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by O Stoma Mia
Sun Sep 23, 2018 5:17 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 11
Views: 379

Re: MSI or MSS

As mentioned by others in the posts above, there have been significant developments in the MSI-H / MSS scene since around 2015 or so. Now, in the United States, ASCO and NCCN are recommending that all colorectal cancer tumors be routinely tested for MSI status, since there may be implications for su...
by O Stoma Mia
Sat Sep 22, 2018 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSI or MSS
Replies: 11
Views: 379

Re: MSI or MSS

Here are the 2004 Bethesda guidelines for MSI testing: Table 2. The revised Bethesda Guidelines for testing colorectal tumours for MSI [3] Tumours from individuals should be tested for MSI in the following situations: 1. Colorectal cancer diagnosed in a patient who is <50 years of age 2. Presence of...
by O Stoma Mia
Fri Sep 21, 2018 9:35 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 131
Views: 12657

Re: O/T...Post Your Pics Here

...Can we expect ocean pics -- Dark waves & night sky stuff fitting for October?...or whatever suits your fancy. I'm sorry, but I cannot upload any photos to the Internet right now because of bandwidth limitations here. I have some dark, somber photos that might eventually qualify, but for now ...
by O Stoma Mia
Thu Sep 20, 2018 4:09 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: O/T...Post Your Pics Here
Replies: 131
Views: 12657

Re: O/T...Post Your Pics Here

... Say, whatever happened to Dracula's castle? Is that Stoma flaking on us? Where you at OSM? Did you turn into a BAT? I am traveling at sea and on a slow satellite connection. The photos are on my hard drive at home and inaccessible to me right now. I should be back home by Halloween, however. BT...
by O Stoma Mia
Wed Sep 19, 2018 11:41 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many different kinds of diarrhea?
Replies: 5
Views: 474

Re: How many different kinds of diarrhea?

Thanks Ron50 and CRguy for your insights. I find this area a particularly difficult one to understand, especially within the LARS context. LARS is a multiplex syndrome: many possible causes (e.g., surgery, radiation, chemo, etc) and many possible outcomes or long-term side effects (e.g., fecal incon...
by O Stoma Mia
Mon Sep 17, 2018 1:34 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery Tomorrow - 27th New Zealand Time
Replies: 42
Views: 2303

Re: Surgery Tomorrow - 27th New Zealand Time

It was nice to hear from you. I'm sorry to hear that you are having such a tough recovery, however. In case you're interested, here are some nice photos of New Zealand North Island, and New Zealand South Island for your review. Do you recognize any of these places? http://praisephotography.com/photo...
by O Stoma Mia
Sun Sep 16, 2018 2:47 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many different kinds of diarrhea?
Replies: 5
Views: 474

Re: How many different kinds of diarrhea?

Maggie - Thanks for your reply and the links !
by O Stoma Mia
Sun Sep 16, 2018 1:16 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How many different kinds of diarrhea?
Replies: 5
Views: 474

How many different kinds of diarrhea?

Some time ago I heard that there are three or four different kinds of diarrhea, and I was surprised to hear that there were so many. Since then I have been looking around for information about types of diarrhea with respect to CRC treatment side effects, but so far I haven't really found anything sp...
by O Stoma Mia
Thu Sep 13, 2018 2:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Colonoscopy October 5th, Age 30. Freaked out.
Replies: 6
Views: 367

Re: Colonoscopy October 5th, Age 30. Freaked out.

Here are some hints on how to get a good colonoscopy: How to get a good colonoscopy http://coloncancersupport.colonclub.com/viewtopic.php?t=51653&p=401721#p401721 If you're going to have a colonoscopy done, then it is very important for you to follow your doctor's instructions for colonoscopy p...
by O Stoma Mia
Thu Sep 13, 2018 12:20 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Julie Yip Williams passed away last Monday, Mar 19th, 2018
Replies: 19
Views: 4614

Re: Julie Yip Williams passed away last Monday, Mar 19th, 2018 (Update)

Apparently, Julie's book will be released on January 8, 2019. It can be pre-ordered now from the publishers, Penguin-Random House: ========================================== The Unwinding of the Miracle A Memoir of Life, Death and Everything that Comes After By JULIE YIP-WILLIAMS https://www.penguin...
by O Stoma Mia
Wed Sep 12, 2018 7:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My mom has passed away on Wednesday. Thank you all for this wonderful support forum
Replies: 18
Views: 2343

Re: My mom has passed away on Wednesday. Thank you all for this wonderful support forum

...I have not posted much on this forum, but would like to remain the member of this wonderful international group and help others as much as I can. Thank you all. On behalf of my mother Valentina Budapest, Hungary I see that you have been logging in here from time to time recently. Here's just a t...
by O Stoma Mia
Wed Sep 12, 2018 3:10 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Reflections on caregiving
Replies: 7
Views: 506

Re: Reflections on caregiving

...I will ask for one last favor. I am running a marathon, and I wanted to raise money for colorectal cancer. Anyone know the easiest way to do that independently? Hi Kirac - Thanks for checking in. It has been over a year since we heard from you last. But I'm sorry to hear about your divorce. That...
by O Stoma Mia
Mon Sep 10, 2018 3:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Mop up chemo experiences
Replies: 192
Views: 23382

Re: Mop up chemo experiences

... My CT results were posted the same day (early morning CT). It was basically a very long pathology report on the portal which I read from start to finish as you'd expect. It may be that the pathology department wasn't very busy that day. I don't understand what you are saying at all. A CT report...
by O Stoma Mia
Mon Sep 10, 2018 2:51 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: How Much Did You Sleep After Chemo? Chemo experiences :)
Replies: 7
Views: 372

Re: How Much Did You Sleep After Chemo? Chemo experiences :)

I slept all the time, but I was on Xelox. If you need more info, let me know.

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