DO SOMETHING. Do not wait. . Fr...
by O Stoma Mia
Sun May 20, 2018 11:22 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Start tomorrow. So scared.
Replies: 27
Views: 750

Re: Start FOLFOX tomorrow. So scared.

I think your best bet would be to look for feedback specifically from people who were on the FOLFOX regimen. Other regimens have a different profile of side-effect progression. I have not had any first-hand experience with FOLFOX and have not had experience using a pump or a port. You would have to ...

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